update about DS - (autism related)

watermellens · April 2012

So some of you might remember that our pedi suggested going to a development pediatrician and looking into early intervention for DS. He was not making some milestones at his 15 month wbv and was showing deficits in some areas.

We went this morning and the dev. pedi agreed (( More or less diagnosed him with Pervasive Developmental Disorder, which from what I understand is on the Autism spectrum.

He recommended early intervention - which we already had an eval. set up for anyways - and a lot of it...probably 10-12 hrs a week. So they'll hopefully go to daycare and home to work with him. His main areas of concern were communication, play and social reciprocity - 3 biggies.

Tough news to hear, but DH and I were sort of prepared. From everything we know, the most support the earlier you get it is wonderful and the doc this morning said that he was very hopeful that with a lot of support, DS could make a lot of improvement and hopefully by age 3 or so will be making awesome progress and the autism will "disappear" for lack of a better word.

Just wanted to let you know - your support means a lot!

[Deleted User] · April 2012

Wow, that's big news. I'm sorry that you got that info, but at least you know early & can work on things, right? We are totally here for you whenever you need it. Big hugs to you & DH & LO.

OhSewCrafty · April 2012

Big hugs to you, hun. That is some tough news to process. :-( I'm glad you got everything set up for therapy so quickly though! Many many many hopes and prayers that he responds well and makes huge strides!

stephy1221 · April 2012

Sorry the news you got wasn't all positive but so happy to hear there is a plan in place to get your LO where he needs to be.

It sounds like you and H are handling this well. I hope you see improvement quickly.

dee12807 · April 2012

wow - that suck sand is awesome all in the same breath. It sucks that you and your family have to go through this, but it's great that you have such a head start on the therapy and a professional who has such a high hopes of a full 'recovery.'

H's cousin has a son who was diagnosed with autism at age 2 1/2. He started therapy right away and is now 8. He continues to see someone and does have a few 'ticks', but he is in main stream school and will hold a conversation with almost anyone! He has made such amazing strides and is so very smart. I personally feel that he wouldn't be where he is today without that early intervention.

GL to you guys!

Kellina · April 2012

I'm sorry- that's got to be tough to hear. But thankfully he's very young and getting help already which will help tremendously I'm sure!!

Refresh me- what things was he behind on at his WBV? What have you guys noticed?

jarebearsmom · April 2012

I'm so sorry you guys are having to go through this but I'm glad you are catching it early. Praying for you and your family as you journey through this

MrsDe2008 · April 2012

I'm so sorry about your news, but am very glad you caught the signs so early! EI will be the absolute best for your little guy! Best of luck with his EI! {Hugs}

desertlady86 · April 2012

I'm sorry to hear that but glad you guys are doing something about it early and it will hopefully "disappear"!

bosha711 · April 2012

I am just so glad for you that DS is getting the help he needs so soon & wish you all the best. I can't wait to hear updates on all the progress he makes!

JoJoMama730 · April 2012

I'm sorry the news isn't great and that you even have to deal with this. The one positive that comes to mind right away is that there's something you can DO about the disorder. Being able to take action is more reassuring than sitting around twiddling your thumbs because there's nothing you can do. So keep that positive attitude - it can make a world of difference to your child, DH, and the situation.

Strunella · April 2012

It's definitely a lot to take in, but it sounds like he's on the path to getting great treatment. Keep us posted...thinking of you guys!

JLSmith124 · April 2012

I know that it is tough news to swallow. I remember getting the diagnosis with DS1. Once we saw the progress, all of my worry went away. It is great that you caught it early, and you should see great improvements once therapy starts

watermellens · April 2012

Kellina:
I'm sorry- that's got to be tough to hear. But thankfully he's very young and getting help already which will help tremendously I'm sure!!
Refresh me- what things was he behind on at his WBV? What have you guys noticed?

Some of the things were that he "forgot" the words he used to use, he doesn't point, doesn't consistently respond to his name and doesn't communicate that well - like if he wants something he won't point, show us, bring us there, sign, grunt, etc. We just kind of guess. Eye contact isn't great, not affectionate (to some extent).

AFanch1127 · April 2012

I'm sorry you got that news, but so happy for you that you are getting this intervention so early. Hugs!

xxbabycakesxx · April 2012

Like everyone else has said, I'm sorry fir the news you got but its great that LOs getting help this early. T&P.

Cheekers2010 · April 2012

That's tough news. And a lot to process, I'm sure. It's seems positive that the dev pedi is confident that with help your DS will make big strides. No matter what he is your beautiful boy. ((Big Hugs))

kj07 · April 2012

Ah watermellons - I'm guessing you're feeling a mix of sadness at what the developmental pedi said but maybe a bit of relief to know you weren't just being an overanxious parent. Good to you and your H for pushing your fears forward and getting Brody some help.

Early intervention can really be amazing so I'm hopeful that we'll get an update from you in a few months about B's progress.

Creepy internet hugs for you guys Left Hug Right Hug

missmuffin87 · April 2012

I'm sorry you got such difficult news, but it's fortunate that there is so much that can be done and hopefully he will make great strides before even getting to preschool. I used to work with kids with autism and it's important to realize that while 10-12 hours of therapy a week may seem like a lot, there's a lot more time where it's just your family with LO. There's so much that you as a parent can do. Don't be afraid to ask lots of questions learn how to do what the therapist is doing and keep up the consistency. ASD kids require so much repetition so I can't stress enough how important it is to be consistent with what he's working on in therapy outside of therapy. GL

tiffanyp · April 2012

Thanks for keeping us updated! Hopefully he will respond great to the therapy and one day you'll forget that this was ever an issue.

jillybean800 · April 2012

It's so funny, I was literally just thinking of paging you this week to ask what was up.

Pretty much what everyone else said: it sucks and is good all at the same time. But hugs. I know it's hard to hear there is a problem. I really hope everything is looking up from here on out.

GrayGhost13 · April 2012

I'm sorry to hear you're dealing with this, but I'm happy that it sounds like he'll be getting the support he needs. One of my best friends has two sons who are on the spectrum and having a good therapist has done amazing things for them...not to mention helping my friend understand how to communicate with and help her sons better. I hope your results are similar.

::big hugs:: and wishing you and DS all the best of luck on the road ahead!

lrn327 · April 2012

I'm so sorry to hear that you all will be going through this. I know your heart sinks a little bit. But I do think it is wonderful to hear that the dev pedi thinks this will basically be a thing of the past by only age 3. I know you guys are headed for a lot of work, but it sounds like Brody has awesome parents and a great medical team that will really help him overcome this. I'm grateful to know that there is EI that is now so advanced that autism can pretty much "disappear". I know this will be hard, but you guys can do it. Hugs mama!

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