Update to Prayers Please (long)

cmarie520 · September 2012

Here is an update on our baby; sorry it has taken so long, things have been crazy. He was diagnosed with cellular mesoblastic nephroma (stage 3). Last Friday (13 days old) he had surgery to remove his left kidney and the tumor. The tumor was approximately the size of an apple and needed an 7 inch long incision to remove. His surgery was fairly experimental as the tumor burst and bled at some point and the surgeon was very worried that it would be "too soft" to remove. Thankfully, it was completely successful.

We met with our oncologist yesterday and he does not want to do chemotherapy at this point in time. He is worried that since he is so small that he will not respond to it well. The plan now is for him to have monthly scans to see if the tumor has spread and then chemo only if it is needed. Now Nick just needs to figure out his eating and gain some weight and we can be released from the NICU and go home, hopefully in a week or so. We are so ready to be done living out of a hotel and apartment and take our baby home.

Thank you all so much for the thoughts and prayers. I really appreciate it and can't wait to spend my maternity leave at my home and bumping while Nick sleeps instead of in a NICU room.

Here is the original post in case you have no idea what I'm talking about, its been a while since I posted it:

https://community.thebump.com/cs/ks/forums/thread/68627059.aspx

miss50 · September 2012

Thank you for the update....you are continued in my thoughts. Sorry you are having to deal with all this in such a happy time in life. Keep positive!

erikaluna01 · September 2012

I'm so sorry your LO and your family are suffering. Stay positive and keep up the good spirit. It will help you get through this. Hugs to you!

GR8TDANEMOM · September 2012

I can't even begin to imagine what you are going through. Your family will be in my thoughts and prayers. I'm glad the surgery went well and you can enjoy your sweet baby at home.

kelbel527 · September 2012

Thanks for the updates, our continued t&ps are with you and your family! Glad the surgery went well and hope he continues to do well. Hang in there mama!

linzeek44 · September 2012

I'm glad your LO's surgery was successful! I hope he continues to do well.

kbetzner · September 2012

i am so sorry about your baby, i hope things begin to look up for you. keep us updated!

MeatballEsq · September 2012

LoveLossHopeRepeat:
Oh your poor sweet baby! And you and your husband... I can't begin to imagine. 
I'm sorry for everything you've been through. It's great to hear that Nick came through the surgery okay. Here's hoping his scans are clear going forward and you can all put this behind you. 
Good luck to you and yours, hon. Thank you for taking the time to update us. You'll continue to be in my thoughts! 

All of this. I cannot imagine what you are going through. I hope his scan are great and you are able to take Nick home with you soon. Sending do many positive thoughts his way. ((HUGS))

tlew12778 · September 2012

cmarie520:
Here is an update on our baby; sorry it has taken so long, things have been crazy.nbsp; He was diagnosed with cellular mesoblastic nephroma stage 3.nbsp; Last Friday 13 days old he had surgery to remove his left kidney and the tumor.nbsp; The tumor was approximately the size of an apple and needed an 7 inch long incision to remove. His surgery was fairly experimental as the tumor burst and bled at some point and the surgeon was very worried that it would be "too soft" to remove.nbsp; Thankfully, it was completely successful.nbsp; We met with our oncologist yesterday and he does not want to do chemotherapy at this point in time.nbsp; He is worried that since he is so small that he will not respond to it well.nbsp; The plan now is for him to have monthly scans to see if the tumor has spread and then chemo only if it is needed.nbsp; Now Nick just needs to figure out his eating and gain some weight and we can be released from the NICU and go home, hopefully in a week or so.nbsp; We are so ready to be done living out of a hotel and apartment and take our baby home.nbsp; Thank you all so much for the thoughts and prayers.nbsp; I really appreciate it and can't wait to spend my maternity leave at my home and bumping while Nick sleeps instead of in a NICU room.nbsp; Here is the original post in case you have no idea what I'm talking about, its been a while since I posted it:nbsp; https://community.thebump.com/cs/ks/forums/thread/68627059.aspx

oh my goodness! Your poor little man! Many TPs to you and your family. I hope you can bring him home soon and that he will enjoy a long and cancerfree life.

mommyterp · September 2012

I missed your original post - but sending T&Ps your way. I hope you are home with your little man soon.

TaylorP5 · September 2012

I am keeping you and your baby in my thoughts and prayers!

Stay positive! Keep us updated!

Sparty On · September 2012

I am so sorry you and your family are going through all this. You all will be in my thoughts and prayers. God bless.

sapphiremom13 · September 2012

T's and P's that you will be home soon.

Blackrose1918 · September 2012

I'm glad the surgery was a success, but so sorry to hear you're going through this. You and your family will be in my thoughts and prayers. Be blessed and stay strong.

LILBIT1221 · September 2012

Oh, I'm so sorry. I didn't see your original post, but you'll be in our TPs here's to little Nick gaining weight coming home. Thanks for taking the time to update us. If you get a chance let us know how he's doing!

L8kissie · September 2012

I'm glad he's doing well. Good job getting through.

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