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Tell me about your Cochlear Implant journey

francophoniafrancophonia
in Special Needs

DD has sensorineural hearing loss caused by meningitis she got in the hospital when she was born. We were told by a previous doctor that she wouldn't be a CI candidate. We now have a new test of doctors and got a new set of tests. Our actual appointment with the doctor is next week, since this past week I've been completely packed with DD's birthdays (2 years old!) and meetings with her birth parents Saturday, but we got a call from the doctor who wanted us to know as soon as possible that she is actually a candidate for CI! I jumped up and down! So for our appointment next week re going to talk about the implant and sort things out.

I have no idea what's yet to come. What was your CI journey like? How did you prepare your child and yourself for the surgery? What sorts of medical appointments and procedures lead up to and follow the surgery? I know a lot about the actual procedure and language development itself, but not a lot about the applied (slightly bureaucratic) process.

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Re: Tell me about your Cochlear Implant journey

  • SoapstoneSoapstone member
    Our process was the same as above, except our daughter was 10 months old when she had her surgery. She is doing great! She's performing above her age level for both expressive and receptive speech and says over 150 words. It was the best decision we could have made for her.
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  • clc023clc023 member
    Our experience was also similar to above, but surgery at 12 mths for one ear and 24 mths for the other.  Our son is now 5, has a great language vocabulary, behind by about 6 months still, but we are very pleased with his progress!
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