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auntie..

realisticdreamsrealisticdreams member
in Special Needs

How am I supposed to know what normal behavior is for an almost 3 year old vs. abnormal..in reference to Peyton crying/whining over everything?  Some situations are normal, like if I take something away from her, or Morgan wants something she has but..

If she wants water, she cries for it.   

She is normally quiet/shy at most dr's appointments, sometimes she is hysterical though, our pedi asked last month if this was normal for her to get so worked up over everything.  And I said kind of for the most part, it seems to be getting worse but it's hard to tell if it's a phase or what.

The developmental pedi noticed it as well and said that we could do a pediatric dose of zoloft or equivalent, but I told him I didn't think she was there quite yet.

Should I just keep an eye on it?  Any type of notes I should make?  ie. she cried X times today and X times were not important?

I would say i'm a fairly emotional person as well, little things make me sad, mad, etc.

Anything else I should be on the lookout for? 

DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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Re: auntie..

  • smiling76smiling76 member

    Totally butting in---but some your dx in your siggy for your 3 yo and wondered has the pedi ever suggested that some of the emotional responses could be from her prenatal stroke?  Maybe totally reaching here---but I know so many people who have strokes and have damage in certain areas on the brain will result in atypical emotional responses. 

     


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  • realisticdreamsrealisticdreams member
    imagesmiling76:

    Totally butting in---but some your dx in your siggy for your 3 yo and wondered has the pedi ever suggested that some of the emotional responses could be from her prenatal stroke?  Maybe totally reaching here---but I know so many people who have strokes and have damage in certain areas on the brain will result in atypical emotional responses. 

     

    Not butting in, thank you!  The developmental pedi did say that children who have had strokes can be overly emotional, etc.  We saw him last month and he basically discharged us except for saying that if we wanted to follow up on the emotional stuff we could with either him, or the NP.  

    I had kind of tucked this away far back in my brain so thanks for reminding me of it.  I will remember to talk to our pedi about it at her 3 year appt.   

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • realisticdreamsrealisticdreams member
    image-auntie-:

    I think your DD's situation is so unusual, that looking for normal is probably pointless. It might be better to look at her normal and try to sort out what's going on. A log of antecendents might reveal some pretty ordinary triggers- hungry, tired, thirsty, attention seeking. Or it might be that her anxiety is really over-the-top and interfering with her ability to get through the day.

    Her therapist should be able to help you with this. They could teach her a behavioral approaches like self regulation skills(where she might use a visual to validate how she feels emotionally and use pre-planned coping mechanism to get back to her equalibrium.

    I'm not against meds, but can understand your reluctance to start Zoloft in a child so young as yours. That said, an SSRI has been wonderful for DS to help him get on top of the anxiety his AS brings to the party. He'd had 2 years of therapy before we added it and in retrospect I think he could have done better, faster, if we'd started sooner. But it's so hard a call to make. And yeah, this sort of emotional lability tends to run in families. Not sure if it's a learned or constitutional thing, but it must make it so much harder on you.

     

    Thanks, we haven't been seeing the therapist since we decided to take a break from cathing because that was basically all they were dealing with.  I may try to give them a call and see if we can get on a monthly schedule, etc so I can discuss things that are going on with her.  

    Their doesn't really seem to be a trigger in general..yes if she's tired I would say it's worse, to an extreme, but her normal everyday behavior is turning into crying/whining for and about everything.  

    Sigh.  Please let it be a phase! 

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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