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My daughter is under weigh for her age :/

gmmaa71gmmaa71
in Special Needs
Took my daughter to the doctor and she weighs 27.5 lbs making her under weight she is 4 years old. Not the same heigh as a 4 year old. They said if she doesn't start gaining weigh they wan to do a g tube bu I don't see why that's necessary. It's all so fustarated g she alread has to deal with a lot 
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Re: My daughter is under weigh for her age :/

  • DixieNormous330DixieNormous330 member

    G-tube without even a consultation with nutritionist? My, totally not a doctor, recommendation is meet with a nutritionist and go from there.

    My DD is 19lbs at 2 years old and we're trying to get more calories into her. The nutritionist I met with gave great suggestions and we're trying them out before going to drastic measures.

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  • butterflygroovesbutterflygrooves member
    I agree, get a second opinion. My 2.5 year old is 33.5 inches tall and 23 lbs and our pedi has wanted her to get a gtube for months but I got a second opinion from a GI specialist at the Children's Hospital who agreed it's not necessary, that she's just tiny for her age.

    Two Mommies Healing Hearts

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  • realisticdreamsrealisticdreams member
    Our 22 month old is 20lbs.  She had fallen off the growth chart, after seeing a very good GI whom i trust, we are just trying to continue to increase calories.  We did not take her off formula until 16 months and she eats ALL THE TIME.  

    Depending on what your daughters other medical issues are would weigh in on my feelings for the G-Tube.  We were told nothing GI related was causing her lack of weight gain.
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • gimmietimmiesgimmietimmies member
    imagerealisticdreams:
    Our 22 month old is 20lbs.  She had fallen off the growth chart, after seeing a very good GI whom i trust, we are just trying to continue to increase calories.  We did not take her off formula until 16 months and she eats ALL THE TIME.  

    Depending on what your daughters other medical issues are would weigh in on my feelings for the G-Tube.  We were told nothing GI related was causing her lack of weight gain.
    I agree, it's hard to weigh in without knowing what medical condition we're talking about. For example, if this was a child in renal failure, I could absolutely see using a G tube or NG tube. They cant or won't take in food when they are on dialysis and tubing them is common. DS was tubed because he fell in the dangerous zone with his weight when he was sick, he was down to 34lbs at almost five, what he weighed at one year old, but with he height of a tall four year old. He refused treat for days, they tubed him.
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  • JustinloveJustinlove member

    I have to agree with the posters who said that it is dependent upon what else is going on.  If your child is continuously falling off her growth curve, is her CP affecting her ability to eat (or her stamina), etc.?  GI issues are not the only reason to consider tube feeding so seeing both a pediatric GI and a nutritionist that works with him/her is the next step I would take. 

    Other than the CP, has she had any other testing (genetic, etc.) to see if that is playing a rolll?

    My Craft Blog: Sew Girly Studio
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  • realisticdreamsrealisticdreams member
    ah!  I missed where she has CP.  If that's the case, is she mobile?  It is VERY common for children with CP to be very thin.  They have difficulty building the muscle mass as easily as a typical child would.  And we all know, muscle weighs more than fat.  That being said, I can't think of anyone I know with only CP has a feeding tube.  
    Again, I would need more info to weigh in but I think you should be sure you are seeing a pediatric GI and a nutritionist and possible go to a CP clinic, etc.
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • gimmietimmiesgimmietimmies member
    imagerealisticdreams:
    ah!  I missed where she has CP.  If that's the case, is she mobile?  It is VERY common for children with CP to be very thin.  They have difficulty building the muscle mass as easily as a typical child would.  And we all know, muscle weighs more than fat.  That being said, I can't think of anyone I know with only CP has a feeding tube.  
    Again, I would need more info to weigh in but I think you should be sure you are seeing a pediatric GI and a nutritionist and possible go to a CP clinic, etc.
    I missed that too. I do know some cp kids with tubes, but most (not all) have other issues, inluding my niece. If OP's dd is falling of the curve, I could see using a tube, but why not an NG to start? Less invasive.
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