RPL results Pt. 1

hungryhippo · September 2012

I have all of our RPL results, but it turns out we will be doing just a bit more testing so here's part 1:

Almost everything came back normal, except for three things:

1. I am just barely in the range for pre-diabetes. I'm confused how a 31 year old healthy weight exerciser finds herself in that range, but whatever. I am.
2. AMH came back fine at 2.65 but estrodial (65) and FSH (8) seemed a little higher than she expects for a 31 year old, despite being within the lab's normal range.
3. HSG showed open tubes but possible septum or arcuate (heart shaped) uterus. Of course, the results are inconclusive so I get to have an MRI for diagnosis and if it is septate, then I assume surgery. At this point, they think it is more likely arcuate.

So, next steps are to meet with a nutritionist to get dietary advice and hopefully manage to keep my blood sugar range below the pre-diabetes level. I go for the MRI in two weeks and results should be pretty much immediate. MH is also going to do an SA when he's ready.

In the meantime, I'm in the 2ww but no more hopeful about it than I've been any of the past few months. Looks like you ladies are stuck with me for a while longer while we wait for all the info before we can make a plan. Party!!!

ETA: formatting

hungryhippo · September 2012

Thanks Petra! In all honesty, my gut left me wondering whether I should go ahead with MRI or instead request a hysteroscopy. I guess I figure if there is septum, then I would need the surgery anyways so why not diagnose and potentially correct all at once. I think I'll follow up with my RE again and ask why MRI vs hysteroscopy.

I can't remember how your initial arcuate diagnosis was determined. Was it your HSG? SHG?

sammer818 · September 2012

Well, despite not exactly liking your news, it sounds like you might be closer to getting answers, and that is always a good thing. It sounds like you have a plan and sometimes in this awful TTCAL world, a plan is all us ladies can bank on. That sucks that you HSG was inconclusive. It's such a bummer to go through all of that and then still not get any answers.

minicheezburg · September 2012

PetraStonegirl:

Diabetes can be genetic, not just health and lifestyle. But, pre-diabetic is worlds better than diabetic.

Yep this! The rest I know nothing about but wanted to offer you huge hugs and lots of love!

bluebonnetmeg · September 2012

****siggy****

I am so glad that you are getting some answers and are able to move forward/ make a plan. I know that made me feel worlds better, even when the news was not great. I agree with Petra about the hysteroscopy - I am so glad my RE recommended one instead of an HSG because I would have needed both in the end.

I will continue to stalk you and send T&Ps for a great plan and hopefully a BFP soon! ((hugs))

hungryhippo · September 2012

PetraStonegirl:
hungryhippo:
Thanks Petra! In all honesty, my gut left me wondering whether I should go ahead with MRI or instead request a hysteroscopy. I guess I figure if there is septum, then I would need the surgery anyways so why not diagnose and potentially correct all at once. I think I'll follow up with my RE again and ask why MRI vs hysteroscopy.
I can't remember how your initial arcuate diagnosis was determined. Was it your HSG? SHG?
I was cleared via HSG. The SHG (SIS) showed an arcuate ute and some scar tissue. They did the hysteroscopy to remove the scar tissue and that camera showed that the arcuate up was actually a wide shallow septum that covered the fundus and stretched from tube opening to tube opening.

Thanks again. They didn't recommend the SHG for me, which surprised me. I'm definitely going to call and double check they really think the MRI is the best way to go. They told me scar tissue would have showed up in the HSG and that raised a red flag for me too.

hungryhippo · September 2012

jenek0213:
sammer818:
Well, despite not exactly liking your news, it sounds like you might be closer to getting answers, and that is always a good thing. It sounds like you have a plan and sometimes in this awful TTCAL world, a plan is all us ladies can bank on. That sucks that you HSG was inconclusive. It's such a bummer to go through all of that and then still not get any answers.
^^^ This
I'm so glad you have a plan and seem to be moving forward. I hope you continue to get answers. *hugs*

Thanks Jenek and Sammer. I definitely feel closer to a plan, but I don't know that I feel like I have one just yet. Just a plan to do more testing so far, but that is definitely better than just wasting time trying on our own. I really appreciate the encouragement!

hungryhippo · September 2012

minicheezburg:
PetraStonegirl:

Diabetes can be genetic, not just health and lifestyle. But, pre-diabetic is worlds better than diabetic.

Yep this! The rest I know nothing about but wanted to offer you huge hugs and lots of love!

Thanks Mini! I'll take hugs and love any day. Smile

hungryhippo · September 2012

bluebonnetmeg:
I am so glad that you are getting some answers and are able to move forward/ make a plan. I know that made me feel worlds better, even when the news was not great. I agree with Petra about the hysteroscopy - I am so glad my RE recommended one instead of an HSG because I would have needed both in the end.
I will continue to stalk you and send T&Ps for a great plan and hopefully a BFP soon! ((hugs))

Hi BBM! Great to "see" you and those handsome boys. Are you getting lots of cuddle time? The last update I read sounded like they were making great progress already.

I appreciate your T&Ps so much and your seconding Petra's experience and advice about the hysteroscopy.

My initial RE went on maternity leave after ordering all these tests so I'm working with a fill in RE right now, and I'm just not 100% comfortable.

RequiresExalted · September 2012

I'll add to the *hugs* and love!

For me, my Septum was diagnosed with an SHG (or SIS) same as Petra. My RE opted for that over an HSG because I'd already been pregnant twice, so she figured my tubes were ok, and just wanted to look at the ute.

I also had a Hysteroscopy to remove it, and while they were there, they also found a fibroid and "products of conception" -- the latter of which was almost entirely blocking one of my tubes.

I'm not sure why your doctor is recommending an MRI over other options, but if you're not entirely comfortable with that plan of action, I'd definitely say something.

Good luck!!

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hungryhippo · September 2012

RequiresExalted:
I'll add to the *hugs* and love!
For me, my Septum was diagnosed with an SHG (or SIS) same as Petra. My RE opted for that over an HSG because I'd already been pregnant twice, so she figured my tubes were ok, and just wanted to look at the ute.
I also had a Hysteroscopy to remove it, and while they were there, they also found a fibroid and "products of conception" -- the latter of which was almost entirely blocking one of my tubes.
I'm not sure why your doctor is recommending an MRI over other options, but if you're not entirely comfortable with that plan of action, I'd definitely say something.
Good luck!!

Thanks, Req E. I totally expected to be sent for an SHG instead of an HSG, because of previous pregnancies too. Although, one of mine was in an unknown location and may have been ectopic, so the HSG made sense too.

Thanks to your encouragement and that of others, I wrote to my RE and let her know that I've been thinking about the MRI and am not quite sure that I fully understand the reasoning for that over some other diagnostic method. I also told her my fear of having the MRI only to need the hysteroscopy too. We'll see what she says.

Thanks and good luck to you too!

hungryhippo · September 2012

stlucia_wife:
sammer818:
Well, despite not exactly liking your news, it sounds like you might be closer to getting answers, and that is always a good thing. It sounds like you have a plan and sometimes in this awful TTCAL world, a plan is all us ladies can bank on. That sucks that you HSG was inconclusive. It's such a bummer to go through all of that and then still not get any answers.
This!
Big hugs love. Glad you have a plan.
Sorry about the diabetes. Maybe you can ask your family and see who if anyone has it.

Thanks. St. L. I'm hoping to have a more comprehensive plan soon after we finish the rest of this testing. I definitely do have diabetes in my family on my mom's side. All of those people were diagnosed when they were twice my age, so I think that's what surprised me about this pre-diabetes that I have. At least, with this warning, I know that I'm more at risk than I ever thought.

poohbear033 · September 2012

I am glad you are getting answers even though it isn't exactly what you want to hear. I hope that they are able to resolve the issues you are having and figure out what is going on with your ute.

hungryhippo · September 2012

poohbear033:
I am glad you are getting answers even though it isn't exactly what you want to hear. I hope that they are able to resolve the issues you are having and figure out what is going on with your ute.

Thanks! Me too. Smile

CNYBride05 · September 2012

I echo what everyone else has said - boo for needing more testing, but yay for getting a few steps closer to answers.

Sucks that your RE is on leave though :-(

Keep us posted and GL!

hungryhippo · September 2012

CNYBride05:
I echo what everyone else has said - boo for needing more testing, but yay for getting a few steps closer to answers.
Sucks that your RE is on leave though :-(
Keep us posted and GL!

Thanks, and I agree about the RE being on leave! I'll keep you posted as we learn more.

hungryhippo · September 2012

CNYBride05:
I echo what everyone else has said - boo for needing more testing, but yay for getting a few steps closer to answers.
Sucks that your RE is on leave though :-(
Keep us posted and GL!

Thanks, and I agree about the RE being on leave! I'll keep you posted as we learn more.

buckeyebaby814 · September 2012

I don't know much about what all you're facing, but good luck moving forward. I hope you're able to get everything stable, healthy and ready to have a baby!

RPL results Pt. 1

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