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btdt ds parents

PipSqueak0313PipSqueak0313 member
in Special Needs

I'm currently 15 weeks pg.  We found out 2 weeks ago that the MaterniT21 test came back positive for DS.  Also found out last week that the test also picked up Y chromosomes.

Since we have not yet started to buy baby items, I was wondering if there were any baby items that we should avoid or will definately need that is different due to the DS.  i.e. avoid brand X's strollers as they won't last as long as he may need it.

Any other helpful hint that you found made life easier caring for a ds baby is welcome too. I've never cared for a baby with ds so I don't know how or even if the care is different from caring for a non-ds child.

I'm starting to hate the "some with ds have this problem, but we can't tell if it will be a  problem for this one until after he's born" as it is making it hard for me to determine what I really need to prepare myself for and that is frustrating.   

Lisa

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Re: btdt ds parents

  • Orange and GreenOrange and Green
    I'm in the same boat as you and haven't bought a thing yet for my baby.  I'd love to hear others respond.  
    John & Katherine, sittin' in a tree, . . . . Lilypie Angel and Memorial tickers
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  • gimmietimmiesgimmietimmies member
    Not ds here, but a thought at least about car seats. It's not unusual for sn babies to need extra support, I'd look at the new Graco infant seat that rf to about age two. Anything else, they may be right, Until lo arrives you might not know what else you need until then and assess the situation. I know a couple of ds kids through L, and all but one were walking by 18 months, their moms didn't have anything special as far as strollers went. One did get a Bob for the sturdier frame and high limits, he was (and still is) a bolter, and difficult to shop with.
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  • ToastieSimonsToastieSimons member

    my sons don't have down syndrome, but he has severe hypertonia and he's intellectually disabled.  I was told for babies with tone problems (ds usually causes hypotonia) to avoid the jumperoo or other things that promote repetitive overuse of muscles.  Babies with tone problems usually use the wrong muscles to do things, it's why PT is so important, to train them to do things the correct way.  Jumperoos, doorway jumpers, the kickin coaster (bouncer chair) all promote repeated jumping and for babies with tone problems it can promote overuse of the wrong muscles.

    As PP mentioned, I would look into a good rear facing carseat with a lot of support. The new Graco car seat that RF to age 2 looks good.  I have a regular snugride 22 and it just isn't enough support for my boys.  

    I also suggest a boppy pillow. they're great for tummy time, propping, sitting, etc. 

    I would wait until your baby is here, however I will give you the heads up on a few good products you may consider. 

    the snuggin go, it's great for babies who need extra head support or who have reflux (or both in our case)  https://www.snuggingo.com/snuggingo.com/Home.html

    a baby gym like this.  you can use the plastic rings to lower the toys to make it easier to promote hand opening and grabbing versus the traditional baby gyms.  and the bar doesn't move so the toys don't move when they get pulled.

    https://www.walmart.com/ip/Garamimals-Stay-and-Play-Activity-Gym/14271939 

     

     

    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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  • goldenleavesgoldenleaves member
    We didn't really have to buy anything special for Lauren, she has Down syndrome. She uses a lot of her older brothers baby toys! We just bought some pink stuff for her. Just make sure you have a good playmat/baby gym. Tummy time is essential for our kids to develop core strength, head control and upper body strength. Congratulations!!
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  • PipSqueak0313PipSqueak0313 member

    Just thinking about tummy time on our hard wood floors -- would a folded quilt (queen size) provide enough cushioning without being too soft.  It wasn't a concern with my older two as we had carpeting in the houses we were in.  Current living room is too small to put an area rug down as it becomes a tripping hazard very quickly.

     Thanks.

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  • JcrabJcrab
    I think a quilt would be too squishy for tummy time. We also have most hardwood floors so I bought a foam playmat to cushion the floor and cover it with a baby blanket. Our playmat is interlocking squares with the alphabet, I got it at Lowe's but baby stores and the One Step Ahead catalogs have nicer ones. I hope that helps. Congrats!
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