Hadley update

marcuej · April 2012

I've been terrible about updating on here but figure most of you are up to speed thanks to FB.

Hadley had her g-tube surgery on Friday. We were admitted into the hospital on Tuesday and had to delay surgery for 2 days due to a crazy staph infection she got out of the blue. Thankfully antibiotics took care of the infection quickly and surgery went off without a hitch. We were released on Saturday and got to go home!!

The g-tube has been a huge life saver. She's on a ton of meds now and the tube makes it all a breeze. She loves that she doesn't have to take any meds by mouth now and she often sleeps through the midnight doses when we sneak in to give them to her.

I thought I would be traumatized to see my baby girl with a tube in her tummy but honestly it doesn't bother me at all. It has made things so much easier on everyone that I see it as a blessing, not a curse!

Hadley is feeling so much better and is back to her feisty self. I think her strength has improved and she's even getting closer to walking now. Just a matter of time!

Thanks to everyone who has been so supportive during all this craziness in our lives. I appreciate all the warm thoughts!

MBandBud · April 2012

YEAH!! I am so glad this went rather well and you are already seeing the benefits!! I am glad that you are seeing the tube for what it is. Having been exposed to many people with many health ailments it really has taught me that the human body is a container for their spirit and should no way affect how I look at them. I'm glad she is back to her old self and feisty! Gotta love it! Remind us what is next in this process?

EmilyAnne · April 2012

Great news! Glad that the G-tube is working for her and you. Hopefully she continues growing stronger and getting healthier.

marcuej · April 2012

The next process will hopefully just be to watch her grow and develop. She is on the cystagon now which fights the crystal build up on her organs. She will go in for regular blood draws to monitor all of her levels. Meds will be added and altered according to how she's doing.

Fingers crossed she will get to presume a normal toddler life!

LisaMarisa · April 2012

I'm so glad to hear that things are going better. I hope she continues to improve by leaps and bounds!

PhillySue · April 2012

Great news!!!! I am happy to hear that the G-Tube is helping : )

njdcgirl · April 2012

That's great! I'm glad the surgery went well and that you are all adjusting to the G-tube!

preheatedoven · April 2012

What a great update (other than the staph infection!), I'm glad she can start being the feisty toddler she was meant to be.

LucyPevensie · April 2012

I hope things are smooth sailing from here on out mama! You're doing a great job.

Cajunladybug22 · April 2012

So glad things are getting better!

JenCW · April 2012

This is GREAT news! So glad things are going well after getting the g-tube. Hopefully, it's all up from here!!!

BTW - how was your trip out to the conference? Maybe I missed your update.

BeccaLandes · April 2012

thank you for posting here, too- we're not friends on facebook and i am happy to hear she is doing/feeling well!

vandelay · April 2012

That's great news -- I'm so glad it went smoothly!

etoyama · April 2012

Oh I'm just thrilled for you all! So, so glad things are going well. Continued T&Ps for your sweet girl!

marcuej · April 2012

JenCW:
This is GREAT news! So glad things are going well after getting the g-tube. Hopefully, it's all up from here!!!
BTW - how was your trip out to the conference? Maybe I missed your update.

We leave for the conference this Thursday. I'm so excited!! I'll update on that once we get back. I'll also be blogging about our trip while we're there.