Special Needs

Technical Board Question

We can't change our usernames at all, right?

What about getting rid of the Fburg, VA?  I haven't figured out how to do that either and i've tried a couple times.

Anyone know? 

DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


Re: Technical Board Question

  • You can't edit your profile to remove the city info?

    I know I just changed something on my account but it may have been changing my email and password.

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  • imageBostonKisses2:
    imageMaxandRuby:

    You can't edit your profile to remove the city info?

    Not any more.  It's kind of annoying.  I emailed BK and asked her to do it for me about a month ago, and she was able to do it quickly. 

    whats the email?

    I thought I was going crazy trying to figure out how to change it lol.

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


  • Glad to know I'm not the only one who about went crazy trying to figure this out.  Looks like I will be emailing her to get my location changed.
    Samuel  2.26.06 41w ASD/ADHD
    Eli  6.18.09 35.5w
    Silas  1.25.13 35.4w 10 days NICU, allergies/asthma, gluten intolerant

    image
  • image-auntie-:
    imagerealisticdreams:
    imageBostonKisses2:
    imageMaxandRuby:

    You can't edit your profile to remove the city info?

    Not any more.  It's kind of annoying.  I emailed BK and asked her to do it for me about a month ago, and she was able to do it quickly. 

    whats the email?

    I thought I was going crazy trying to figure out how to change it lol.

    It's why I posted the link. She answered this on the mod board, you can reply to her there via PM.

    The link didn't work for me auntie =( But she replied to the email I sent for other community questions.  Thank you!
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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