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December 2010 Moms
OhSewCrafty
member
Ahhhhh more Early Intervention. :-/
OhSewCrafty
member
We
just had Charlie's one year evaluation for Early Intervention with
hopes of him being discharged from physical therapy. He scored at 26-28 months for social (no
surprise there) and at his adjusted age for most of the rest, except for
adaptive. Adaptive is basically what the child can do for themselves -
dress and undress loose clothing (like socks, shoes, pajama shorts) when asked or when they're
uncomfortable, complain when uncomfortable (when they are wet or dirty
or too hot/cold), let you do and help with general hygiene, etc. He
scored at 14 months with a 36% delay.
I don't even know what
to say. We've been so focused on his motor skills we never noticed and
since his physical therapist isn't a specialist in that area, we never
talked about it. They want him to see a developmental therapist for a
consult. They're not worried, necessarily, since its something we can
help him with, but don't want him to fall further behind. I'm just
shocked because I really thought he was going to pass
and be discharged.
My 22 month old can't take off his own damn socks and doesn't cry when he's dirty. How in the hell did we miss this.
This discussion has been closed.
Re: Ahhhhh more Early Intervention. :-/
FWIW, Jonny doesn't seem to care about sitting in crap all day. Poopy diapers have never seemed to bother him.
I'm sorry that you were so upset about this appointment. But now you have me worried... T doesn't get undressed or dressed on his own or tell me he's uncomfortable. I always have to look for signs of him being hot/cold. I try to ask him if he is hot/cold, but he always answers the same "i dunno" I know he knows what these are because he can tell me when we're washing hands (I ask if the water is cold, he can tell me yes or no...)
Anyway, I wouldn't freak out too much. Now you know, so now you can work on it and get an even better evaluation next time
Wow, that type of stuff never occured to me! I don't think A does any of that. He is pretty content to be dirty, etc. He does take off his socks all the time, but mostly to just look at his feet, haha!
At least it is stuff you can work on...good for him for eliminating ALL his other need for EI!!! That is something to be really excited about.
Ginny DX 21-Hydroxylase Deficiency Congenital Adrenal Hyperplasia
Charlie DX Specific Antibody Deficiency & ASD
Now, I'm a little worried about this too! Nate definitely doesn't remove his own clothing. He does scream and have a hissy fit when he's uncomfortable, but you get to play a guessing game at what's actually wrong. Fun stuff. I didn't know anything different was actually normal... I've been hanging out around daycare a lot lately trying to compare him to other kids and he seems normal...
Aw, don't worry ladies. :-) The concern isn't just about taking off clothing. Taking off clothing is definitely a 22-24 months thing (comes along with potty training readiness). Its about "loose" clothing like socks, shoes, hats, an unzippered jacket, helping with cleanliness activities, and showing desire to help himself.
Like, if he has a horribly runny nose, he'll just let it drip. He won't let us wash his hands, brush his teeth (its a battle!), or wipe his nose. Even if he's completely uncomfortable with a situation, he doesn't even attempt to fix it.
I don't even think we'll do full on therapy (can you imagine? Therapy to help a toddler strip? lol), but knowing what to do to help is going to be hugely helpful.
Thanks for the support ladies. Sometimes it helps so much to know I'm not crazy.
Ginny DX 21-Hydroxylase Deficiency Congenital Adrenal Hyperplasia
Charlie DX Specific Antibody Deficiency & ASD
Sorry, OSC! I feel like your post is a cheat sheet for us over here - I better get cracking on practicing those skills w/ DS!
We all know what a smart & savvy little boy you have, if that counts for anything!
I can see how that would be frustrating!
I also agree with the others - that seems like such a gray area of measurement. You are definitely not crazy.
I feel the same way!
Hi, I haven't posted in forever but I work for EI and do the developmental therapy and this issue really isn't that uncommon. Especially for boys, oldest kids, and kids who have been working on another area. I am sure they are just covering the bases. I know in my experience I get frustrated with some of those questions on the tests and especially in the awareness of toileting area. I am sure the developmental therapist with have some great ideas for you, good luck!!
Oh, how frustrating. But really, of all the things to be delayed in, those are certainly not as important as the stuff that he is on track with!
Honestly, I've never asked DD to take off her socks or shoes and don't plan to. I don't know if she can and I don't want her to think about it so I won't!
Also, she cries when she's dirty if it can get her out of her nap, but doesn't seem to mind other times.
Same here! DS definitely doesn't have any of those skills yet.
I can understand feeling sad and disappointed, but really looking on the bright side, it sounds like the assessment was mostly good news. He's testing well in most areas and the areas where you've focused you've seen him make progress... there's no reason to think you won't make the same kind of progress when you tackle this new area. C is a rock star, and he's going to overcome any challenge that's thrown at him.
I agree with pps...he has made great strides in his other areas and that's fantastic news. Even though you weren't expecting the adaptive assessment results, it's just another bump in the road that you guys will be able to get over. DS doesn't really do any of those things you mentioned...he definitely doesn't care about sitting in a nasty diaper. There are too many exciting things going on to take a minute for a diaper change.
Hang in there mama...your little guy is a trooper and he's going to be just fine!
Thank you so much for the insight; it helps a lot!
Ginny DX 21-Hydroxylase Deficiency Congenital Adrenal Hyperplasia
Charlie DX Specific Antibody Deficiency & ASD
Seriously! I feel like every kid is going to be behind the curve in at least one area, especially if they are really focused on other areas.