- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Preemies
IUGR 33 weeker born
Hi Everyone!
My little IUGR guy was born on 10/2 weighing 3 lbs 9 oz due to super quickly starting pre-eclampsia/HELLP syndrome at 33 weeks 5 days. He's been in NICU since birth and now weighs 3lb 4 oz. He only needed CPAP briefly after birth and has not had respiratory help since (I had the steroid shots two days before he was born so I think they helped!). He's been under the bilirubin lights on 2 different days since his level went up and didn't go down by itself. I'm worried about his weight since he's lost weight and for the past day didn't gain any. They are fortifying my breast milk now to help him.
My concern is last night when my husband I arrived to visit and try nursing (the doctor said to try 2 times a day out of the incubator for 10 minutes just for practice and we told them we were coming) his nurse had already hooked up the feeding tube (he's supposed to do bottle if I'm not there) and said "well, he needs to stay under the lights so I just did the tube." It wasn't in his orders to skip the bottle, in fact, he's been doing well with the bottle so his day nurses haven't needed the tube unless we try nursing.
Another of his nurses came over later to visit him and us and we asked her about the tube. She didn't understand why he was given the tube and why she didn't let him come out. She also criticized how the nurse hadn't added another light to help his levels go down faster. My husband and I are were really frustrated but there was no one to talk to supervisor-wise. Our nurse from before said something to our assigned nurse before we left about using the tube instead of bottle and about the lights. We said something as well. She didn't listen to us. We're going to try getting there early this morning so we can talk to the doctor or nurse practitioner. If it was just laziness on the nurses part I'm going to be really upset. They weren't busy and even if they were, I don't care. I want them taking care of my baby so he can get strong and learn what he needs to come home. 
Has anyone else had to deal with a nurse they didn't agree with? I hate that I have to leave him there where I'm not making decisions about how he's being fed/etc... especially if it's not what the doctor said.
BFP#1 6/16/09-Cycle #11 Missed m/c at 10 weeks, D&C
BFP #2 10/22 @6 weeks discovered bicornuate uterus and twins
Lost Baby B @ 12 weeks.
Our baby boy arrived 6/6/10!
BFP #3:3/2/12 Crossing fingers for a healthy baby! Saw heartbeat on 3/23 128 bpm It's a BOY! Dealing with IUGR. Preeclampsia/HELLP Syndrome born 10/2 at almost 34 weeks. Please grow little E!
BFP #3:3/2/12 Crossing fingers for a healthy baby! Saw heartbeat on 3/23 128 bpm It's a BOY! Dealing with IUGR. Preeclampsia/HELLP Syndrome born 10/2 at almost 34 weeks. Please grow little E!
This discussion has been closed.
Re: IUGR 33 weeker born
First off Congratulations on the birth of your little guy.
I would see if the NICU has a NICU manager and I would have a talk with them. Can you go to rounds in the morning w/the nurses and Neo? I would ask to be in every single one of those meetings that you can attend. They normally have them in the morning around 9ish (at least our NICU did). I felt informed about what goals my baby had for the day, week, etc and we were able to make suggestions, ask questions, etc.
Praying that your little guy is home with you soon. Please keep us posted.
Welcom and congrats first! Second, I'm sorry because that sounds really frustrating. Legally nurses have to follow Dr.'s orders, so without knowing exactly how your LO's order reads it's hard to say if she did something "wrong" or without an order. Somethings are left up to nursing judgement. However it certainly sounds like she did something outside the routine and plan that the other staff had been following. I hope it was just a one time thing and you can get it all straightened out.
There should always be a charge nurse on shift if you need to speak to a shift superivisor either that or request to see the nurse manager during the day. Try not to get too hung up on it because it sounds like your LO is doing really well. It IS really hard when you don't have control over your own baby. Also, don't stress too much about his weight because it's normal and expected for him to lose. With all his good eating and milk fortifying, I bet he will be on the upswing very soon. Lots of luck!
Peanut Butter and Jelly!
<a href="http://s568.photobucket.com/albums/ss122/AliceNP/?action=view