Success after IF

PCOS Niece Diagnosed!

My SIL started asking me a bunch of questions about PCOS and that my Niece's Dr. who is a Peditrician diagnoised her with PCOS.  I was never diagnosed with PCOS though I have read a ton on it due to our fertility issues. 

My SIL does not want my Niece to take BCPs since breast cancer runs on both sides of the family. 

I stressed having my niece get blood tests done and have an ultrasound and also have my SIL have my niece see a specialist.  She is 16.  I told my SIL to please have her see a RE they specialize in this and will make sure all the correct tests are completed. 

It saddens me that she may have to go through IF treatments to get PG.

 Do any of you have any suggestions on what to tell my SIL.

 Thank you.

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Re: PCOS Niece Diagnosed!

  • She doesn't need an RE, she can see an endocrinologist as well. My endo doctor did all my test and she treats me when I am not seeing an RE. Endocrinologist are specialist as well.

    Sorry your niece has to go through all this :( But I wouldn't go to an RE for a 16 year old.

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  • Also, have her start reading about diet changes, going the low carb low sugar is one way to control symptoms. I was dx 6 months before my wedding and started the diet, dropped 30 pounds and felt great, best I have felt in years. It's a huge lifestyle change, but it's the best way to do it without medication.
    Lilypie Third Birthday tickers
    Savannah
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    Callista
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  • I was told at 15 by my GP that I most likely have PCOS but based on my bloodwork they were unsure (they didn't do an ultrasound).  I wasn't officially diagnosed until I first saw my RE and he did an ultrasound.  I was on BCP's to have regular periods from age 15-25.  Looking back I wish I wouldn't have taken them that long. 

    If she doesn't want to be on hormonal birth control then she could take provera every 60 days to induce a period if she doesn't have one on her own. 

    It's not fun to have to think about that at that age. :(

    Married 9/19/09
    Me (32) Dx PCOS, DH (32) SA = Normal/mild morph issues
    TTC#5 July 2017 - 3rd cycle TTC = BFP on 11/12/17 at 9dpo Beta #1 = 96 at 13dpo - Beta #2 = 207 at 15dpo
    TTC#1  starting Nov. 2009
    3 rounds of Clomid + TI and 3 rounds of 7.5 mg Femara + IUI before our BFP on 11/8/10 at 12dpiui
    TTC #2 3rd cycle of Femara 7.5mg+Ovidrel+TI = 4 follies = BFP on 10/12/12 
    TTC#3 July 2014 - Metformin +TI = BFP at 9dpo - Twins, one baby lost at 5.5 weeks 
    Macy Annabelle born at 37w4d on 4/29/15.  Diagnosed with Cri du Chat and passed away on 6/6/15.  Forever in our hearts.
    TTC#4 3rd cycle of Metformin + Femara 7.5mg+Ovidrel+TI = 3 follies = BFP on 12/24/16
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  • imageMrs.Babbsy:

    She doesn't need an RE, she can see an endocrinologist as well. My endo doctor did all my test and she treats me when I am not seeing an RE. Endocrinologist are specialist as well.

    Sorry your niece has to go through all this :( But I wouldn't go to an RE for a 16 year old.

    I was going to suggest this as well.  I spoke with my RE and OB about how I can best manage the condition when we're done TTC, and both suggested an endocrinologist.

    All the best to your niece!

    TTC since April 2009 dx = PCOS; TTC History for DS - A FET miracle after 7 IUIs; 2 fresh transfers, and 1 other FET resulted in BFNs. Hoping and Praying for baby #2: Cycle 1 - FET; November 2012 BFN Next Steps - who knows? Lilypie Second Birthday tickers
  • ditto above- not an RE - but a regular Endo- one who knows a lot about PCOS- bc many do not - there is still a lot being learned about it.

    she'll want to get her sugar levels checked  - and monitored if they are OK, about once/year - since PCOS causes higher risk of diabetes, heart disease, etc.

    other than that- being on BCP keeps symptoms of PCOS down (acne, weight gain, crazy cycles).... so it's best to be on it --- I've been on it since I was 18 - and breast cancer is in my family- my doctors have no problem with me being on it.

     

    I used to be Goldie_locks_5 but the new nest is so screwed up that I was forced to start over.
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  • A regular/medical endocrinologist can go through the options, but another option to control some PCOS issues (acne, hirsuitism, etc.) is spironolactone, but you need to have reliable birth control to be on it.  But it is all very dependent on her specific type of PCOS - some people have high androgens (my testosterone is high), some people are insulin-resistant (I'm not), some have irregular/absent periods (I do) and some have cystic ovaries (I don't).  You only need some of the criteria for a PCOS diagnosis, not all of them, so an ultrasound is generally unnecessarily and not considered diagnostic (you can have cysts without having PCOS), and an RE is definitely not necessary.  The endocrinologist can also give them information on the relative risks of cancer from BCPs versus the effects of uncontrolled PCOS.  
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