Twins arrival at 32 weeks - Update.

amh04 · November 2012

Sorry I never responded to the inital arrival post - things have been flat out insane with them being in the NICU.

Here are a few pictures to apologize tho

Hayden at Birth - He had some swelling, weighed 3 lbs 5 oz, 15 inches long (recipenant of TTTS) Baby A.

Hayden, yesterday at 33 weeks 6 days. Weighing 3 lbs 11 oz.

Liam at Birth - weighing in at 3 lbs 4 oz, 16 1/4 inches long. (Donor of TTTS)

Liam yesterday at 33 weeks 6 days. Weighing in at 3 lbs 12 oz.

I wish I could say that they are doing fantastic and will be home soon, but truthfully we have a long road ahead of us. Hayden, our A baby, has a Grade 3 Brain Bleed (IVH) - and while we are optimistic that it'll clear up, they have involved a neurosurgeon at this point so he is aware of his case, as his ventricles have in fact gotten larger since last week. We're hoping thats just because his body is going to start reabsorbing it soon, but we won't know more until next Monday. They aren't sure if its a result of the TTTS or the lack of oxygen at birth, he wasn't breathing. He is doing fantastic otherwise and I refuse to let anyone tell me that he could have a disability long term, while I'm aware of it, it won't make me treat him or love him any differently. He is starting to take partial feedings on the bottle now! Took 12.5 mL last night! Whoo Hoo! I've been able to do kangaroo care with him the past few days which is my favorite!
Our Liam, baby B, has developed NEC and after finally getting them in the same room, he is now seperated again and in isolation which is heartbreaking. It's so hard to not be able to bounce back and forth between the two. He is on bowel rest for another 6 days and antibotics for another 4. Thankfully they caught it really fast and they think that the worst is behind him. It's just going to be a slow start when he does start feeding again, he'll recieve only breastmilk, while Hayden will recieve formula if neccessary. We were lucky enough to be able to have donor milk for the first week and a half, but now there is a huge shortage sadly. My supply is coming in though, slowly, and they are freezing what extra I bring in for him. He also won't be recieving fortifier either. Hopefully my poor baby is feeling better soon, I hate seeing him sick and having to get another PICC line

So that's where we are at. We're hopeful they'll both be home by Christmas (39 weeks) but.. we also know there is a good chance they won't be.

Thanks for all of your wondeful advice and suggestions as well as the T&P's.

Mrs. Alice · November 2012

Thanks for the update! I'm sorry you are all having a rough time. Sending lots of prayers your way. I know lots of moms of the preemie board who have experience with IVH and NEC if you ever want to talk to someone. Take care!

raraavis28 · November 2012

They are so sweet.....keep fighting little guys! Sending lots of T&P....hang in there mama; you have been through so much!

LALASEPT05 · November 2012

Thinking of you and your little ones. I can't imagine how difficult it must be but you sound like a very strong Momma! Keep it up.

mrsjami · November 2012

Sending hugs and strength for the coming weeks. Xoxo

LuvWIfootball · November 2012

Thanks for the update! Fx that your boys keep fighting and are home soon.

JordynLeighx3 · November 2012

Sending t's and p's your way! Beautiful babies you've got too

lynn0926 · November 2012

You and your babies continue to be in my T&Ps. I hope they make it with you for Christmas.

tombomb84 · November 2012

Thinking of you and your babies! I hope they have a smooth recovery and can come home soon!

JustcallmeGG2 · November 2012

congrats on your twins! keep being strong for your babies- they are beautiful!

flgator · November 2012

Thanks for the update and pics. Sending lots of T&P to you.

yinyang124 · November 2012

Much love and strength to all of you! They both look so good. Big hugs to you, mama.

Reilly626 · November 2012

My thoughts and prayers are with you and your babies!

megs2011 · November 2012

Beautiful boys. T&Ps to you and your LOs. I had my twins early too so I know how hard it is to have them in the nicu. Hoping they are home for xmas.

Holly_1007 · November 2012

I'm a dirty lurker, but just wanted to let you know about human milk for human baby's and eats on feets on facebook, they can connect you with moms who have extra breastmilk in your area, it is probably so important for your babies. hope things go smoothly from here on out for you and your babies!