MSPI moms..please help!

FTM115 · April 2012

So my son is going to be 6 months old next week. He got an ear infection 2 weeks ago and his diapers got extremely mucuousy. Well I had his ped. test one of the diapers yesterday and it had blood in it (not visible to me). Anyways, we started him on alimentum.

I hear that intolerance to milk and soy protein starts to ease up around his age and goes away by a year in a lot of cases. I plan on keeping him on alimentum until they can retest his diaper to make sure it's infact MSPI. Is there anything else I should be doing?We were told to stop solids for 2 weeks before the diaper can be retested. I just feel really guilty that we didn't catch this sooner.

Just looking for some experiences, tips, advise or whatever else you ladies have to share if you have dealt with this.

Thanks!

ashleypembroke · April 2012

We are keeping J on Nutramigen for a little longer and will try to wean to other formula soon (tried a few weeks ago and he had a reaction that we aren't sure if it was from that or a stomach bug). We are feeding solids but slowly and we take days off at times. That is all I know to do for now.

cantalopes24 · April 2012

There's really not much else you can do.

FTM115 · April 2012

Thank you for replies. So I guess we'll stay with this for now and see how it goes.

kagl08 · April 2012

cantalopes24:
There's really not much else you can do.

I agree! Our GI dr says its best for DS to stay on his special formula (Neocate) until he's 1. Our insurance is covering it so it makes no difference to me. With all that my DS has been through (NICU, no weight gain, extreme reflux) his GI dr thinks its best to keep him where he is now (which he's doing really well) until 1 so them we can do 1 transition to milk instead of to regular formula then milk...

Mrs. Mo · April 2012

ashleypembroke:
We are keeping J on Nutramigen for a little longer and will try to wean to other formula soon (tried a few weeks ago and he had a reaction that we aren't sure if it was from that or a stomach bug). We are feeding solids but slowly and we take days off at times. That is all I know to do for now.

Ditto all of this. We are keeping DD on Nutramigen for a few more months and then will slowly try another formula and have her diapers retested. As for solids, we only introduce 1 a week so that we can watch her closely. For rice cereals, we were told to use Beech Nut & not Gerber. Apparently, Gerber has some milk in it.

FTM115 · April 2012

danes22:

T has MSPI. It is true that some outgrow it by 6 months and even more by 12 months. I am just starting to reintroduce dairy into my diet to see how he does (I BF), but we are only on day two of that.

It sounds like they just want you to avoid solids for now to make testing the diaper easier, which makes sense. We started solids but have only been doing oatmeal cereal for the past few days while I try to figure out how he is doing with dairy/soy that I eat.

Are you planning on making your own baby food? I find it's much easier to avoid dairy and soy additives that way (you'd be surprised what all you can find it in).

I know what you mean about the guilt. I felt terrible when we found out because I had thought T was just just a difficult baby. Once I cut out dairy and soy he was a different child. I just keep telling myself that he's happy and healthy now and no permanent damage was done.

Let me know if you have any other questions!

Thanks for this. I can't avoid the guilt but I am thankful that he is healthy and happy baby and at least it's caught now. What sucks is that I had this feeling that he was MSPI but the doctors kept saying otherwise. Even yesterday, I forced the ped. to test his diaper.

Regarding solids, I'll def. make my own now. We were giving him gerber but it'd be much better to do my own since I know there'll be no additives. Also, they said if we wanted to feed him cereal, it'd be ok. Do I have to get a specific brand? So far, he has been eating gerber oatmeal.

FTM115 · April 2012

kagl08:
cantalopes24:
There's really not much else you can do.
I agree! Our GI dr says its best for DS to stay on his special formula (Neocate) until he's 1. Our insurance is covering it so it makes no difference to me. With all that my DS has been through (NICU, no weight gain, extreme reflux) his GI dr thinks its best to keep him where he is now (which he's doing really well) until 1 so them we can do 1 transition to milk instead of to regular formula then milk...

Glad to hear he is doing better. I plan on calling my insurance (Aetna) to see if alimentum would be covered. Based on your experience, is there anything specific I should state when I call, we are in NJ if that helps.

Thanks.

ashleypembroke · April 2012

Mrs. Mo:
ashleypembroke:
We are keeping J on Nutramigen for a little longer and will try to wean to other formula soon (tried a few weeks ago and he had a reaction that we aren't sure if it was from that or a stomach bug). We are feeding solids but slowly and we take days off at times. That is all I know to do for now.

Ditto all of this. We are keeping DD on Nutramigen for a few more months and then will slowly try another formula and have her diapers retested. As for solids, we only introduce 1 a week so that we can watch her closely. For rice cereals, we were told to use Beech Nut & not Gerber. Apparently, Gerber has some milk in it.

Just curious as to what solids y'all have done. We have done squash, green beans, carrots, applesauce (he eats daily) and just started sweet potatoes. We had to take a break for now since he has a bad rash on his cheek/chin... pretty sure it's from the ridiculous amount of drool he produces but it made me nervous.

Mrs. Mo · April 2012

ashleypembroke:
Mrs. Mo:

ashleypembroke:
We are keeping J on Nutramigen for a little longer and will try to wean to other formula soon (tried a few weeks ago and he had a reaction that we aren't sure if it was from that or a stomach bug). We are feeding solids but slowly and we take days off at times. That is all I know to do for now.

Ditto all of this. We are keeping DD on Nutramigen for a few more months and then will slowly try another formula and have her diapers retested. As for solids, we only introduce 1 a week so that we can watch her closely. For rice cereals, we were told to use Beech Nut & not Gerber. Apparently, Gerber has some milk in it.

Just curious as to what solids y'all have done. We have done squash, green beans, carrots, applesauce (he eats daily) and just started sweet potatoes. We had to take a break for now since he has a bad rash on his cheek/chin... pretty sure it's from the ridiculous amount of drool he produces but it made me nervous.

We have done: sweet potatos, peas, carrots, applesauce, bananas & pears.

ashleypembroke · April 2012

Mrs. Mo:
ashleypembroke:
Mrs. Mo:

ashleypembroke:
We are keeping J on Nutramigen for a little longer and will try to wean to other formula soon (tried a few weeks ago and he had a reaction that we aren't sure if it was from that or a stomach bug). We are feeding solids but slowly and we take days off at times. That is all I know to do for now.

Ditto all of this. We are keeping DD on Nutramigen for a few more months and then will slowly try another formula and have her diapers retested. As for solids, we only introduce 1 a week so that we can watch her closely. For rice cereals, we were told to use Beech Nut & not Gerber. Apparently, Gerber has some milk in it.

Just curious as to what solids y'all have done. We have done squash, green beans, carrots, applesauce (he eats daily) and just started sweet potatoes. We had to take a break for now since he has a bad rash on his cheek/chin... pretty sure it's from the ridiculous amount of drool he produces but it made me nervous.

We have done: sweet potatos, peas, carrots, applesauce, bananas & pears.

Okay great to hear that pears were a go. That's next on our list.

Sorry about hijacking the thread ladies!

cantalopes24 · April 2012

FTM115:
danes22:

T has MSPI. It is true that some outgrow it by 6 months and even more by 12 months. I am just starting to reintroduce dairy into my diet to see how he does (I BF), but we are only on day two of that.

It sounds like they just want you to avoid solids for now to make testing the diaper easier, which makes sense. We started solids but have only been doing oatmeal cereal for the past few days while I try to figure out how he is doing with dairy/soy that I eat.

Are you planning on making your own baby food? I find it's much easier to avoid dairy and soy additives that way (you'd be surprised what all you can find it in).

I know what you mean about the guilt. I felt terrible when we found out because I had thought T was just just a difficult baby. Once I cut out dairy and soy he was a different child. I just keep telling myself that he's happy and healthy now and no permanent damage was done.

Let me know if you have any other questions!

Thanks for this. I can't avoid the guilt but I am thankful that he is healthy and happy baby and at least it's caught now. What sucks is that I had this feeling that he was MSPI but the doctors kept saying otherwise. Even yesterday, I forced the ped. to test his diaper.

Regarding solids, I'll def. make my own now. We were giving him gerber but it'd be much better to do my own since I know there'll be no additives. Also, they said if we wanted to feed him cereal, it'd be ok. Do I have to get a specific brand? So far, he has been eating gerber oatmeal.

Try Beech Nut or Earths Best cereal. Gerber contains dairy.

kagl08 · April 2012

FTM115:
kagl08:
cantalopes24:
There's really not much else you can do.
I agree! Our GI dr says its best for DS to stay on his special formula (Neocate) until he's 1. Our insurance is covering it so it makes no difference to me. With all that my DS has been through (NICU, no weight gain, extreme reflux) his GI dr thinks its best to keep him where he is now (which he's doing really well) until 1 so them we can do 1 transition to milk instead of to regular formula then milk...

Glad to hear he is doing better. I plan on calling my insurance (Aetna) to see if alimentum would be covered. Based on your experience, is there anything specific I should state when I call, we are in NJ if that helps.

Thanks.

We were denied the first 2 times we tried to have them cover it. They will say no, but you can appeal. We appealed and ultimately won! They are very nice at our insurance company and told us exactly what we needed to get them to cover it.

The main thing you need is a prescription or letter from your dr stating LO HAS to be on this formula. That there is a medical necessity and "regular" formula isn't in his best interest. Our GI dr gets these requests all the times, so they have a generic letter they send out to insurance companies. Is your LO going to a GI dr? If so, they should know what to put down. Otherwise your pedi might not because they aren't too familiar with the process.

All I can say is it took a lot of work and many phone calls. It took them over a month after our last appeal to make a determination. So we were paying out of pocket for that formula in that interim. But they did ultimately cover it 100% and it's such a huge load off our backs! His Neocate is $42 for a 14oz can. He goes through 1 can every 2-3 days. That would really add up! We are in the process of getting the formula we already paid for before their determination cover now...

Good luck! And I wanted to add. Even though we aren't going to start him on regular formula/milk until 1 yr, our GI dr did give us the ok to start yogurt at 7-8 months. We will see how he does and go from there.

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