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mommywilliams2b
member
Mom of Twins...new to this board, Esophageal Atresia Baby
mommywilliams2b
member
Hey guys...
I usually post in the multiples board, so I am new to this post...I had twin girls, Abbey Beth and Zoey Ann in March of this year, they are 6 months old today.
We found out when I was about 27 weeks pregnant that Zoey had either an Esophageal Atresia or TEF. That was confirmed when they were born, at 35 weeks and 4 days that she did indeed have an Esophageal Atresia (Pure, Long Gap). She spent 5 1/2 months in the NICU 4 hours away from home..it was not easy at all, but we managed.
I was curious to see if there were any other Esophageal Atresia parents on this board, or twin moms.
Zoey also has a g-button that we give some of her feedings to her through...Right now we are working on her growing, she is 14lbs 8oz and has gained 2lbs since she came home from the hospital a little over 2 weeks ago.
We have ECI coming three times a month to help her physically...she is obviously behind from being in the NICU for so long. They have only come out for the initial visit, but are coming back Thursday, and they seem like they will be very helpful...has anyone else dealt with ECI?
I have a blog if any of you would like to go check it out..has updates on Zoey from when she was in the hospital...it was such a roller coaster ride, and pictures of her and abbey as well.
zoeyea.blogspot.com
Here is a slideshow I made of the girls for their first 6 months also! Enjoy 
https://www.youtube.com/watch?v=cE3h-4FIork&list=HL1347387479&feature=mh_lolz
I am a mommy to three beautiful little girls.
A wife to the most amazing man I know.
&
A photographer who loves capturing memories.
A wife to the most amazing man I know.
&
A photographer who loves capturing memories.
This discussion has been closed.
Re: Mom of Twins...new to this board, Esophageal Atresia Baby
Your kids are adorable!!! I watched the slideshow- it was so great, wish I would have created something like that. You did a great job!
We have been working with our EI people for my daughter's feeding therapy for about 2 months now (had about 3 visits). They are coming out every 2 weeks, and helping us learn how to keep DD on a upward learning curve.
Welcome!!!
Congratulations on your beautiful daughters!!
I'm guessing Zoey is on the right side of the picture in your siggy? I was looking for the scars under the right arm, and didn't see any.
My first son, a singleton, was born with EA/TEF -- Type C. There is a good number of us here:
EA/TEF Family Support Connection
US: Bridging the GAP of EA/TEF
Where were you guys treated? Did your babe have the Foker technique? How long was her long gap?
DS1 is almost 3 and totally great. He is in such great shape. Get on the FB boards if you can and introduce yourself and your babes!! We have a couple of twin moms, and PLENTY of long gaps.
If you want to connect outside, I am the Northern California state liaison for Bridging the Gap (an EA/TEF family resource). My email is norcaleatef @ hotmail.com.
Take care of those beauties!!
ETA: Wanted to ask... is she on prophylactic antacids or PPIs? If she's not, that's something you should discuss with your doctors. The stomach acid is likely refluxing into her esophagus for many reasons (immaturity of the stomach's sphincter, tension causing lax in the stomach sphincter because of the connection, possible hiatal hernia, etc), and you want to protect her anastomosis from irritation/inflammation which can cause scar tissue to close up the esophagus.
Anyways, forgive me if this is all stuff that you've already learned... I just saw that she's about a month and a half out of surgery and doing pretty well. That's great news!! I'm really happy for you guys.