Preemies

talk of the boys coming home next week and I'm terrified

The boys both moved to 3 nipple feedings a day today and they are discussing the idea of them coming home next week with apnea monitors. Since they stop breathing and turn blue a few times daily I'm terrified of them coming home. I know the monitors will do their job but it's still scary. They had told us at first they didn't expect them to go home till about their due date (which I realize is the standard line). They will be 35 weeks next week. I know they are not going to send them home till it's safe and I know things could change quickly if they don't keep up their feedings (they need 8 a day) or continue to gain weight. 

but am I the only one who is terrified of bringing the babies home? how do you handle it without loosing your sanity and staying up 24/7 staring at them to make sure they breathe?  

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Re: talk of the boys coming home next week and I'm terrified

  • I was nervous too, especially with Aiden since he came off oxygen only a few days before discharge.  In all honesty I wasn't as paranoid as I thought I'd be.  And with the monitors you'll be golden.  Plus, I think being sleep deprived desensitizes you to your fears and you fall asleep.  Lol.  Good luck and I hope you are able to relax once they are home.
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  • Oh, you are not alone.  I was terrified to bring the girls home.  I kept telling myself that they wouldn't send them home unless they were absolutely sure that they would be ok.  They have been doing great and thriving, as I'm sure your boys will too.  You can do this!!
    PCOS, lupus anticoagulant, MTHFR (A1298C, one copy) 2 IUIs & 1 IVF = BFN FET#1 = It's a girl! Born 7.1.10 FET#2 = c/p FET#3 = Twin girls! Born on 3.16.12 at 33w2d due to severe pre-E. After 4 weeks in the NICU they are home! Lilypie Third Birthday tickers
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  • The monitors. The monitors will give you peace of mind and by the third night, you'll be sleeping like a baby. :) Congrats!
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  • I probably would have been nervous about taking mine home at 35 weeks, but then again they were really not at all ready by then.  That is awesome they are already taking 3 nipple feeds a day!  We did the apnea monitors at home for about 2.5 months and honestly I don't think we had any real alarms after the first week.  They outgrew the issue by their due date, however it was kind of nice having the security of the monitor on in the beginning.  By 38 weeks when I brought my boys home I was more than ready, I don't think I could have gotten out of that hospital fast enough! 
  • We are rooming in overnight at the NICU right now in preparation for our baby to go home tomorrow... and yes, I'm terrified! Thankfully he's 38 weeks and even just in the last week has improved by leaps and bounds. Just one week ago, I was at the Red Cross giving blood because we thought he would need a transfusion -- and now he's coming home! It's exciting but scary. 

    Our LO will be on an a/b monitor too, and it's already given me so much peace of mind just tonight. As others said, the NICU won't discharge them until they're ready. I'm still afraid of dropping him or of the dogs jumping up and knocking him out of my arms, but those are probably typical newborn fears. I bet within a few days we'll feel like old pros!

    Julia ~ six miscarriages ~ our sweet miracle baby, Jack, due 5/3/12, was born at 29w1d on February 17, 2012, weighing 2 pounds 8 ounces Lilypie Premature Baby tickers BabyFetus Ticker
  • My kids didn't have any spells and I was still a wreck. I think more to my daughter being so small (IUGR). She passed the car seat test by the tab of her diaper... She also has issues with reflux that we are trying to get under control so she has her own "spells" of milk all of a sudden coming out of her nose and she arches and screams all of a sudden. It's very scary especially in the dark... You will probably not sleep well the first few nights. My kids and I sleep downstairs near the fridge (I have a huge couch. I put them in their RNP's right next to me and the light switch is right there so I can turn it on quickly. I would just suggest keeping them close until they are off monitors and hadn't had a spell for a bit. We will be moving up to their bedroom soon but I will stay with them in the room till I feel comfortable leaving her. We are putting a mini fridge in  their room also so I don't have to run downstairs...
    Oct1201212 Twins born at 34w2d, Allison, 3lb,4oz-Ethan, 4lb7oz, both 16 1/2 inches. Out of Difficulties Grow Miracles BestBuddiesBoy AprilPosseMultiLilypie Premature Baby tickers
  • My LO just got off of his monitor yesterday (YAY!) after about 5 weeks.  I was very anixous too at 1st.  In fact, I asked to be trained in CPR 2x before we left the hospital. 

    Are you also getting oxygen tanks sent home?  We were sent home with oxygen to use during feeds which I also planned to use in the event of an incident.  Make sure that you also call your local EMS department to let them know about the monitor.  I did & they were appreciative so that if they got a call, they'd know what to expect. 

    The 1st few days are nerve wracking esp when the alarm goes off, but after then, you'll get the hang of it.  And, by the end, you'll be so anxious to ditch the cords.  It was so nice snuggling with LO this AM without tripping over the wires!  Good luck to you!

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  • Thank you ladies! It's so nice to have people that understand my fears and can offer sympathy and reassurance. Normally when you say the babies may come home soon everyone says "oh how wonderful-you must be so excited!!" I feel bad to be more nervous then excited. It's nice to be reassured that everyone survives this phase!
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  • I went through that same emotion with DD.  The day that she was supposed to come home, I started crying and felt really nervous.  The root of it was that I wasn't sure I could provide everything she needed for her.  It was very overwhelming.  DD came home on oxygen and an apnea monitor to top it all off.

    DH wasn't very supportive - he didn't understand the emotion and felt that I had the completely wrong reaction to the whole situation.  

    In the long run, you'll be a great mother.  Don't let anyone make you feel otherwise!

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  • The only good thing about your babies being in the NICU is that you know someone is watching over them 24/7! It's comforting. I think we all get a little nervous when that time comes. You want them home so bad, but it's scary when you're so used to them having constant nursing care. You will do great! I used to drive myself crazy at night...just when I would get comfortable, I would think something like one of them hasn't made a noise in awhile. Then I would have to roll over and check to make sure they are breathing. 10 min. later, repeat! I bet even people with full term babies do that though, so you're not alone!

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