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Intro / Identicals have TTTS

CaarolannCaarolann member
in Multiples

Hello everyone.  I never introduced here, because I kept saying, oh I'll wait until the next ultrasound to make sure very thing is okay... Well, here I am, and everything isn't okay,

Last thursday, at my routine OB appointment i was informed that at my last ultrasound they had trouble finding the membrane, so they wanted me to see an MFM.  i got an appointment that same day, and they confirmed they were mono di.  I was then referred to Columbia, and I had my appointment there today, and while at only 15 weeks, I don't have an official diagnosis, he thinks that by the time I come back on Wednesday, we'll be at a stage II.

I know none of you know me yet, but I'm just so worried and scared for my babies, so any thoughts and prayers you can share would be soo appreciated.

thanks ladies <3 

Lilypie Premature Baby tickers 
Born at 32 weeks 5 days due to SIUGR. Baby A was 4lbs 8oz and Baby B was 3lbs 3oz 
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Re: Intro / Identicals have TTTS

  • kelandspence2012kelandspence2012
    Congrats and welcome! Sending thoughts and prayers your way ! Hope everything is ok!
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  • pixiem38pixiem38 member
    Congratulations and welcome! I would highly recommend contacting Mary from the TTTS foundation as well.as Dr. DeLia. They are both very knowledgable.and very supportive (i think his number is on the ttts foundation's website, but Mary will definitely have it if is not)(i.know.it may sound weird to.randomly contact some.doctor that is not.yours, but he is amazing). The other thing i would recommend is to start drinking high protein boost or ensure (high.proten versions, not regular)(siipping slowly throughout the day...drinking two.or three a day) and staying off.your feet as much as you can. I really believe that approach is working for me currently....and maybe it won't do anything to.help, but it can't hurt anything,, and there are TONS of people that swear by it)(i am now.one.of them). It also.gives you the option to DO SOMETHING. If.you have any questions or want to.talk about it, let me know. It is.incredibly scary, but i am glad.your doctors are on.it, and there are good.outcomes all the time.
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  • CatS26CatS26
    congrats on your twins, i second the high protein shakes.
    Pregnancy Ticker
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  • amb2013amb2013 member

    I agree with every thing Pixiem said. Also, you mentioned Columbia, do you mean Columbia Presbyterian in NYC? My doctors are at Cornell and we were almost on our way to CHOPS in philadelphia due to early signs of ttts. If you are in the Ny area, definitely consider going for a consult at CHOPS, they are experts in treating ttts.

     I know this is scary and I am so sorry anyone has to go through this, take it one day at a time. Sending you lots of thoughts and prayers.

    image

    Me:34 PCOS, one kinked tube, low thyroid.
    DH:39 lower than average count.
    Married 2006. 3 failed IUIs and countless BFNs.
    ~IVF#1: July 2012~
    7/10 Retrieval: 16r, 14f w/ICSI. 7/15 ET: Transfered 2. 4 frosties.< Poas faint+ 4dp5dt.>
    Beta#1 (8dp5dt): 138. Beta#2 (10dp5dt): 355.
    u/s#1: (19dp5dt) 8/3/12 one sac, two yolks! Beta 8,000
    u/s#2: two strong heartbeats! EDD 4/2/12
    Boy/girl fraternal mono/di twins-- lost our sweet baby girl at 22 weeks due to SIUGR
    Preterm labor at 23 weeks 4 days, lost our sweet baby boy.
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  • MuseumMavenMuseumMaven member
    T&P that everything is OK!  I know we have quite a few TTTS success stories on the board!
    Saving money while raising more kids than you bargained for! Image and video hosting by TinyPic Lilypie Second Birthday tickers
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  • ColleenS629ColleenS629 member
    T&P for you and your babies.
    m/c 7/17/10
    Dx: MFI- 3% morph
    IUIs: Gonal-F + Ovidrel + b2b IUI= BFNs
    IVF with ICSI= BFP! EDD 11/25/11
    3/18- Beta #1 452! 3/20- Beta #2 1,026!! 3/27- First u/s- TWINS!
    Our twin boys arrived at 36w5d due to IUGR and a growth discordance

    FET: Medicated FET moved up to 5/23 due to ovulation
    Transferred a 6BB hatched blastocyst- genetically normal female embryo
    BFP! 5/28- 5dp6dt      
    6/1 Beta #1- 223! 6/3 Beta #2- 567!

    image

     Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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  • CaarolannCaarolann member
    Thank you ladies so so much for your advice, kind words and encouragement! I'll keep you all posted
    Lilypie Premature Baby tickers 
    Born at 32 weeks 5 days due to SIUGR. Baby A was 4lbs 8oz and Baby B was 3lbs 3oz 
    image
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  • JenIrvJenIrv
    Hi there. My boys were diagnosed with TTTS when I was 16 weeks along, stage 3. I was rushed from Hawaii (where we were living) to Califonia for emergency laser surgery with Dr Schmidt at Hollywood Presbyterian Hospital. Because of the 5 hour trip back to the island, I was also given a cerclage as my cervix started to shrink (they were not sure if it was because of the flight over, or the surgery.) The twins had no other issues following the surgery, and I was induced at 37 weeks, 1 day. They were over 5 and 6 lbs each. I don?t know much about the protein shake some of the ladies mentioned, just wanted to let you know TTTS does turn out ok sometimes. Blessings to you and your twins.
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