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July 2011 Moms
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Bad news from the dr. :(

CagleBabyCagleBaby member
in July 2011 Moms

So after a very long 4 months of not knowing what was wrong with DD we finally found out that she has cystic fibrosis in Feb. Yesterday we found out that she cultured a nasty bug for kids with CF. only kids with CF can get it, but it can hard to treat. If left untreated it can cause real bad lung problems. I hate this. I wish I could make CF go away for her. 

Pone good thing is that she now has an airway clearance vest and she seems to like it.  

 https://m.youtube.com/watch?v=wkV7_-lEHGg

 

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Re: Bad news from the dr. :(

  • clineakclineak member
    I'm sorry for your bad news, but glad that you got answers and will be able to move forward with healthful solutions!
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  • IlliniQTIlliniQT member
    Sorry you got bad news, you guys will be in my thoughts and prayers.
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  • lucylealucylea member
    I'm sorry she has such a nasty bug.  My dad actually had multiple advanced respiratory diseases and had a vest like that.  He said it made him feel much better and really helped him clear things out.  The grandkids loved when he used it because he would sing silly songs to them while "vibrating".  
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  • tawillerstawillers member
    I'm so sorry.
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  • LnR70707LnR70707 member
    I am so very sorry.  I hope she gets better as soon as she can.


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    2 years, 2 surgeries, 2 clomid fails, 2 IUIs, 1 loss, IVF #1 - 10/25/10 = BFP!, DS is now 3.5yrs!
    TTC #2 - 6/12 surgery #3, FET #1 & 1.2 = BFN, 12/2012 FET #2 = BFP! DD is 1.5 yrs!
    Surprise! 12/16/14 BFP, loss #2 12/31/14

    I can't wait for the "im getting a divorce" post in 5 years or so because your husbands were fed up with your disgusting chair asses from playing on the knot all day and getting fired 4-5 times for not doing any work. you guys are all winners!! ~ Laur929

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  • weebos8weebos8 member
    I am so sorry to hear this.  Hopefully with the vest she will get better and get back to feeling good.
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  • Five_letterFive_letter
    Wow, what a heavy diagnosis. I'm so sorry. Hopefully the vest will bring her comfort and get her on the road to feeling better.
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  • katie4253katie4253 member
    I'm really sorry to hear this.  Are you a member of any CF support systems?  There is a preemie mom in a group I am a member of who's daughter has CF.  If you don't know of any groups, I could ask her if she knows of any.  I think a support system for you is key.  Huge hugs to you.  I'm glad she is tolerating the vest well!  That is great.  Hopefully it helps her feel better!
    Born at 31w3d due to severe IUGR & Placental Insufficiency--2lbs 3ounces
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    We'll miss you sweet Debbie Girl (4.21.12) and sweet Cindy Girl (8.9.12)
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  • Erin&RodErin&Rod
    I'm so sorry.  I hope your baby feels better soon. 
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  • jlsimon56jlsimon56 member
    I am so sorry.  
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  • jesstellinajesstellina member
    I'm really sorry to hear that. You and your sweet girl will be in my prayers.

    Jess & Adam, married 2009, precious Audrey born in 2011. BFP 1/6/13, 6-wk MMC discovered at 9 wks 2/11/13. D&C 2/18/13, second D&C 4/23/13 for retained placenta.
    BFP 8/24/13!! EDD 5/1/14, delivered healthy and sweet Zoey Leanne on 5/5/14 by repeat c-section.
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  • swimiz500swimiz500 member
    I am so sorry to hear this. I will keep you and your DD in my thoughts and prayers, and will be hoping she feels better very soon. 
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  • Lauren79Lauren79 member
    So sorry to hear this. 

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    Pregnant with Letrazole (Femara) on the first cycle with DD after TTC 2+ years
    TTC#2 with Letrazole (Femara) since January 2012
    BFP 06.29.12 EDD 03.11.13 natural m/c 07.13.12
    BFP 09.22.12 EDD 05.31.13 natural m/c 10.07.12
    CP 11.09.12
    BFP 01.01.13 EDD 09.15.13 d&c 01.24.13

    BFP 03.26.13 EDD 12.04.13
     

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  • CagleBabyCagleBaby member
    Thanks ladies
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  • mainemommymainemommy
    I hope that the vest can help her feel better, & I hope that this whole process goes smoothly for you. 
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  • Lindsay&EricLindsay&Eric

    I would tell you I'm sorry to hear the news, but "sorry" isn't what you need right now. My cousin had CF and it is a Horrible, Vile disease. Her name was Anna and her parent's (my cousins) run a website and have a team dedicated to finding a cure for this nasty thing!

    If you are curious and are seeking more information, I'd be glad to guide you to them as a resource. The website is www.Annas-Army.com  and they are great people. They went through Hell and back with this disease and would be more than Happy to help you and give you any info you need.

    God Bless your DD, and Thoughts and Prayers for your Family.

     

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  • CagleBabyCagleBaby member
    imageLindsay&Eric:

    I would tell you I'm sorry to hear the news, but "sorry" isn't what you need right now. My cousin had CF and it is a Horrible, Vile disease. Her name was Anna and her parent's (my cousins) run a website and have a team dedicated to finding a cure for this nasty thing!

    If you are curious and are seeking more information, I'd be glad to guide you to them as a resource. The website is www.Annas-Army.com  and they are great people. They went through Hell and back with this disease and would be more than Happy to help you and give you any info you need.

    God Bless your DD, and Thoughts and Prayers for your Family.

     

    thanks so much for the information. 

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  • damabo80damabo80 member
    Your family is in my t+ps. 


    BFP #1 via IUI ~ L (Fatal Birth Defect) 4/7/10
    BFP #2 via IUI ~ m/c
    BFP #3 via cancelled IUI ~ C (2lb 3oz; HELLP) 5/16/11
    BFP #4 via the natural (free!) way ~ E (8lb 11oz) 9/13/12
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  • boogerbearoriginalboogerbearoriginal member
    Thoughts and prayers for your whole family.


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  • PinupMomma08PinupMomma08 member
    Many prayers to you! I cannot imagine what you are going through. My best friend growing up had cf. We do the great strides walk every year in her honor.There are so many new developments in research and medications. Prayers that they can get cf cured . So awful, I'm so sad for this news.  
    BFP#1 11/10* DS Born via Cesarean 7/11* BFP#2 EDD 1/31/14 *M/C 6/13* BFP #3 RCS 3/14/14
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    "I wish that I could bake a cake, made out of rainbows and smiles. And we would all eat it and be happy." 
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