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Special Needs
EmAre
member
Intro
EmAre
member
Hi there! I've been lurking on this board for a while and just posted in the open letter thread. I figured now is a good time to introduce myself in case anyone was wondering about the random crazycakes posting on your board.
I am an unexpected SAHM to an almost 3yr old girl with 16p11.2 microdeletion syndrome. She has multiple food intolerances, GERD, has been FTT most of her life, and gets ST, PT, OT and a spec Ed teacher for her multiple delays. She also has SPD and behavioral/aggression problems.
She is also the funniest, bravest, most beautiful little girl I have ever met. She loves music and anything to do with planets space.
Nice to "meet" you all!!
I am an unexpected SAHM to an almost 3yr old girl with 16p11.2 microdeletion syndrome. She has multiple food intolerances, GERD, has been FTT most of her life, and gets ST, PT, OT and a spec Ed teacher for her multiple delays. She also has SPD and behavioral/aggression problems.
She is also the funniest, bravest, most beautiful little girl I have ever met. She loves music and anything to do with planets space.
Nice to "meet" you all!!
This discussion has been closed.
Re: Intro
Welcome!
Our son has three interstitial microdeletions on the p arm of chromosome 1.
We are involved with both the Simons study as well as the Facebook group. I actually posted yesterday inquiring about donation sites. Feel free to say hi! ;