Thank you. I deleted.

Re: Thank you. I deleted.

• Amamsneb

  October 2012

  auntie:

  You're not bothering anyone.
  I'm sorry you don't feel supported. I think a lot of us have been in the place where you are now. There have been times when I have written letters more or less like yours. I just don't send them because they'd do more harm than good. And there have been times when I have been sorely disappointed by the quality of services available to me.
  I do think you need to talk to your EI coordinator about this situation. Your kid needs EI and the person to whom they referred you isn't really available to you. Can they find someone else for you? Do they need to bring in another ABA provider? I wouldn't throw her under the bus professionally, but you could ask how to make this work.
  nbsp;

  
  
  I know I'm not going through anything unique, and that you guys are trying to help. It's just...I feel so trapped. It was like pulling the teeth of a hungry, rabid tiger just to convince the EI coordinator to look at signing up that ABA provider in the first place, because I am apparently the first person ever in our county to look for ABA for my child under the age of 3. I've learned that there is another ABA provider an hour away, who is also not on the approved provider list. Our EI coordinator is taking some steps to start the process of getting them approved, but DS turns 3 in March, so it seems unlikely that he'll have much chance to be seen before aging out of the program.
  
  I feel like I'm failing my kid because we can't get him what he needs. And I really really don't know what to do. We're looking at moving thousands of miles away from our families and friends to try to get more help, but I'm not confident that we'll find it without making about 20 times what DH makes now.
  
  Sorry to dump on you all. I just feel so lost, and so angry, and it's making it hard to think about even the simplest things. Right now, I'm hiding in my room crying while DH plays with DS, because I can't stand to hear him laughing at nothing right now.

  Report0 Reply
• Loading the player...
• funchicken member

  October 2012

  Amamsneb:

  auntie:

  You're not bothering anyone. I'm sorry you don't feel supported. I think a lot of us have been in the place where you are now. There have been times when I have written letters more or less like yours. I just don't send them because they'd do more harm than good. And there have been times when I have been sorely disappointed by the quality of services available to me. I do think you need to talk to your EI coordinator about this situation. Your kid needs EI and the person to whom they referred you isn't really available to you. Can they find someone else for you? Do they need to bring in another ABA provider? I wouldn't throw her under the bus professionally, but you could ask how to make this work. nbsp;

  I know I'm not going through anything unique, and that you guys are trying to help. It's just...I feel so trapped. It was like pulling the teeth of a hungry, rabid tiger just to convince the EI coordinator to look at signing up that ABA provider in the first place, because I am apparently the first person ever in our county to look for ABA for my child under the age of 3. I've learned that there is another ABA provider an hour away, who is also not on the approved provider list. Our EI coordinator is taking some steps to start the process of getting them approved, but DS turns 3 in March, so it seems unlikely that he'll have much chance to be seen before aging out of the program. I feel like I'm failing my kid because we can't get him what he needs. And I really really don't know what to do. We're looking at moving thousands of miles away from our families and friends to try to get more help, but I'm not confident that we'll find it without making about 20 times what DH makes now. Sorry to dump on you all. I just feel so lost, and so angry, and it's making it hard to think about even the simplest things. Right now, I'm hiding in my room crying while DH plays with DS, because I can't stand to hear him laughing at nothing right now.

  I'm so sorry that things are so hard right now.  I don't know where you live, but have you looked into different school systems in your area?  Around here they can vary a lot from county to county.  Since your DS is so close to aging out of EI, I would think that finding out what school districts in your area have to offer would be a good place to start.  Maybe you could find better services for your son while staying near your support system. 

  And vent away!  We're all here to listen
  

  Report0 Reply