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Babies: 9 - 12 Months
XP: Hypotonia/low muscle tone
My son has been behind on development of milestones of gross motor skills since about 4 months. I knew around that time something was going on. He is very "squishy" and extremely flexible, his extremities bend in ways a gymnast would be jealous. At his 6 month well baby visit he wasn't sitting up or anywhere close to sitting up yet. The dr told me that he appears to just be lazy and we will revisit it at his 9 month appt. Shortly after he learned to sit up (at that point he still could not intentionally role over). That was as far as his gross motor skills had developed at his 9 month appt. When he is sitting he sits on his tailbone with his back curved (like he is slouching). At his 9 month appt I again expressed my concerns. This time when the dr examined him he stated that I was right and that he does have something going on. He stated that he has low muscle tone (hypotonia) and that he is going to refer us to a neurologist for a diagnosis or to eliminate the possibility that this is a symptom of something else. He also is getting us in touch with a physical therapist to work with him as well. The reason I'm writing all this is on here is to see if anyone on here (because it seems to not be uncommon) has had some experience with low muscle tone. If so, what is your experience with it? TIA
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Re: XP: Hypotonia/low muscle tone
I have a preemie. They usually have high tone or low tone. Mine has low tone. If your have a diagnosis like low tone, you should get in contact with your state's early intervention program. They provide free or low cost pt, ot, speech therapy, etc for children who fall below the expected level for their age. It has to be a certain amount of delay.
I would say my little guy, who was born 2 months early, is probably about 3 months behind in gross motor. Physical therapy has made a big difference though.
We'll miss you sweet Debbie Girl (4.21.12) and sweet Cindy Girl (8.9.12)
We just went through the same thing, so don't feel alone. We went through EI offered through our state (CA) if you are able to pay for it though I would pay out of pocket for an Evan because the whole process took almost 2 months. Anyway he qualified for PT we've only had 1 visit and I can see a difference. She gave us a couple of things to do at home, which is all i really wanted, to be able to help my son at home, besides tummy time.
The number one thing I can say to you though is stay off google. I drove myself crazy for no reason. I know it's easier said than done but the best thing you can do is just be proactive at getting into doctors visits and PT....hope that helps! Good luck!
Reading this post made me so mad for you! I can't even imagine my pedi saying my DD was just lazy! In my opinion a good pedi should be able to feel the difference in a low tone child.
My pedi noticed my daughter was a bit low tone at her 6 month check-up. He recommended we go for an evaluation. DD started physical therapy once a week. We got rid of all her jumpers and bumbos. We did daily excersizes with her. At her 9 month check up she was sitting on her own and the doctor reported he saw a great improvement in her muscle tone. This week she started to pull herself up on her own. It made me cry, because I know how far she came to get here.
Every child who is evaluated for low tone will have different experiences. As for my family we loved our PT and were committed to working with DD every day. If it wasn't for our amazing pedi we wouldn't have acted so quickly. Good luck. I hope your little one has as great of an experience as mine did.