Question on Twin to Twin Transfusion

krstnannd · November 2012

I jump from here to the April/May boards to Pregnant after IF, but thought this was the best place for this question.

So today I had my 18 week u/s to check on babies (I go every two weeks) Baby A's blood flow was abnormal, but she said that abnormal blood flow (in twin to twin) is usually what follows one or two other symptoms and not usually the main one. What I am wondering is has anyone had a "off" u/s and what happened? Has anyone had any experience with Twin to Twin? I hate to "google" becuase I know I am just freaking myself out, and even though the doc brings it up I shouldnt panic until I go back next week?

Mrs. Alice · November 2012

Did she say absent end diastolic flow? Were fluid levels normal? Mine started with a fluid level imbalance and then absent to reverse end diastolic flow in the donor. Sorry you are experiencing this.

kgs0505 · November 2012

I'm being monitored for TTTS too. The doctor said that the fluid levels, although technically normal right now, Baby A only has 2.17cm and Baby B has 6.57cm (if one is less than 2 and the other is greater than 8 is when they worry). So there is a discordance there they want to keep an eye on. She mentioned that fluid discordance is usually first, then issues with the blood flow via doppler readings. I'm just not there yet.

I hope things reverse for you. Nothing saying living humans always follow the rules when it comes to symptom order.

krstnannd · November 2012

Thanks ladies!

she didn't say what kind of flow, and if she did I was still concentrating on her first statement. She told me not to go crazy looking online that there was an abnormality but they will monitor it and try not to worry. Lol yes that is so easy to do!

its just hard not to worry.

krstnannd · November 2012

kgs0505:
I'm being monitored for TTTS too. The doctor said that the fluid levels, although technically normal right now, Baby A only has 2.17cm and Baby B has 6.57cm (if one is less than 2 and the other is greater than 8 is when they worry). So there is a discordance there they want to keep an eye on. She mentioned that fluid discordance is usually first, then issues with the blood flow via doppler readings. I'm just not there yet.

I hope things reverse for you. Nothing saying living humans always follow the rules when it comes to symptom order.

extra prayers for you!

babies fluids looked good she said, I think. Oh man.

pixiem38 · December 2012

Ttts is a crazy beast. Things don't necesarily.follow.the textbook.progression. My A baby.had absent flow once...and.high.doppler.readings at other times. The day that she had absent end, the doctor.came and said they would watch.it.carefully.to.make.sure.it.did not.go.into.reverse.flow...BUT it.was.also.quite.possibly.positional and the next time.would be fine. Frequent monitoring.is.really.important, along.with a dr that knows.what to.do.with the.information.

JenIrv · December 2012

My twins were diagnosed with TTTS when I was 16 weeks along. They were in stage 3. We had to have laser surgery and everything was fine after that. My baby b had low fluid levels and almost no bladder. Hopefully they continue to monitor you closely, so they can diagnose asap.

krstnannd · December 2012

Thank You!!! I go in every two weeks for monitoring, and since they saw the abnormality I will go in this week as well (so a week since my last u/s) plus I will start having u/s at my OB appts too so they can check my cervix. Never thought I would get to see the nuggets so much but so happy that I do!

I know there are options JDE'Nae so glad to see everythign worked out!

Thanks everyone!

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