DS was diagnosed in Dec of 2011 after months of unexplained vomitting and diarrhea. We were told to go on the 6 food elimination diet (wheat, milk, soy, nuts, shellfish and egg whites.) We followed this diet very carefully only to be disappointed with rising #s at the following scope in Feb. The GI put DS on the step 2 diet & told me to find a nutritionist. I did, she ran extensive allergy testing, and created this insane diet based on what he was not allergic to. There were very few foods on this diet, but we did the best we could. I made up recipes and thought we were doing great.
Next scope was last week. Today was the followup, where we learned that he gained 3 lbs and grew 2.5 inches since Feb. Promising, right? WRONG! The number is now up to 150 eosiniphils per whatever size the sample is, from 50 at the last scope. I was devastated!!!!!!
GI wants to put him on swallowed pulmicort (budesinode- sp???) and go back to the 6 food elimination diet. Ok fine. I'm game. So he said start new diet today. I gave DS corn pasta w/ meat sauce for dinner and what do you think happened..... he has hives now. Out comes the Benadryl.
I'm seriously on the verge of tears. IDK what to do next. I just want to curl up in my bed and cry!!!!!!! THis is so unfair to him!!