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February 2012 Moms
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goldenleaves

preggersINschool25preggersINschool25 member
in February 2012 Moms
Does Lauren still have her feeding tube? Do you mind talking about it here? I'm on my phone so PMs are a pain.


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Re: goldenleaves

  • goldenleavesgoldenleaves member
    I don't mind talking about it here! Lauren does not still have it. She ha it from 3 weeks to around 10ish weeks old. Her body was working so hard to pump blood that she didn't have the energy for eating. Any eating she was doing was basically using up the calories she was taking in. She was on high calorie formula until 2 weeks ago. Her weight gain still isn't great but for now it's manageable. A lot of kids with Down syndrome end up with a G tube, but I think we're able to avoid it for now.

    The tube sucked for traveling and she yanked it out herself a lot. It was a NG tube. I had to replace it at least once a day! But we really just got used to it and it was not a huge deal.
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  • preggersINschool25preggersINschool25 member
    At what point would Lauren have to get to for you to consider a g tube? They are talking about giving Grant one and I haven't done much research.


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  • goldenleavesgoldenleaves member
    I'm honestly not sure! Right now she's 50th percentile on the Down syndrome chart and they're okay with that. I don't even think she's on the typical growth chart.
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  • preggersINschool25preggersINschool25 member
    Thanks! I admire you do much for being able to handle two kids and all the hurdles that come with being a special needs mom. You are my hero. I think about you often, mostly trying to figure out how you manage it all!


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  • goldenleavesgoldenleaves member
    Wow, thank you so much! I think about you often as well. I think it's a little bit more rough not having a diagnosis. We are lucky enough to have a name to put with any delays, you know? YOU are the one doing a great job. Seriously.
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