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March 2013 Moms
CloudBee
member
may have blood clotting disorder
CloudBee
member
So I posted below that my doctor has been playing phone tag with me the pat 24 hrs or so. I assumed this was to discuss yesterday's ultrasound.
Nope. The ultrasound was perfect.
Apparently my first round of bloodwork was not. Apparently I had an elevated T Pallidum, which made them test for Sphilis. Negative. Twice.
Now they want to send me this afternoon to run an Anticardiolipin Igm. If that's elevated, I'll have to go on Heparin or Lovenox injections. I guess there are several blood clotting disorders, so she spoke in a general sense, unsure of which one it might be. Just that I may have tiny clots running through my blood
Apparently these levels are sometimes high in women who have reoccurring fetal losses, and people who have thrombosis, blood clots, and things such as pulmonary embolisms.
It will take about a week for the results from today's test to come back, as the blood has to be sent to a bigger lab. They can't run the test in the hospital.
Is anyone familiar with any of this?
My heart is very heavy. I have gone through so much to get as far as being able to TTC (4 heart surgeries), and now this. I just hope everything is going to be okay.
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Re: may have blood clotting disorder
Married to SAJ since 8/6/11
BFP #1: 1/23/12 mc: 2/19/12
BFP #2: 6/20/12
I am not familiar with clotting disorders, but I know several women on the Pregnant After a Loss Board are on the injections you describe. Unfortunately, for them this discovery was usually not made until after they'd experience one or several losses so it is a good thing that your doctor tested you and will be treating you.
Try to inform yourself, but also try to stay positive. Remember, the internet can be a scary place filled with worst case scenarios.
BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12
BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13
2010: 41 books, 2011: 31 books, 2012: 100 books
I don't know if it's exactly the same, but I have a cousin with a blood clotting disorder. She has two beautiful children and no history of loss. I hope your doctor has some great suggestions for how to proceed and set your mind at ease!
Hugs!
Great suggestion. I just posted over there. Thanks!
Oh my gosh it kept telling me that my post couldn't go through so I kept retyping it and then I got a triple message!!!
Well at least you know I am thinking about you!
BFP #1 09/02/11 M/C 09/12/11 8w6days
BFP #2 07/18/12 Baby S born on his EDD 03/23/13
SS - age 12...SD - age 8...DS - 13 mos.
I don't know anything about the medicines you are on. My doctor also thought I had a blood clotting disorder. I had to have a DNA test and also another blood test to test levels in my blood for clotting. Turns out I am a carrier for a blood clotting issue. However, my levels for clotting are low, so there may be some things they do differently with the delivery. My doctor referred me to a hematologist. If your OB thinks you have a blood clotting disorder, I would see a hematologist immediately because that is their specialty. Also seems like you would have known if you had a serious clotting issue if you have had 4 surgeries, as it is something people usually find out they have when they have surgery (according to my hematologist).
Best of luck to you, I am sure everything will end up fine. Just trust in your doctors and know that they are caring for you and the baby. Keep us updated, will be thinking of you!
Well I'm glad baby is good! Sorry you have to have this added stress though. I'm sure they will be able to figure everything out and get you squared away. I also have a blood disorder, but mine is the opposite of yours - I don't clot! It's called ITP (Immune Thrombocenapenic Perpera). My doctor is just monitoring me closely (lots of blood work) and will be cautious of it during labor to get the placenta out quickly to prevent hemorrhage. I'm sure once you have a complete diagnosis your doctor will go over a plan with you.
Good luck and keep up updated for sure!!
Uhh that is frustrating! I'm glad everything looked good with the u/s but it's scary not knowing what is going on!
hopefully they will find out exactly what it is and give you the resources to get it under control.
hang in there!
My fetal doppler arrived arrived today! Perfect day to receive that in the mail. I keep picking up 170+ beats per minute. Ahhh what a wonderful sound!
I'm definitely taking it with me on vacation next week.