2nd Trimester

The doctor said the baby has cysts on the brain...

than she tells me that doesn't mean anything is wrong. How am I not supposed to panic? I want to cry but I"m back to work and everyone will think I'm weird. After I told my Dh he said he doesn't feel included in the appointments. I can understand why. The waiting room in outside the door from the reception area. The nurse speaks to me and then the doctor comes in. She told me about the cysts when she first came in and then I asked her to get Jason. She didn't repeat it and when I told him he got mad. I need a good nap and a hug. Man, I could use a drink right about now.

Re: The doctor said the baby has cysts on the brain...

  • What kind of cysts? ?Will they go away on their own? I'm confused how these don't mean anything is wrong? I'm sorry!
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  • I know that is scary news to hear, but someone that I use to work with heard the same thing and of course was nervous.  After a few more appts. of monitoring them, they dissolved on their own and the baby is fine.  Hang in there:-)
  • you should call them and ask them to clarify.  in the future, you should have dh in the room with you from the beginning. good luck!
  • I would tell your DH to call the doctor and have he or she explain it.  It is important that your DH understand that stuff and I find that if I just repeat it, then he doesn't listen like he would if it comes from the doctor.  You could always do a conference call w/your DH and ask more questions now that you have had a bit of time for it to sink in. 

    I am sure the baby will be fine.  My NT screen came back 1 in 3 for a major defect and we feel very lucky that all of our test have come back with good results, but when my DH doesn't understand something or acts like I am confused or something, I just have him talk directly to the doctor.  The way he acts irritates me and it is just better for him to go straight to the source.

  • I'm sorry, that must be scary. Hang in there.
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  • At my 20ish week U/S they found a small cyst on my baby's brain too.  My dr said that SOMETIMES it can be a marker for Downs but that's usually only when it's coupled with other warning signs (like high fluid reading during your NT scan or if your blood tests suggest you could be at higher risk).  I know it's hard, but if you're doctors aren't worried you should try not to be too.
  • I'm so sorry that must be so scary! ?FWIW I've heard a lot of ppl on here say that sometimes these go away on their own - I really hope everything's ok and you get some clarification from the doctor.
  • Thank you so much ladies! The doctor did say that there everything else was normal. She said she would worry if something else seemed abnormal. I'll ask Dh to call the doctor's office himself so they can clarify for him.
  • ((hugs)) i'm sure it's very scary for you.  FWIW I also heard that it's relatively "normal" and mostly they go away on their own.
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  • I am so sorry. How come they won't let your dh come in with you until after?
  • I'm sorry. Hang in there.

    Next time you ahve an appointment, demand that your H is allowed in with you. That's nuts.

  • imageone.sweet.world:

    I'm sorry. Hang in there.

    Next time you ahve an appointment, demand that your H is allowed in with you. That's nuts.

    I second this. ?My DH is always there for US, they don't ever question it.?

  • OK let me ease your mind....1st of all my brother and his wife had this happen....They did not tell anyone because they didnt want us to worry. So we didnt find out till after she was born.

    Anyways, the baby had the cyst on her brain and they watched her though out the pregnancy. They went to specialists and at the end of the pregnancy it disappeared! Like they said it could happen! So now my beautiful neice is happy and healthy and nothing is wrong with her....she is perfect! SHe still goes to the specialist for check ups once a year but she is FINE! 

    SO dont worry everything will be fine...the doctors will just keep a closer eye on you....think positive..it will be ok!

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  • Why isnt your hubs going back with your from the start? my kids are allowed to go to my whole appointment.
  • Big hugs!  I say if you are worried and want more answers call our doctor back and see if he can give you more information about what these cysts mean and what kind of monitoring - if any - he plans to do because of these. 

    I have read the same as the pp said that often they disappear on their own and if there are no other abnormalities then chances are things are fine.

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  • we had a cyst in our baby's brain at our ultrasound. They called it a Chlora plexa cyst(sp.) and that its  fairly common but they wanted to keep an eye on it just to be sure. I had 2 extra ultrasounds because of it and at our last one ,it was gone,...they say its part of how the brain forms. try not to panic, i would def call the doc and ask some questions tho.
  • Wow hon, I'd be freaked out too. It sounds like some people have known others with this issue and it turned out ok though. I'm sorry you have to go through it at all though.
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  • So wait. Is your DH not in the doctor's office with you at all times? He sits in the waiting room? My husband is attached to me at the clinic - during ultrasounds, normal doctor appts. and even the papsmear (yeah...he stayed near my head and read a hunting mag, but he was still there). Maybe I missed something entirely, but you're both going to be parents, so if he wants to be in there with you, you'd think that would be okay.

    I'm so sorry that you're stressed about the cysts - of course you're going to freak out! Maybe if you google and get more information you'll find that it really isn't anything to worry about.

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  • My best advice right now is to relax and know that it's VERY common.  DD had this diagnosis (Choroid Plexus Cyst) at her 19 week u/s.  We too got the "she looks great..Buuuuuttt" and we freaked...I cried, couldn't even buy anything for her that day like we had planned. 

    Went to a level II u/s the following week and to a genetic councellor and with all that plus the quad screen results they concluded that there were no other markers for an abnormality.  This is usually the case.  The CPC alone is nothing to be worried about.  People walk around w/ these all the time..they come and go.  DD's was supposedly gone by the 35 week u/s, like they said would happen.

    Again, you are probably going nuts right now but from all the stuff I learned during and after the birth of DD, all the medical profs.say 1) VERY common finding 2) Alone w/o any other markers it is completely harmless!   Lets just say that when going to my recent u/s for DC#2 (the boy) I was sooooo nervous they'd find a marker just like DD's u/s, but they didn't.  I know how sucky it is to hear scary stuff..but believe me, there are much worse findings than the cyst.  Hope all goes well for you and follow-ups should ease your mind.

  • My son was diagnosed with Choroid Plexus Cysts at our 20 week appointment.  I am 26 weeks today.  Yes, they can be a marker or Downs etc. but it is EXTREMELY rare.  My specialist said that over 99.9% of the time they resolve themself.  Your doctor or specialist will look to see if your baby's hands are formed correctly, if they have clubbed feet, or a cleft lip.  If none of these are present then it is almost guaranteed there is nothing wrong.

     I completely understand the panic.  I cried for two days before the appointment.  I was very lucky to have the neurosurgoen who operated on the Egyptian siamese twins as my specialist.  He was very very thorough and assured me that all would be fine.  I am supposed to go back at 28 weeks to make sure that they have resolved (even if they don't, everything will still be fine....none of the above were present in my high resolution ultrasound).

     Be excited that you get to see your precious baby again.  The kind of ultra sound they use at the specialists are amazing!  Also, no matter what anyone says, DO NOT GOOGLE THIS!  You will find a lot of positive things, but you will also find a lot of false information.  That was one of the first things my doctor told me not to do.  If you have any questions do not hesitate to ask.

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