After 16 years of dedicated employment (part time since pregnancy), the small family owned business has sold and I will be out of a job next week. I was paid remarkably well, but I earned it
So, our special needs situation is this. My 1 yr old ds has severe food allergies. Milk, soy, beef, pork, all confirmed. Also has very severe reactions to corn, corn syrups, peaches, legume family (green beans, peas), rice... you get the idea. Because of these crazy allergies, he has very limited foods he can actually eat. He mostly gets his nutrition from Neocate Jr. at this time. He has lots of problems because of these food allergies... c-diff, candida overgrowth, leaky gut, some internal bleeding and lacerations, possibly EE (an esophogeous disorder). Leaving him with anyone becomes quite a challenge because 1 goldfish cracker has about an 8 day repercussion period ... ripped skin in the groin, bleeding, purple anus, chuncks of skin pulling of his bum and rectal area, butt crack literally ripping up his back. You get the picture... not pretty, but not anaphallactic at this point !(thank you god!) Most people just don't "get-it" and think I am overreacting most of the time.
My husband and I strongly believe that there is more to come with him and that the next two years are going to be quite challenging. We're not sure why we feel this way, but both of us have been feeling a certain "dreading" in our spirit when it came to our son and his medical needs. I've been feeling called to stay home, but there is no way we ever thought we could afford it. Now, the employment door has been closed and we are going to step out in our faith and believe God to take care of things. It's so strange...I so strongly feel that the next two years are going to be so hard for us, but by the age of 6, ds will be fine. I don't know why I believe this, but I just feel it in my soul! KWIM?
So, now that I am let go from my job, it really isn't going to pay me much to go work somewhere else. DS is a police officer, so has a very erratic schedule. And, like I stated before, childcare is so hard with my son... I think I am going to look at taking a child into my home to watch for a little added income.
Thanks for letting me vent and type it all out. If you made it this far, thank you. Any words of advice for staying home and helping support your spouse so he doesn't feel so overwhelmed by it all???