Special Needs

EI Eval complete

DS1 has severe hypertonia with an x-linked intellectual disability diagnosis.  He functions at about a 10-12 month level with no words or signs.

Prior to the move he was getting 1hr of PT 1x/week 45min OT 1x/month and 45min of ST 1x/month all at the county board of developmental disabilities therapy center(yes I know sounds like a joke for a 2 yr old who doesn't even babble).  When we asked for more speech they offered 30 min 2x/month.  our only other option was to put him in their 2 yr old classroom.  He would still have the same amount of one-on-one therapy but the goal is therapy through socialization.   

We just finished up with our EI eval after moving and DS1 qualifies for 2 hours week of PT, 2 hours a week of OT and 2 hours a week of developmental therapy (speech cognition, etc) and they're going to try to get us into a center every few months to test out equipment and possibly some play groups)

DS2 qualifies for 1 hour of PT, 1 hour of OT and 1 hour of developmental therapy a week.

This has been the biggest anxiety for me with moving states.  I'm so glad they're taking their delays seriously and are really giving the boys the services they need. 

To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew

Re: EI Eval complete

  • image-auntie-:

    So happy for you. They're going to amaze you with the new level of services.

    This is Jersey, no?

    Yep, they've been really good.  Our PT back in Ohio was FANTASTIC!!! However, our OT and SLP stunk and the others weren't any better.   I feel like everything NJEIS went through on their evals was stuff I've brought up over the past 2 years and been told "wait and see" or "we'll just let him develop it on his own schedule"

    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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  • That's such good news! You must be so relieved!
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    DD1, 1/5/2008 ~~~ DD2, 3/17/2010
  • That's awesome!!! Those old times really did suck. My youngest who is just speech delayed and has an older brother with ASD is getting ST once a week and behavior therapy twice a week. The behavior therapy is really helping him to move forward with his language. He is now communicating through sign language, pecs cards, and speech. It's still a little limited for an almost 2 1/2 yr old, but he's made such progress since he started. Auntie's right, you will be amazed at how much they learn and progress compared to before. So happy for you! :-)
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  • That's great!

    DS 09/2008

  • Yay!!! :)

    So happy for you guys!! 

    .
  • That's so great!  Nice to have some relief!
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


  • I'm so glad! I can't believe he was getting such inadequate help previously; so glad both boys will now be getting what they need.
    fraternal twin boys born january 2009
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