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Hello (introduction)

luvnnycluvnnyc
in Preemies

Hello everyone. I've been lurking since my girls were born 19 days ago. I need to update my siggy.

Identical twin girls born at 33w5d. TTTS survivers (diagnosed w/stage 3 at 22 weeks & had laser surgery). Twin A had IUGR. Emergency csection due to decrease movement from twin A (came out 2nd so now twin B).

New twin A weighed 4lbs 7.7oz. Cried but had trouble breathing and ended up on CPAP for 1.5 days. Nasal canula for 9 days.

Twin B weighed 2lbs 14oz. No cry but was breathing room air with no problem. Had cord wrapped around thigh, arm & twice around neck. Spent 2 days under lights for jaundice.  

Both girls out of ICU after 3 days and into feeders/growers room. NG tube for feedings. Twin A moved to crib after 11 days. Twin B remains in incubator and has a nasal cannula due to trouble with desats and bradys. 

Our hurdles are with feeding. Little to no interest in bottle feeding. Currently only trying once a day with OT. Both girls tire out after a few ML's. They both improve daily, but it is slow.

Another issue is low muscle tone in both girls. A tiny bit more apparent in twin A. Twin A has under gone blood tests and all have come back negative. On Friday, Doc ordered genetics test for Prader-Willi Syndrome. I'm told this take very long to get any results. No plans to test twin B yet. Both girls are showing daily improvements in muscle tone (ie more head movement/strength, opening eyes more, pushing against gravity with arms & legs). 

NICU life is hard. Especially with two babies - splitting hospital time between both. PLUS we have a four year old at home in need of our attention too. I know you all know and understand this. I guess I'm just finally reaching out for support. We're on day 19 (almost 20). Never thought we'd be here this long. Seems we still have a long road ahead. 

 

DS Born July 2008
#2 & #3 Due 8/25/12
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Re: Hello (introduction)

  • Missa_gMissa_g member
    Welcome and congrats!  NICU life is definitely tough. 
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    Married 9/22/07, began TTC 8/10
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    BFP #2 Medicated cycle, twin boys born 4/4/12 at 29w4d
    BFP #3 EDD 8/8/14, D&C for missed miscarriage at 8w, baby boy with triploidy
    BFP #4 June 2014 CP
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  • jcsntms06jcsntms06 member
    Congratulations on the birth of your girls. Praying that their NICU is over soon. Please keep us posted.
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  • Pips09Pips09 member
    Congrats on your babies! I hope you are able to bring them both home soon.
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  • jennifer1wjennifer1w
    Congrats on your girls! I hope everything goes smoothly from here and they are home soon.
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  • bieseckebiesecke member
    Welcome!  I know my 28 days with one baby was hard, I cannot imagine going on 20 days with 2!   I had to wait for my LO to take his feedings, so I know the struggle that comes with it.  Hope they are able to catch on soon, and that they can come home!  I am new to this board too, but everyone here is lots of help!
    Me: 30 DH:33 DX PCOS TTC #1 since 1/11. Metformin 1000mg before BFP, 2 rounds of Provera and 1 round of Clomid. BFP 10/12! Ethan James born 5/11/12 at 34 weeks...after 4 weeks in the NICU he finally came home!!
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  • urbanflowerpoturbanflowerpot
    Welcome! I'm sorry you're going through the NICU rollercoaster right now - BostonKisses2 is right about growers and feeders. It's very frustrating. They always seem on the brink...that's where we were for our entire stay (58 days). Fortunate for no further complications, but every day felt like forever and then some. I'm glad you came out of lurking.
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  • Mrs. AliceMrs. Alice member
    Welcome to preemies!  I hope you get some answers from the test soon and your girls get the hang the bottle feedings. 
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