Don't know how to react PT eval (long)

Re: Don't know how to react PT eval (long)

• ToastieSimons member

  July 2012

  I think a lot of us do this.  For me, DS was in EI from birth so I never had the second guessing times because his issues were clearly evident.  

  We spent 1.5 yrs getting a diagnosis and everytime they told us they were testing for a new degenerative disease I would be worried sick for weeks or months.  And all that came out of it was another test because that one was inconclusive.

  In the end, DS does not have a degenerative disease and all I got was a lot of time wasted.

  I always remind myself of this quote "Worry is a thin stream of  fear trickling through the mind.  If encouraged, it cuts a channel into which all other thoughts are drained"

  With that being said, I personally would take advice from your parents with a grain of salt.  My mom has worked in daycare center for 10 years.  And everytime she would see DS she would say "Well when he stops being so colicky he'll catch up"  "When he stops throwing up so much he'll grow".  2 years later it still continues with "He'll catch up, he was so miserable his first year that he has to catch up on that year while learning to do what 2 year olds do".  My DS is delayed at least 50%, globally.  It would be great to think that all those issues are causing him to be behind, when in fact, it's his mutation that causes the delays and all the other issues.  Parents, grandparents, aunt/uncles, etc tend to have blinders on when it comes to their own family members.  They write off all the bad/questionable behavior because they don't want to see it.  

  We spent 9 days in the NICU and I will never forget it.  It's the only place I have ever felt like a useless accessory (outside of providing breastmilk, who knows how I would have felt had I chosen formula).  I remember how it felt as a mother to have to ask permission to hold my child.  To argue with a nurse who just graduated and met my kid 5 minutes ago, because supposedly she knows better.  To walk away every night and hand my child and his life over to some stranger that I wouldn't even meet because we left at shift change.  It's a mental game that really caused me to question my parenting abilities.  But know this, you're capable and your their Mom.  Start to use your intuition and trust your gut.    

   If your pedi and your EI eval didn't raise any flags I wouldn't be worried about it just now.  He's also really young for any type of diagnosis such as CP or autism.  Do you see a neurologist as part of a NICU follow up?  They would give you more insight on the CP aspect of it and what to possibly expect.  

  To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  

  Report0 Reply