officially mono-di! +complete previa!

pixiem38 · August 2012

The cnm from yesterday called me back just now to say she got the u/s results from last week back and they definitely say mono-di. It is now official, although it still.will not change.anythjng care wise....she also said i have a complete.previa (the tech last week said the placenta was over the cervix but did not say it was complete) so now i am no longer to have sex until further notice. I wonder if the complete previa+twins is enough to make me high risk.enough to see a.peri? I doubt it. (I had partial previa.with ds that moved by 32 w)(i am not actually concerned about tbe previa at this point though...it is still early. Although.....maybe in combo with.mono-di it is.more of an.issue? I have no idea. Maybe this is the magic key that can make people listen to me?

Rynleigh · August 2012

That's so annoying. I hope they get their heads screwed on straight and put you with the MFM clinic for your standard care.

I wouldn't be worried about the previa, either... even if it doesn't migrate at all, the worst scenarios for that are probably just not having much sex, and an early scheduled cesarean..

pea-kay · August 2012

i would think complete previa on anyone would make you VERY high risk, even though it's still early. mo/di on its own is DEFINITELY enough.

Mrs. Alice · August 2012

pea-kay:
i would think complete previa on anyone would make you VERY high risk, even though it's still early. mo/di on its own is DEFINITELY enough.

I agree! I would be demanding a referral right away, I think all mono/di twins need to see an MFM regulary during their pregnancy and especially with a previa. They are telling you because they are mono/di your care isn't different?

pixiem38 · August 2012

Mrs. Alice:
pea-kay:
i would think complete previa on anyone would make you VERY high risk, even though it's still early. mo/di on its own is DEFINITELY enough.

I agree! I would be demanding a referral right away, I think all mono/di twins need to see an MFM regulary during their pregnancy and especially with a previa. They are telling you because they are mono/di your care isn't different?

It is a long and annoying story and i have posted many times here if you want to see it, but the gist of it is that according to every medical profession i have seen or talked to, i am no higher risk than anyone else...and it is basically impossible to go to the mfm without a referral (there is ONE mfm practice in the entire state) and nobody thknks i need a referral, since i am really just pregnant and they are all.perfectly capable of managing my pregnancy (i have begged for a referral and been denied)(and i have been given a boatloat of bad information so far.) So yeah..this is the mlst ridiculous thing i have ever heard of and i just don't know what else i can do....i have been fighting for a month already just to get them to admit i was mono-di officially. ,........................ I am.actually not that worried about the previa....it very well may be a lovely blessing in disguise as i get an u/s next week ((unless they cancel it) to deter.j e chorionicity and it will be reviewed by the peri and i will be co tacted as needed. I hope they do not cancel.it....it is not really needed, but it is my only shot at possibly getting to the mfm. I have my doubts though...as this is the biggest exercise in futilty (so far)....

yinyang124 · August 2012

Congrats on your mono/di twins, mama! Still blows my mind that you are not being referred to an MFM!

TripMomma · August 2012

Uh yeah...I would get myself to an MFM with or without a ref. Good luck.

erinruns · August 2012

Mono/di twins should absolutely change your care plan. You should be getting frequent u/s from here on out to keep an eye out for any signs of TTTS. If your docs are telling you it's no change from di/di twins, I would request a referral immediately.

adacopeach · August 2012

Amen, to what just about everyone else has said. You MUST see an MFM for mono/di. I would be doing everything in my power to get into see an MFM. Trust those of us that have lived through the TTTS battle with our surviors, if I didn't see an MFM both of my babies would be dead. Stage II TTTS set in with my boys in a matter of 36 hours. I saw my OB on a Wednesday afternoon and no issue. At my MFM appointment Friday morning, my donor was "stuck" and his bladder, kidneys, and stomach were not visable in an U/S. We had the laser surgery 25 hours later. I don't mean to scare you, but TTTS is deadly and 15/20% of your type of pregnancy will experience this condition.

pixiem38 · August 2012

erinruns:
Mono/di twins should absolutely change your care plan. You should be getting frequent u/s from here on out to keep an eye out for any signs of TTTS. If your docs are telling you it's no change from di/di twins, I would request a referral immediately.

i fully understand what it is at stake here. They continue to refuse me a referral and call.my request(s)ridiculous and unnecessary. I have begged and cried and called different doctors and novody will give ne a referral. I have called the peri directly ands explained why i want to.be seen asap, and it is not an option without a referral from a doctor. I am.documenting everything and i am.also in contqct with Mary from the ttts foundation hoping she can.pull some strings or knows some mystical.way around this. I even asked about what will be done to ensure that all.is well in the interim.between now and the magical 20w referral and was given some bullshit answer about there is nothing they can do at this point and thet they were good last week so they will be good for another month and that i am doing too much reading online. You would think that given all this the peri would agree to.see me, but no. I can keep switching doctors in the hopes of finding aomeone that will take me seriously, but i am grasping randomly at ob/gyn lists knowing nothing, and there is the whole time.delay of calljng to make an appointment and actually having the appointment, with no.guaranrees that they will even agree to refer me. I plan to start a massive letter writing campaign, but in all honesty i.don't actually know who i.should be writing to. You would think my insurance would have have aome sort of process, but they do not.....and fwiw, was not that mono-di were the same thing risk wise as di-di, she said it was thesame thing as a singleton!!!!! I am obviously deali g with a whole slew pf inept people, but they are inept people with napoleon complexes as well. I have thrown the dead baby card at them...the fact that these are my babies and for them.if aomething were to halpen it is just an oops so sorry to them, but they are my children and this is unacceptable...no dice. I am ridiculous. I am hkping and praying that Mary will be able to.pull something out of her sleeve....i feel like i am bangkng my head against a brink wall....not seeing a peri is not for lack.of trying. I have been trying to get a referral for a month.

Venus04d · August 2012

pea-kay:
i would think complete previa on anyone would make you VERY high risk, even though it's still early. mo/di on its own is DEFINITELY enough.

Agreed! I have been so shocked with your care! I'm so sorry you don't have a better support system.

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