Infertility Veterans

IFV Revival? Parameters?

Although I am on the Facebook board, I still lurk around here. I definitely understand the need to revive this board for the sake of those who are simply not comfortable with with facebook format. I know I that without this IFV board, I would have left the IF bump boards long ago, and there seems to be a desperate need for those who feel "left behind" by the successful IF cyclers to fins a new home. 

We should discuss rules for admission to this board. I have *no* experience in this domain. I think Edwina was the gate keeper here and protected this board with a great deal of love. I think we should brainstorm a little bit as this board tries to recreate itself.

IFV is a necessary safe haven for women who have been through the wringer and are still still standing. What do we need? What do we think?  I am happy to be a part of this even if I split my time between here and facebook.

imageimage

TTC#1 since October 2010

"The jump is so frightening between where I am and where I want to be...because of all I may become I will close my eyes and leap." Mary Anne Radmacher

Me:35, 5 major abdominal surgeries for Ulcerative colitis, failed j pouch, perm. Ileostomy DX-DOR & Tubal abnormalities/Extensive Adhesions from earlier surgeries.latest fsh -26 :(

IVF 1- March 2012 Antagonist Protocol; BCP until March 3; AFC this cycle is 10 (Hooray); Start stims on March 9; ER on March 19- 2R; 2T (1 perfect 8 cell, 1 scrappy 3 cell); tubal infection from ER-hospitalized. Doomed! BFN

Essure Procedure to treat bilateral hydrosalpinx; June 2012, wait 3 months for confirmation test.

IVF2 (Egg Banking)-letrozole/antagonist cycle; June/July 2012 225iu merional + cetrotide; slow responder, Ovulated before ER. Unbelievable. Canceled remaining cycles with my eggs

DE IVF in Brno, Czech. Approx. ET on Oct 6 CANCELLED-Essure didn't close both tubes-test again in 3 months

IVF3-DE IVF ET on Dec 9, 2012 (decided to roll the dice no matter what!)

2 perfect HB transferred; 8dp5dt beta:36; 10dp5dt beta 15; chemical pregnancy.

Turning our hearts toward adoption

DH:36, SA-perfect

Married since July 11, 2009

Fur baby Cairn Terrier

SAIF/PAIF Welcome

Re: IFV Revival? Parameters?

  • I think the parameters that were originally in place are still valid.  It just seems that due to the inactivity of this board the transition from IF to IFV has disappeared.  Previously a IF'er who wanted to merge here could offer support and get-to-know the vets before introducing themselves. Unfortunately that went away with the mass exit.

    For those of us vets who want to keep this board, I think we just need to have a few polls and start posting again.  If we build it they will come.

    TTC #1 since 9/07
    Dx MFI, AMA, Endo, AMH .16
    Lap 10/09 Removed endometrioma, stage IV endo and adhesions
    Lap 2/10 Endometrioma cysts & adhesions returned.
    Ivf #1 4/10 Antagonist, ET Cancelled.
    IVF #2 2/11 A/ACP+E2V C/P
    IVF #3 6/11 Letrozole/Antagonist BFN
    IVF #4 11/11 Low stim Antagonist BFN
    Lap 3/12 Lap & Selective HSG
    Many cycles of Letrozole and LP HCG w/TI and LDN
    IVF #5 8/12 Low stim BFN
    IUI #1 10/12 BFN br> S&PAIFW
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  • Glueck, thanks for posting this! 

    I copy/paste your post from IF just so I could use it for reference:

    "I still think that 6+ months of activity on IF board/Bronze poster minimum status/ and X number of failed treatment cycles (we have to define that X) will still be compulsory. Joining in the middle of a treatment cycle also always kinda rubbed me the wrong way. Eh."

    Just a few questions for clarification: - I have no issues with the 6+ months/bronze poster minimum status--I'll be nearing that soon and it's given me time to develop relationships and just figure out what the heck to do next. However, I do have a question about "x number of failed trx cycles". I'll only have 1 failed cycle under my belt, and it will be this way for at least a year as DH and I don't plan to cycle again for a number of reasons (mentally, physically and most importantly financially). So, does this mean until I have more than 1 failed cycle I would not be welcome here? 


    ~TTC#1 Since July 2011~ 
    Dx: Fibroids & Tubal Infertility
                                                        9/12 -IVF#1 =BFN; 5/14 -IVF#2=BFP:-) EDD 2.19.2015                                                

    S/PAIF Welcome 





    imageimageimage

    BabyFetus Ticker

  • Glueck- I could not agree more about the mid-cycle joiners. Not acceptable as it is just like a drive-by if a week later you are saying your cycle worked. Wait until the end of your failed cycle.

    Another thing that is a problem: I know there are some girls who have been around a long time that just can't cycle due to lack of funds. So they may not have "X" number of failed cycles and would be excluded if that criteria was there. I'm not sure what the answer is for that.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • imageTrippleb:

    I think the parameters that were originally in place are still valid.  It just seems that due to the inactivity of this board the transition from IF to IFV has disappeared.  Previously a IF'er who wanted to merge here could offer support and get-to-know the vets before introducing themselves. Unfortunately that went away with the mass exit.

    For those of us vets who want to keep this board, I think we just need to have a few polls and start posting again.  If we build it they will come.

    That was my initial point to Breezy's post-- new people without a home-- just revive this board. You don't need the oldtimers if you still want the board.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • imageTrippleb:

    I think the parameters that were originally in place are still valid.  It just seems that due to the inactivity of this board the transition from IF to IFV has disappeared.  Previously a IF'er who wanted to merge here could offer support and get-to-know the vets before introducing themselves. Unfortunately that went away with the mass exit.

    For those of us vets who want to keep this board, I think we just need to have a few polls and start posting again.  If we build it they will come.

    This. 

    Countless BFN(s)
    Moving to IVF

    IVF1 (ICSI): Long Lupron
    6R. 3F. 3DT. 8Cell 1Grade 2Embies. 1Frostie.
    Beta 1/22: 14 Beta 1/24: 24 Beta 1/26: 28
    Round One Result: Chemical Pregnancy

    Pressing Forward

    IVF2 (ICSI/AH/ACU): Microdose Lupron Flare
    13R. 11F. 5DT. 2TFR'ed. 1Frostie.
    Round Two Result 4/30: Harsh BFN

    FET. 2TFR'ed.
    Round Three Result 6/25: BFN
    Where do we go from here?

    Moving forward with CCRM in 2013
    ODWU revealed blocked tube(s). Lap 2/15.
    Bilateral Tubal Ligation. Stage IV Endo.
    Finally some (tough) answers.


    IVF3 (ICSI/CCS): Antagonist with EPP
    13R. We have 3 CCS Normal Embryos!


    Lupron Depot: May 2013 to August 2013
    Long awaited FET on 9/3. 2TFR'ed.
    BFP on FRER 5dp5dt: IN SHOCK!
    Beta1 9/10: 152.7! Beta2 9/12: 378! Beta3 9/14: 1224! 

    1st ultrasound 10/1: TWO beautiful heartbeats!  Overjoyed!

  • I don't necessarily think X number of failed cycles is necessary either, however I imagine that 75% of the time, people on this board have multiple failed cycles under their belts. (ugh) I think if all of the other pieces are there, this piece is more of a case by case.

    Again- these are only suggestions. Whoever will be the gate keeper of this board, and it wont be me, will have to use her best judgement. I suggest its someone who uses ONLY IFV and not the facebook board as well.

    I am just throwing things out there for those of you who are interested in reviving the board.   

     

     

    imageimage

    TTC#1 since October 2010

    "The jump is so frightening between where I am and where I want to be...because of all I may become I will close my eyes and leap." Mary Anne Radmacher

    Me:35, 5 major abdominal surgeries for Ulcerative colitis, failed j pouch, perm. Ileostomy DX-DOR & Tubal abnormalities/Extensive Adhesions from earlier surgeries.latest fsh -26 :(

    IVF 1- March 2012 Antagonist Protocol; BCP until March 3; AFC this cycle is 10 (Hooray); Start stims on March 9; ER on March 19- 2R; 2T (1 perfect 8 cell, 1 scrappy 3 cell); tubal infection from ER-hospitalized. Doomed! BFN

    Essure Procedure to treat bilateral hydrosalpinx; June 2012, wait 3 months for confirmation test.

    IVF2 (Egg Banking)-letrozole/antagonist cycle; June/July 2012 225iu merional + cetrotide; slow responder, Ovulated before ER. Unbelievable. Canceled remaining cycles with my eggs

    DE IVF in Brno, Czech. Approx. ET on Oct 6 CANCELLED-Essure didn't close both tubes-test again in 3 months

    IVF3-DE IVF ET on Dec 9, 2012 (decided to roll the dice no matter what!)

    2 perfect HB transferred; 8dp5dt beta:36; 10dp5dt beta 15; chemical pregnancy.

    Turning our hearts toward adoption

    DH:36, SA-perfect

    Married since July 11, 2009

    Fur baby Cairn Terrier

    SAIF/PAIF Welcome

  • I agree in the if you build it they will come philosophy.  I also agree that some polls to get things rolling is a great idea.

    In regards to the x number of cycles... I have to say that I fell into that category when this board was created.  I was an active poster when IF was still TTTC, and stuck with it as it transitioned to IF and the introduction of IFV.  I didn't have that many treatment cycles under my belt but as an active poster I was welcomed by the board.  Developing relationships and showing support is an important part of joining the IFV board.

    SAIFW
    TTC since 2008 dx PCOS & MFI
    Clomid/Femara no "O"
    IVF #1 BFN
    FET #1 cancelled for biopsy
    FET #1.2 c/p, July 2012 c/p
    IUI #1 & 1.2 canceled
    IVF #2 ER 12/1, Freeze all due to OHSS
    FET #2.1 cancelled due to DVT risk, FET #2.2 Jan 2013
    my blog
    image
  • Lastly- if you seriously think with all of your heart and soul that you belong here on IFV and you are NOT in the middle of a treatment cycle, make an intro post. I think of it as putting your flag in the sand.
    imageimage

    TTC#1 since October 2010

    "The jump is so frightening between where I am and where I want to be...because of all I may become I will close my eyes and leap." Mary Anne Radmacher

    Me:35, 5 major abdominal surgeries for Ulcerative colitis, failed j pouch, perm. Ileostomy DX-DOR & Tubal abnormalities/Extensive Adhesions from earlier surgeries.latest fsh -26 :(

    IVF 1- March 2012 Antagonist Protocol; BCP until March 3; AFC this cycle is 10 (Hooray); Start stims on March 9; ER on March 19- 2R; 2T (1 perfect 8 cell, 1 scrappy 3 cell); tubal infection from ER-hospitalized. Doomed! BFN

    Essure Procedure to treat bilateral hydrosalpinx; June 2012, wait 3 months for confirmation test.

    IVF2 (Egg Banking)-letrozole/antagonist cycle; June/July 2012 225iu merional + cetrotide; slow responder, Ovulated before ER. Unbelievable. Canceled remaining cycles with my eggs

    DE IVF in Brno, Czech. Approx. ET on Oct 6 CANCELLED-Essure didn't close both tubes-test again in 3 months

    IVF3-DE IVF ET on Dec 9, 2012 (decided to roll the dice no matter what!)

    2 perfect HB transferred; 8dp5dt beta:36; 10dp5dt beta 15; chemical pregnancy.

    Turning our hearts toward adoption

    DH:36, SA-perfect

    Married since July 11, 2009

    Fur baby Cairn Terrier

    SAIF/PAIF Welcome

  • imagerockpaperlove:
    imageTrippleb:

    I think the parameters that were originally in place are still valid.  It just seems that due to the inactivity of this board the transition from IF to IFV has disappeared.  Previously a IF'er who wanted to merge here could offer support and get-to-know the vets before introducing themselves. Unfortunately that went away with the mass exit.

    For those of us vets who want to keep this board, I think we just need to have a few polls and start posting again.  If we build it they will come.

    This. 

    Agreed!  I still check in here whenever I'm able to stop by TB.  Although I'm in the FB group, I don't plan to stop visiting here as well.  There are times when I can better access TB and times that FB works better for me (or, like recently, times when I don't seem to be able to spend much time on either board Sad).

    I'm so very thankful that this board existed when I started feeling very out of place and left behind on IF -- I certainly don't want it to disappear.  That said, I doubt it will if, like PP have said, interested IFers start stopping by to intro and post.

    TTC since honeymoon in 9/2010
    Me: 39, Dx DOR (FSH = 10.5, AMH = 0.43, best AFC = 10), AMA
    MH: 37, Dx Obstructive Azoospermia, multiple successful sperm retrieval procedures

    1/2012: IVF/ICSI #1 Antagonist = cancelled d/t poor response to max stims
    2/2012: IVF/ICSI #2 MDLF (4R, 4M, 1F) = BFP, saw heartbeat, missed m/c 9w0d, D&E
    8/2012: IVF/ICSI #3 EPP/MDLF (7R, 2M, 1F) = BFN

    12/2012: (New RE) Operative hysteroscopy to remove scar tissue

    1/2013: IVF/ICSI #4 Low-dose stim/Antagonist (AFC=6); ER=1/26 (5R-couldn't access rt ovary, 5M, 4F), ET=1/29 (trans 3) = BFP!; 2/11 beta#1(13dp3dt)=2127, 2/13=3367; twin girls due 10/19/13

    PAIF/SAIF very welcome!

    <a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Pregnancy"><img src="http://global.thebump.com/tickers/tt16bf7d.aspx" alt=" BabyFruit Ticker" border="0"  /></a>
  • imageMrs.McIrish:

    Another thing that is a problem: I know there are some girls who have been around a long time that just can't cycle due to lack of funds. So they may not have "X" number of failed cycles and would be excluded if that criteria was there. I'm not sure what the answer is for that.

    This exactly. It's about being left behind, especially from people you've given support to, not necessarily having a long journey. If you are a stranger or new to the bump, IFV is not the board for you no matter how long your TTC journey. 

    +++
  • Just wanted to say I'm also interested in keeping this board alive! I agree with what everyone else has said re: parameters to join etc.
    Dx: High FSH, stage IV endo, homozygous C677T MTHFR and PAI-1
    Early loss 10/08
    Lap 1/09
    IVF #1 "natural IVF" - 1 egg retrieved, missed m/c
    Tried several mini-stim cycles with no response
    Switched clinics - dx'd as carrier for Fragile X
    IVF #2 MDL protocol Jan/Feb converted to IUI, BFN
    IVF #2 take 2: Antagonist, one embie, BFN
    IVF #3: Antagonist, no fertilization
    One last ditch effort at OE IVF (antagonist with Clomid) cancelled
    DE cycle #1 Jan/Feb 2011, BFP, ectopic
    DE cycle #2 June/July 2011 - BFP
    10/28/11 Baby girl lost at 17 weeks due to pre-term labor. We love and miss you.
    DE cycle #3 June/July 2012 - BFP, twins, both heartbeats stopped, D&C
    2 frosties but don't know what's next
    FET Dec 2012: BFP! Praying this one sticks for the long haul!
  • imageEdwina.McDunnough:
    imageMrs.McIrish:

    Another thing that is a problem: I know there are some girls who have been around a long time that just can't cycle due to lack of funds. So they may not have "X" number of failed cycles and would be excluded if that criteria was there. I'm not sure what the answer is for that.

    This exactly. It's about being left behind, especially from people you've given support to, not necessarily having a long journey. If you are a stranger or new to the bump, IFV is not the board for you no matter how long your TTC journey. 

    I agree with this. You have to be around to give support, not just show up when you need it. It's hard for me since we are kind of at a dead end and not sure what to do next. But I have spend a lot of time on this board and want it to be here for those who have no hope and need support and can give support. Not drive bys, or people who just think they are Vets. Some people just like to call themselves IF and they do not belong here.

    PAIF and SAIF Always Welcome!
    TTC since 2007
    6 IUIs, 3 IVFs, and 2 m/c :< PCOS, Blood Clotting Disorder & MFI
    IVF #2 Aug 2011 is a BFN:<
    IVF #3 March 2012 is a BFN
    Not sure what to do now. Sad and lost.
    Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers
  • I'm still not sure if I would be welcome here either.
    I have only been posting 4 or 5 months, mainly because I felt very out of place. After discovering the bump after a few failures, I did not feel comfortable posting for the same reasons I do now.
    Also, I start my 5th IVF cycle later this week and it seems as though my timing is off too. It seems as though I'd only be welcome if this cycle fails.

    This is unfortunate for me because I consider myself to be very supportive and knowledgable, but I don't feel as though the IF board is really my place.

    Me (32) DOR, elevated NK Cells/ 2 copies of MTHFR mutation/ MH (35) azoo/high DFI   (TTC#1 since 2009)

    IVFs#1-4: (4/10-2/12) all BFN

    Surprise Bfp (9/11) - c/p

    DS IUI#1-2 (9/12, 10/12) - BFN

    DS IVF: (11/12) - BFN

    DE/DS IVF#1: (10/13) - 2 day 3 embies transferred-BFFN

    FET of 2 day 6 blasts: (12/13) - c/p

    DE/DS IVF #2: (4/14) - 1 day 5 blast transferred...BFFN...again.

    FET 5/14: 1 day 5 hatching blast transferred...another BFFN

    Repeat SHG 6/14-normal / Endometrial Receptivity Array biopsy 7/14-Receptive Uterus

    New RE, additional testing reveals elevated NK Cells

    FET of 1 day 5 blast (RE recommends transferring 1 due to elevated NK cells) with lovenox, steroids & intralipids in October

     

     

     

  • Thanks for starting this discussion.

    It isn't as easy as "post an intro" because, you see, I did that below and got responses, but when nothing else is happening then it's like talking to crickets. I come over here multiple times a day to see what's been posted and...

    As for parameters I agree with most of the points made but I don't have very strong feelings about it. Also I don't singularly want to police it - but I would be willing to be a part of a group that does that.

    I sort of feel like there needs to actually be an active group posting before hardcore parameters are set.

    It's a very difficult thing to do because so many gals belong in this club that no one wants to belong to and turning someone away who needs support is hard on my heart. But I understand and have witnessed the reasoning.

    BzeetyD = 38, Mr. BzeetyD = 44 together 12/02 married 9/08
    TTC #1 since 1/10
    DX: Unexplained/??? MFI issues

    Our lil' lost sparks:
    5w3d loss 7/30/10 - EDD March 2011
    8w loss 4/15/11 - EDD November 2011
    8w3d loss 8/2/12 - EDD March 2013
    4w c/p loss 10/29/12 - EDD July 2013

    Long story: trying on our own + testing testing testing with 6 rounds of Clomid, more testing, injectables + TI, laparoscopy - one tube blocked, 2 IUIs with Follistim...BFNs.
    RPL testing all normal, Karyotyping normal

    Moving on to IVF.

    IVF #1 April 2012 = BFN, IVF #2 June 2012 = BFP. U/S 7/23 = saw heartbeat but measuring behind. Follow up U/S on 7/30 - no heartbeat. D&C 8/2. Trisomy 12. IVF #3 Oct 2012 = Chemical Pregnancy

    Phone consult with CCRM on 12/12/12 - ODWU 1/4/13 - both tubes clear(!) - AFC 24, AMH 3.2, FSH 9.6, LH 5.4, E2 25. DH has high frag rate but improved!
    IVF #4 March 2013 CCRM. EP protocol w/ Menopur, Gonal-F & Dexamethasone. ER 3/29 & IMSI, PICSI. 43R 13M 10F 6blasts bio'd. CCS testing reveals 3 normals!!!
    FET 5/31/13 of 1 4AA blast - thawed and expanded. 4dp5dt BFP.
    Beta 9dp5dt = 181, 11dp5dt = 427. 1st u/s showed a healthy heartbeat! EDD 2/16/14

    After 4 years of hoping and heartbreak, our sweet little bean was born on 2/19/14
    We are so in love with her.

    "I'm not telling you it's going to be easy, I'm telling you it's going to be worth it."

    Everybody is welcome!!!
  • Km672. The "rules" are so people can join with clear(ish) parameters and to save any person from having to judge another. It's not a popularity contest or a matter of posts that are move valuable than another's It's so we can be a fair and consistent to everyone. Making exceptions or showing favoritism is unacceptable and unfair. It's hard enough defining what an "active poster" is, the time limit is (at least) a clear and finite delineation. The suggestion that anyone should be able to jump the fence (aka is entitled) when not one other person has had that opportunity is just wrong to me. 

    If folks want to bend this rule to encourage more people on this board I defer to the majority, however I'm not making the call. Its needs to be agreed upon by the majority, a timeframe for acceptance needs to be established, and someone needs to play gatekeeper. All with the understanding that some people will be REALLY PISSED because they were turned away in the past.

    I'm sorry that you are not comfortable posting on IF but every single person in IFV has posted on IF, mostly for much longer than 6 months. I personally don't think that posting on IF for any less than 6 months is a horror show. It's the way IFVers can get to know you. And I'm not going into the importance of that because it's all in the FAQ.

    Again, I defer to the majority but that is the thinking of how those rules were established, why I support it and act the way I do. If people want to revive the board for all the good reasons then you'll also have to understand the etiquette and ideology behind it, AND practice it as well. If these ideologies change then so be it, but it should be done with the collective in mind and not for the benefit of a single person.

    +++
  • I totally agree and understand with everything you said. If I am not welcome here because I don't meet the time limit criteria or because I am about to start a new cycle, I totally get it.
    I will respect the wishes of the board members.
    That being said, now that the parameters are being revisited, I will check in after they are further discussed.

    Me (32) DOR, elevated NK Cells/ 2 copies of MTHFR mutation/ MH (35) azoo/high DFI   (TTC#1 since 2009)

    IVFs#1-4: (4/10-2/12) all BFN

    Surprise Bfp (9/11) - c/p

    DS IUI#1-2 (9/12, 10/12) - BFN

    DS IVF: (11/12) - BFN

    DE/DS IVF#1: (10/13) - 2 day 3 embies transferred-BFFN

    FET of 2 day 6 blasts: (12/13) - c/p

    DE/DS IVF #2: (4/14) - 1 day 5 blast transferred...BFFN...again.

    FET 5/14: 1 day 5 hatching blast transferred...another BFFN

    Repeat SHG 6/14-normal / Endometrial Receptivity Array biopsy 7/14-Receptive Uterus

    New RE, additional testing reveals elevated NK Cells

    FET of 1 day 5 blast (RE recommends transferring 1 due to elevated NK cells) with lovenox, steroids & intralipids in October

     

     

     

  • imageTrippleb:

    I think the parameters that were originally in place are still valid.  It just seems that due to the inactivity of this board the transition from IF to IFV has disappeared.  Previously a IF'er who wanted to merge here could offer support and get-to-know the vets before introducing themselves. Unfortunately that went away with the mass exit.

    For those of us vets who want to keep this board, I think we just need to have a few polls and start posting again.  If we build it they will come.

    Agree!

     

    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015


    http://icanhazbabyz.blogspot.com/
    imageimage image 
  • imageKm672:
    I'm still not sure if I would be welcome here either. I have only been posting 4 or 5 months, mainly because I felt very out of place. After discovering the bump after a few failures, I did not feel comfortable posting for the same reasons I do now. Also, I start my 5th IVF cycle later this week and it seems as though my timing is off too. It seems as though I'd only be welcome if this cycle fails.This is unfortunate for me because I consider myself to be very supportive and knowledgable, but I don't feel as though the IF board is really my place.

    I think the reason the rule was put in place that you need to have a history of posting before coming over here is that the board was created by a core group of women who already knew and supported each other from the IF board. So in order to move to IFV you had to be a vet not only of treatment, but a vet of the boards. To be honest, I don't visit IF much anymore so anyone who comes over here now is going to be new to me...which may be my own fault. If there are going to be new members joining, I would not be opposed to someone like you, who has been through the ringer, also coming over. I probably would not have been in the past, but if this board is evolving I'm ok with it.

    However like Edwina I do see the need to have, going forward, criteria for joining that is fact-based and not based on popularity or making exceptions. So maybe I'm not really sure what my position on this is...

    Dx: High FSH, stage IV endo, homozygous C677T MTHFR and PAI-1
    Early loss 10/08
    Lap 1/09
    IVF #1 "natural IVF" - 1 egg retrieved, missed m/c
    Tried several mini-stim cycles with no response
    Switched clinics - dx'd as carrier for Fragile X
    IVF #2 MDL protocol Jan/Feb converted to IUI, BFN
    IVF #2 take 2: Antagonist, one embie, BFN
    IVF #3: Antagonist, no fertilization
    One last ditch effort at OE IVF (antagonist with Clomid) cancelled
    DE cycle #1 Jan/Feb 2011, BFP, ectopic
    DE cycle #2 June/July 2011 - BFP
    10/28/11 Baby girl lost at 17 weeks due to pre-term labor. We love and miss you.
    DE cycle #3 June/July 2012 - BFP, twins, both heartbeats stopped, D&C
    2 frosties but don't know what's next
    FET Dec 2012: BFP! Praying this one sticks for the long haul!
  • Yeah, if you're a gold poster because you are avid on the Harry Potter board it really has no bearing on IF. :)

    +++
  • I definitely would like to see this board revived as well.
    TTC #1 Since 4/2010, Cycle 30
    Positive for HLA-B27, I'm a mutant :p
    Testing - Me ok, gluten issue? DH - borderline count, low motility
    4/28/11 IUI#1 = BFP!(5/25), EDD 2/2/12 - m/c 5w3d
    7/3, 7/31, 9/25 - IUI#2-4=BFN
    IVF#1 - 1 blast = BFP!! (12/30), EDD 9/9/12, confirmed c/p 4w2d
    FET#1 3/2/12 - 2 blasts =BFP!! EDD 11/18/12, us#1 = twins! Confirmed m/c 5w6d
    4/20-surprise BFP and another c/p 4w2d
    FET#2 7/16/12 - 2 blasts = BFN
    FET#3 8/20/12 - 1 blast - BFP!! Beta #1-2=177, 354
    1st u/s 5w6d, one beautiful little HB :), 2nd u/s 146bpm
    baby girl born 5/10/13

    TTC#2 since 12/17/2014, Cycle 8
    Repeat Testing...FSH=12, AMH=3.8, AFC=28. 
    IUI#5 5/10/15- c/p?
    IVF#2 8/19/15 - cancelled due to cysts
    IVF#2 take two 10/2015 - 5 blasts frozen
    FET#4 12/11/2015 - BFN - 4 blasts remaining
    FET#5 2/18/16 - BFP!!!  Beta1-3, 126, 250, 745!!

    Image and video hosting by TinyPicLilypie Angel and Memorial tickers

    Tons of love and ((hugs)) to my IF sister NMscubagirl


  • I don't have six months of posting on the IF board. I think I meet the other criteria (if an FET counts as a failed cycle) and I don't know if you would count being on BCPs as being in the middle of a cycle or not. We have tentative plans to cycle in December but we may scrap that based on some family issues. I'll do whatever the general consensus is. I think you guys are awesome and I can wait if I need to. I like the fact that there's a place for people who've been there.
  • imageGregermis:
    I definitely would like to see this board revived as well.

    Ditto!  

    TTC #1 Since 11/08 - Dx: MFI & PCOS
    7 IUIs = All BFNs
    2011: March IVF #1.2 = e/p @ 6w: May IVF #2 = BFN: July sFET #1 = BFN

    2012: Jan We're Certified FC/A Parents
    May IVF #3 = c/p
    June-Nov Foster Mommy to M (Toddler)
    July FET #2 = BFN
    Aug FET #3 = BFN
    Sept-Nov Foster Mommy to Baby Bella (Newborn)
    Nov HSG/Sono = Clear!
    Dec FET #4 = BFN

    2013: Feb FET #5 = m/c @ 6.5w
    May-July Foster Mom to H (8 yr old girl)
    June/July/Aug IVF #4 = Freeze All
    July = Unofficially Adopting T (10 yr old boy)
    Sept FET #6 = TBD
    **PAIF/SAIF Welcome**
  • imageBella2u07:

    imageGregermis:
    I definitely would like to see this board revived as well.

    Ditto!  

    Me, too! 

    Baby girl Lila born 2013.
    Baby boy Henry born 2015.
    Expecting our capstone baby (boy) early March 2018.
  • imageEdwina.McDunnough:

    Yeah, if you're a gold poster because you are avid on the Harry Potter board it really has no bearing on IF. :)

    This made me giggle :) 

    SAIFW
    TTC since 2008 dx PCOS & MFI
    Clomid/Femara no "O"
    IVF #1 BFN
    FET #1 cancelled for biopsy
    FET #1.2 c/p, July 2012 c/p
    IUI #1 & 1.2 canceled
    IVF #2 ER 12/1, Freeze all due to OHSS
    FET #2.1 cancelled due to DVT risk, FET #2.2 Jan 2013
    my blog
    image
  • Just to put another thing for thought out there- 

    I've never felt like I fit on the IFV boards. Not because I'm especially attached to watching people pass me by- but because I do tend to come and go on the Bump and I never seem to fit the parameters.

    I've been off and on the Bump boards since 2009- off and on the IF boards since 2010. I'd like to think I'm fairly recognizable to the old timers. I come when I need support and when I feel I can provide support but I take breaks for my mental health. And those breaks often mean I don't have a consecutive 6 month posting history. Or, like now- I wind up coming back from months on PAIF and most of the people on the IF board are strangers. Strangers still on their first and second treatment cycles. So by the intent of the board and the idea that no exceptions should be made- I should spend my next 6 months supporting those people. Watching and waiting as most of them move on before I'm cleared to cycle post-loss. Again. Just to get permission to join the club.

    I understand the need to be selective. To have rules and to make no exceptions. I understand the wish for a safe haven. But I also think that for the health of the board- to encourage new people to come along once the vets have gotten their BFPs or moved on- that its necessary to allow the board and the rules to evolve and change and accept the edge cases over time.

    It's not like infertility is cut and dry. What defines a cycle- a failed cycle- an interrupted cycle- a cancelled cycle... It's all individual. When to move on from one treatment to another- when to move on to a different path in life- when to come to the Bump for help- even when to give up hope on trying naturally and go to the RE are all incredibly personalized decisions. Flexibility is key to surviving infertility- it might be something good to have even with the protected haven for vets.

    image
    Friends for 17 years. Married 10. TTC since Jan 2009.
    3 IVFs, 4 FETs, 11 transferred embryos, 3 losses (c/p, 6w, 17w)
    2012: Lost "Peanut" at 17weeks to PTL/IC.
     Lilypie Angel and Memorial tickers
    2013: IVF#3/FET#4  Elisabeth CJ born April 30, 2014
    Cerclage, P17, and 3 months of bed rest brought us our Rainbow.
    Lilypie Premature Baby tickers
     Dum spiro, spero.
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