Community› The Bump Message Boards› Babies: 9 - 12 Months
Babies: 9 - 12 Months
New Discussion

XP: Any LO who currently have or had torticollis? Please share your experience.

buzzbee24buzzbee24 member
in Babies: 9 - 12 Months

I have a 4mo with congenital sternomastoid torticollis and a minimal size flat spot. We've been in PT for one month and do our home exercises 6 times daily. Also starting in home PT to go along with Childrens Hospital PT. I know it takes time to see results and helmets are sometimes necessary for correcting. How long before you saw results and improvement? Any LO with helmets? Any advice or words of encouragement sure would be appreciated. Want to do everything I can. FTM nervous.

Thank you for any info you can provide. 
Warning No formatter is installed for the format bbhtml
Report Reply to Post

Re: XP: Any LO who currently have or had torticollis? Please share your experience.

  • ras26ras26 member
    LO did not have torticollis, but did have a flat spot that only got worse with age.  We monitored and tried repositioning from 4-7 months.  She ended up in a helmet and we saw improvements in just 2 weeks, and we think she'll be done this month after a total of 12 weeks.  As you already are, you'll have to address the torticollis, but if the flat spot remains and you elect to treat with a helmet, it does work, in my experience.  She tolerates it much better than I expected, even considering that it's very hot and her head gets super sweaty.
    IMG_2304IMG_3206
    Baby Girl #2 is on her way!
    Lilypie First Birthday tickers Lilypie Third Birthday tickers
    Report Reply
  • Loading the player...
  • Gipper0809Gipper0809

    My 4 year old had it when she was an infant.  Severe torticollis and plagiocephaly.  She was delayed in gross motor and wasn't rolling by 7 months.  Within two PT sessions, she was rolling without issue.  She didn't just have a a flat spot though--she had a very misshapen and assymetrical face.  Her ears weren't even close to being aligned, one entire side of her face was lower than the other.  We ended up putting her in a DOC band with Cranial Technologies and we saw vast improvement.

    She was in the band from 6-9 months and did PT during that time.  She still has some misalignment but no one but her dad and I notice.  (although wearing glasses or headphones is a challenge for her because of her ears)

    You will have great success and this phase will be over before you know it!

    Warning No formatter is installed for the format bbhtml
    Report Reply
  • buzzbee24buzzbee24 member

    Thank you ladies! I don't feel so alone in all of this now. It's just so frustrating when you see LO having to go through this and you wish you could make it all just go away...but I will be vigilant! Seems like the more on top of it, the better the results.

    Thank you all again for sharing and good luck to you! Smile

    Warning No formatter is installed for the format bbhtml
    Report Reply
  • buzzbee24buzzbee24 member
    imageExpectantSteelerFan:

    DD was also in pt for torticollis and had (still has a bit of) a small flat spot.  We chose not to do anything about the flat spot and it's not really noticeable unless you're looking very closely. 

    DD did well with the pt, but was a bit slow with most of her gross motor skills.  She didn't roll over until 5 months, and even then only did it every once in a great while in one direction from belly to back.  At 5.5 months she could stay in the seated position and that was all she wanted to do, and I think that helped a lot with both turning her head both ways more and with the flat spot.  She started crawling right before 9 months and that's when she was released from pt.  She didn't start pulling up to stand until after 10 months. 

    Early on, the thing my pt stressed was tummy time tummy time tummy time.  HTH!

     

    Thanl you for sharing and BTW LOVE the Steelers as well. LO is a Steelers fan in the making. Found him a onesie jersey the other day. DH is pleased. Lol

    Warning No formatter is installed for the format bbhtml
    Report Reply
This discussion has been closed.
Choose Another Board
Search Boards
"
"