I spent last night reading through many pages of posts on this board and thought I might ask, as you ladies are an amazing source of knowledge and support.
A little background...Landry is a twin, born at 34.6 wks and spent 14 days in the NICU for growing and feeding. She did have two apnea spells that she was able to recover from on her own.
She has always been slow with her gross motor skills. However, she is leaps and bounds above my other children as far as language goes. She started walking on her knees about 19 months old and last Saturday she began walking on her feet, for the most part, at 21.5 months old.
She has been seeing a PT, once a week, for six months and was diagnosed with Hypotonia-she has terrible balance and startles very easily. We had her MRI this past Thursday. At the initial visit with the Neurologist her blood work and x-rays came back normal.
Since she started walking last Saturday we have noticed that she is walking on the inside of her feet. She is still depending on her knees about 50 percent of the time for walking. We have ordered Orthotics, per the PT and are waiting on those.
Anyway, I have been reading up on it and think it's interesting that Hypotonia can be caused by kernicterus, when the mother is RH negative and the child is RH positive. I am RH negative but, have no idea if Landry is positive. I also, read that it can be genetic. I did do CVS testing on both pregnancies. I would think that any genetic issues would have shown up with the CVS testing but, who knows at this point.
It seems to be confined to her legs and feet. I guess I am just trying to sort the information that I've read out in my head waiting on the MRI results.
Is anyone dealing with Hypotonia? What is your prognosis and what are doing that seems to be working well for your kiddo?
Thank you so much for any and all thoughts and if you want to ask any questions to help answer this post-fire away!!!!