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BFP! 2u2 and SN

pandabear12178pandabear12178
in Special Needs

So I just got my BFP and I am so excited but so nervous!

Arianna has a brain abnormality that has her real delayed in milestones. Shes 9 months and is just starting to try to sit up unsupported.  Shes doing well though compared to her original prognosis. The chances of it happening again are a 2percent chance but I still am going to be a nervous wreck. I also sort of feel like this is a "second chance". I love her to death and wouldnt change her for anything but I also missed out a lot on my pregnancy with the last two months being hooked up to monitors and being induced and not enjoying it at all. Also with her not developing on track.

 Just thought maybe some of you could relate since I dont really have anyone in my life who knows what its like to have a child with SN.

 

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Re: BFP! 2u2 and SN

  • duchess0727duchess0727
    Congrats!  Try not to stress yourself out.  I know it's hard.  Our first child was typical and our second has SN.  We always wanted a third and given that our daughter is still undiagnosed at age 3, we figured it was highly unlikely that the baby would have the same thing (and our geneticist confirmed).  We also wanted our daughter to have as much sibling support as possible in case anything happens to us, so this was another reason we went ahead with our plan to have a third.  The pregnancy was a little stressful but now she has a very typical little brother, who she adores.  Good luck! 
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  • realisticdreamsrealisticdreams member

    Hugs!

    We had 2u2 and both had medical problems.  I was told the likelihood of having another complicated pregnancy was slim, but our chance of getting pregnant was also 2%.  

    Both happened.

    I have good luck like that, lol.

    Since our pregnancy was not planned, I wasn't happy about it and within the same week I got P's stroke and CP diagnosis.  The dr.s and diagnosis kicked into warp speed at that point.

    dd2 is almost 18months and things have started to slow down now.  We have taken a break from EI for dd2 and are just doing service coordination, and dd1 left her speech through EI as well.

    No matter how difficult it is now, or how difficult it gets, just know that it will get easier.  

    I honestly don't think I could have handled a newborn and an almost 3 year old, the girls are 15 1/2 months apart, but dd2 was born early . For us, it ended up being a lot easier on me than I thought it would be.  

    GL! 

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • kcisthebombdotcomkcisthebombdotcom member

    Welcome! I also have 2u2 and both my children have SN. My oldest is genetic related (I had apraxia as a child, and my oldest does too). My youngest also has problems with speech but they seem to be related to hearing so we're in unchartered territory with her. I wouldn't change it for the world, and it makes life a whole lot busier for sure, but it's totally worth it. The bond that they have is so heartwarming and amazing.

    Congrats!

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  • chavlin517chavlin517 member

    Congrats!  I lurk a bit on here and we've just started trying for #2 as our son just turned 1.  He ended up having a heart defect (his aorta was narrowed) that led to a massive intracranial hemmorhage that damaged 30-40% of his brain and he is very delayed and has seizures. It is a bit nervewracking, but we've always wanted more than one child (hopefully that can happen) and we think it will be really good for him to learn from a sibling and have someone to lookout for him. 

    All the best for a happy and healthy pregnancy!

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  • AB&TBAB&TB
    Good luck!!  H&H 9mo.  I am working on 4 under 5.  So far my son (and oldest) is the only one with SN.  My girls seem to be developing normally.
    imageimageimageimageimage 9/07 m/c baby boy @ 18wks, 4/09 m/c @ 4.5wks
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  • mskolmanmskolman member
    Congratulations! I understand being nervous, as I was as well. My son had a severe heart defect which caused many complications and a long hospital stay. He also has a chromosomal syndrome which caused the heart defect and some other mild things. My husband and I were both tested for the chromosomal abnormality and neither of us had it, so our chances were very slim that it would happen again. We got pregnant when my son was one and had a perfectly healthy baby girl when he was 2. It is not easy, but oh so worth it! I hope everything goes well for you as well! Good luck!!
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