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March of Dimes research?

Cara03Cara03 member
in Preemies

We are the ambassador family for our local walk this year and as I am preparing my speech, I would like to know of any specific research/procedures that March of Dimes funded that impacted my son. Our local coordinator asked me to include this info in our speech but hasn't yet gotten back to me as to specifics.

If you have any info on this, I'd appreciate it! I've spent some time looking on the MoD website but haven't found anything yet.

A little background: LO was a micro - 24w5d, 1pound, 14ounces, I had steriod shots for lungs (was this funded my MoD? for sure?), he had PDA ligation, 8 weeks on vent, several transfusions, Cpap, vapotherm, cannula, ... lots of the "regular" micro things)

TIA and good luck to all the walk teams out there!!! We are thrilled to be participating in our 2nd walk!

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Re: March of Dimes research?

  • dvwalborndvwalborn

    Congrats on being an ambassador family! It just so happens that I was conversing via email with our local MOD rep today about my son. I told her he had to have a dose of surfactant for his lungs. She replied with this:

    I?m sure you know  this already, but surfactant therapy was developed through research funded by the March of Dimes and nitric oxide therapy was also developed through research funded by MOD in 1996. 

    If your son was treated with surfactant or nitric oxide you can use that!  I hope some of the other ladies come along and have more info for you.

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  • njdcgirlnjdcgirl member
    Congrats on being the ambassador family! I think almost all micro preemies get a round or two of surfactant. That's the big one I always think of. 
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  • May524May524
    I have nothing to add about research but congrats on being an ambassador!  How do you get selected for that? Really cool.
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  • daphne814daphne814 member
    I was going to mention the nitric oxide.  I found out that research was funding by MOD, and my neonatoligist said that the NO treatment my son received saved his life.  He was born in our local hospital at 25 weeks and had to be transferred to another NICU because our hospital didn't have the NO treatment.

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  • Cara03Cara03 member

    Thanks for all of your comments!  For the life of me, I cannot remember if our LO got surfactant, and I don't recall any NO treatments, but I still have memory blanks from that time period. I thought about requesting copies of his medical records to check but am running out of time on that. 

    May - I'm not sure how we were selected. The local walk coordinator for this year just asked if we'd be interested. We were the top fundraising team last year so maybe that is why? Not sure. We walk on Saturday...! Hopefully telling our story goes well! 

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