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Food Allergy
avacura15
member
My son's story..Anyone else going or gone through this?
avacura15
member
in Food Allergy
Hi,
I want to share my son's story and see if there is anybody else out there out with a similar story who can offer some insight.
When my LO was 4 months old, blood started showing up in his BM's. His pedi said not to worry b/c he's thriving and seems to be developing fine and if he's still having blood in his bm's by 12 months old then we'll see a GI.
By 1 year old he's still having the blood so we went to the GI Specialist. They put him on elecare and no dairy diet for a few weeks. Still blood after 2 weeks so they did a colonoscopy. They found he has ulcers all over his colon and had no idea why. The biopsy's came back...No allergies, No Crohns, and No Colitis. But they found the AdenoVirus in his ulcers and in his blood. They had never see this before and the GI doctors had no clue what to do so they sent us the Immunologist/Allergy Specialists and Infectious Disease Specialist. Neither specialist had seen this before either. They took lots of blood tests and stool samples. Still no answer why he's having ulcers in his body.
Finally the AdenoVirus went away so we were all relieved that wasn't the cause.
Last week they decided to do another colonoscopy. Now some of his ulcers have healed but they've popped up in new places too. They could only go so far up his intestine b/c the ulcers got so bad. The Head GI was convinced its Crohns Disease b/c of how his intestines looked so they went ahead and did an endoscope while he was under. The endoscope came back fine. They took a bunch of biopsy's. Biopsy's came back.... No Crohns! But it also showed he has acute colitis and food allergy cells in his colon.
So now we are starting the elimination diet. Only Elecare, fruits and veggies for the first 4 weeks.
Anyone else had any similar issues with their LO? What did it turn out to be?
Thanks for reading my ultra-long story!
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Re: My son's story..Anyone else going or gone through this?
Thanks. Live in Houston and he goes to Texas Children's Hospital. They have a very experienced GI staff of 12 doctors. When they go to conferences my son is always the topic of conversation. At least there are a lot of heads coming together to try and figure out what is wrong with him.
I heard Cincinnati Children's Hospital is the best for GI so thats always an option too.
I know I've been replying to your previous post, but I thought I'd chime in here too since there are more details here.
I hope you've since switched pedi's. It's appalling they were okay with blood in your LO's stool and didn't care to find the cause for it. Blood in the stool is one classic symptom of MSPI (my younger daughter is MSPI). She can't tolerate any dairy or soy in my diet. Her symptoms cleared up once I'd been dairy and soy free for about 5 wks. Her pedi re-tested her stool at that time and it was negative for any trace of blood. (Previously, there were specks of blood in her stool at times, it was also green and mucousy).
A lot of babies who are dairy protein intolerant are also soy protein intolerant. And it can take up to a month for dairy to clear your system. So usually, the first step is cutting dairy for 2-4 wks and then cutting soy, if symptoms persist. Then going from there if there are still problems. Hopefully the elimination diet your GI has prescribed will help heal your LO's ulcers and provide some relief there.
Did you BF or FF? If you FF, what formula was he on? Did he have any other symptoms? Was he gassy, colicky? Did he sleep okay? How is he now?
I feel like I've seen a post or two from other moms on here about ulcers in the digestive tract. Has your LO been tested for Celiac Disease?
DD1: allergic to eggs & dairy
c/p 4/1/11
DD2: milk and soy protein intolerant, allergic to eggs, soy, peanuts, tree nuts, sesame, bananas
MSPI Moms Check-In Blog
I BF until he was 11.5 months and thats when they put him on the elecare. You would never tell he had anything wrong. He looks good, has lots of energy, not fussy at all. Just a lot of BM's that are always loose. The other day he had 11 BM's.
He sleeps well most of the time. He'll usually poop 1-3 times a night so there are some nights when he wakes after every poop and other times he'll sleep thru.
He's light for his age, only in the 5% for weight but he's 50% for height.
Not sure if they tested for Celiac Disease. I'll ask his GI.
i'm so sorry you're going through this! hope you get some answers but I got a knot in my stomach when you wrote that there was blood in your childs BM and your pedi said it was fine if he was growing. That is not right! Blood in stool = not good! it should be immidietly looked at. I'm happy you went and switched pedis!
Hopefully now without milk/soy she will be healing and you won't see blood. I would check all her snacks. Some puffs have soy in it and there are a ton of food with hidden dairy. make sure you avoid casein and whey also. good luck!
Have they mentioned anything about Eosinophilic Colitis? Maybe your local G.I. could at least call Cincinnati and talk to one of their doctors to get advice on other things to look for? I know it is hard to get in there, we were told it was a year wait for a new appointment, but maybe since your son is undiagnosed and having these problems still they could get him in faster.
Good luck, it is so scary to not know what is going on with your little one!
Thanks for the reply. I spoke with one of the doctors yesterday and she said one of things they looked for was eosinophilic esophagitis and he doesn't have that.
I think we'll see how this new diet goes before we go running off to a new hospital. Yesterday was his best day yet! He only had 7 bm's and didn't have one overnight! He had very little blood in his bm's and they were actually formed a little.