Special Needs

Feeling very uneasy

I've been on the Special Needs board for about 4 years now and have been on the nest/knot for over 8 years.  I have come on here for quite some time asking for support and suggestions (as we all do) and it has recently been brought to my attention that someone is lurking here from the town where I live.  It was brought back to others things that I have said on this board.  I am hesitant to post here knowing people lurk who know who I am IRL and have told others what I have said.  I feel very uneasy posting anything now knowing that people know who I am and it can and will be shared with others.  I was actually asked to stop posting by someone in our area because of it.  

I will not name names nor have I before this.  I rarely share info about the area that I live in.  I wish I could feel comfortable coming here asking for advice about school things without feeling like I am being watched.   

Re: Feeling very uneasy

  • That sucks. I wouldn't feel comfortable posting either. Way back when (knot times) I know I had family members lurking, seeing what I was posting about them. They tried to confront me but I just said, hey, you're the loser lurking on the internets trying to find gossip... Calling you out about trying to find support online re: your  sons is BS.
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  • d.fd.f member
    That sucks! I've had a few IRL encounters but they've all been from my local where it's expected and I've actually met many through the nest. None have been negative more like a hey we work in the same building or I went to HS with your DH I would probably react the same way you are if it was negative.

    DS 09/2008

  • Wow.  Someone needs to get a life.

    FWIW - I also frequent another board for my local area, that is a "spin off" from the nest.  Girls from my local nest board decided they didn't like this formant anymore and created their own board.

    So there have been a few security issues recently there and they just went through this whole process of making sure the board was "secure".

    Then, apparently, someone with a SN child vented about the therapy clinic their child attends.  Someone on the board read the post and showed it to the owner of the therapy clinic, owner then confronted the poster and now the child can't go back to the clinic and the family has to start over wrt finding therapy and getting the kid comfortable there. 

    Sometimes people just SUCK.

  • the same thing happened to me and they upset my family greatly. hence the anonymity now.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • And this is why I created a new account and don't have anything for a siggy. This is also why if I do post a picture or video I do not keep it up forever. I know of one person that rarely posts on this board, but I assume lurks more frequently, that I just don't feel like letting them know I am who I am if that makes sense.

    I think it sucks that you were asked NOT to post. Pretty uncalled for since this is a support thing, not a gossip thing, not a bash everyone you dislike type of thing. Some people need to get a damn life and worry about themselves and only themselves.

  • I've been thinking about this a lot too lately.  I wish we could all go to a closed group somewhere, that we didn't have to feel like this.  Something that wasn't 'googleable' (even a closed facebook group) BUT that limits people finding us who need help and blah blah blah.  You really can't win.  I did take the girls picture out of my siggy and starting trying to use P & M but it's hard.  I think my blog is even on private now.  I know i've put many people on blast in it lol so i'd be screwed if someone found it.
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


  • Realisticdreams, you will be getting PM soon.
  • Maybe limit what you post under this screen name and create a new one without idnetifying pictures or info for more personal posts. That's what I would do.
    imageLilypie Premature Baby tickers imageLilypie Premature Baby tickers
  • It really sucks that people can be like that. I'm not taking my siggy down, but ds is linked all over the internet if you know where to look, so I doubt it would make any difference. As far as anonymity, I like it here because irl, I only have one person that gets any of this - she has more on her plate than me, and I don't want to burden her. Heck, I wouldn't care if anyone knew who I was, if it weren't for trolls (virtual - I can more than handle them irl). 4 Boys - why don't you email the bump gods to change your name, and change the siggy. Sucks that someone would do this.
  • Wow, how petty. You have not called anyone out that I am aware of, so I am not sure why anyone else would care.

    Sorry you have to deal with this. Don't let one creeper ruin a good thing for you-- like others said, start an anonymous account with no siggy.

    Hang in there!! 

    .
  • I feel very uneasy as well posting anything on The Bump. I have thought about changing my screen name.
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