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We just can't catch a break - (trivial) vent

malcivarmalcivar member
in Special Needs

I should preface this by saying that yes, I'm aware things could be a million times worse and all things considered, we're very lucky but still ... sometimes it feels like my little guy can't catch a break - and neither can we.

1st birthday - he's terrified of his birthday cupcake.  No pictures, no icing on the face.  Nothing but a screaming fit at his high chair.

2nd birthday - ear infection and a nice little packet in the mail from a psychologist that says - guess what, you're not like other kids and never will be.

first day of pre-school - nope sorry; sinus infection, plus did we mention that the bus company thinks you're still going to the EI center? so when you do get better and go to school, no idea how you're getting there.

I know - very trivial stuff but sometimes it's the little things that bring on the tears.  I think what I said to DH earlier pretty much sums up how I feel/felt - why can't anything be 'normal'?  "I can't even have a normal parent day at the special school" 

and on an unrelated note, I'm breastfeeding the younger one so I pump while at work - well, 2 bottles got thrown out by accident by my mom.  pumping and bf'ing don't come easy to me so those 2 bottles represented a lot of hard work.  

I just want to jump head first into a tub of ice cream, but we don't have any.  :-(

I'm telling you - we just can't catch a break sometimes.

 

 

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Re: We just can't catch a break - (trivial) vent

  • realisticdreamsrealisticdreams member

    Sigh.

    I get what you mean about our abnormal not even getting to be normal..and it sucks.

    Hopefully he feels better soon and the bus gets straightened out! 

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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