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continuous fevers

NazirNazir
in Special Needs

Today, my coworker told me that her son has had a continuous fever since June. She said the fevers started mid March. They keep the fever down with ibuprofen. He doesn't have any other symptoms but does get tired when the ibuprofen wears out. She's been to a hematologist/oncologoist. He has blood checked weekly, He's been to an infectious disease doctor, ruematologist, audiologist, GI.  Anyone have experience with continuous fevers? or what other docs she should see. There are so many rare conditions maybe someone knows something the doctors can't figure out.

 

TIA

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Re: continuous fevers

  • Ginlyn0Ginlyn0 member

    Not that this is necessarily going to be helpful, but have they given the baby any antibiotics at all? I say this because my DD had a super high fever for almost 2 weeks once when she was about 4. I'm talking 104+ that was unrelenting and they kept running tests, strep tests, blood tests, blood cultures, mono tests and everything was negative eventually one of the docs prescribed antibiotics even though they did not suspect a bacterial infection at all and sort of did it just to see and within a day her fever was gone.

    DD(14),SD(13),SS(11),SS(9),DS(3)

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  • realisticdreamsrealisticdreams member

    dd2 has a fever disorder called PFAPA however they come/go on a pattern, not continuous.  The dr we saw for it was a immunologist, and the next dr we would see if need be would be the rheumatologist.  

    The only thing I would say from our personal experience would be to see a urologist and have some something done like a VCUG, we did not know that dd2 had reflux and even though she didn't have infections, since we started her prophylactic antibiotic she has not really had any fevers.   

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • kkmorgan77kkmorgan77 member
    DS had fevers (greater than 100.4 and sometimes spiking to 105 for a few days at a time) for 9 months straight (from about 12 months until 21 months).  We saw our pedi several times, did extensive bloodwork, saw hem/onc, GI, and infectious disease.  He didn't really have any symptoms other than the fever and increased appetite and sleepiness. His bloodwork did show that he was neutropenic at times, but nothing else conclusive.  Eventually, the fevers just subsided and he is now a happy, healthy 3 year old!  The only weird thing was his growth chart...he dropped percentiles drastically during those 9 months probably due to increased metabolism and inability to keep up with his caloric needs, but now he is in the 75th percentile for weight and 90th percentile for height.  Hope your co-worker is able to find some answers as the whole process is extremely stressful for all involved!
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