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Preemies
can we talk sensory issues?
Scarlette is 16 months and will not eat anything but purees. Her feeding therapist thinks she has a) weak muscles so she doesn't chew and b) sensory issues
She starts OT next week for the sensory issues and I'm wondering what to expect? Have any of y'all dealt with this?
I've been looking up some sensory exercises on pinterest to incorporate into our playtime. But I'm feeling a bit overwhelmed at the news. I'm hesitant to share much with people who aren't preemie moms- I feel like I get told "aren't you just so grateful that's all you have to deal with?" or "aren't you just so glad she's come this far?" to which the answer is yes, obviously. But I still feel a bit sad about her having to overcome one more thing, you know?
xoxo
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Re: can we talk sensory issues?
I have no advice. Sorry
But I do know the "one more thing to overcome" feeling.
A fellow May mom has made a sensory box for her older son. Maybe start there? She bought all the stuff at a dollar store if I remember correctly. Here's a post about the items in the box:
https://learning-2-laugh.blogspot.com/2012/03/our-sensory-box.html
My son (now 15m actual/12 adjusted) has a similiar issue with anything but purees. He gags on anything solid but finally is accepting some tiny - like ridiculously tiny - bits of meat. He goes for feeding therapy now and just this week his feeding therapist felt we'd ruled out enough issues that it must be something physical. I'm still not so sure. I think it is sensory.
I'm not sure what our next steps are. I'm trying not to Dr. Google it and just take each test as it comes. I'm sure that will only last for so long and then I'll say enough with this, let's get serious.
My son was born at 32 wks & has MAJOR sensory issues. We actually received a diagnosis of SPD/SID when he was about 16 months (14 adj) but his sensory differences were first identified by an OT & feeding therapist at 11 months. Have you met with an OT yet? Finding a good OT that has a ton of experience in SPD kids is the best thing you can do. It is so important. A great OT can really help with sensory issues. Feel free to ask me any questions that you have, we've been knee deep in this for quite a while. Does she have issues outside of feeding/textures? How does she do with clothing, loud noises, crowds? Sensory issues can effect so many different areas & there's a huge range of severity.
I definitely know the feeling of "one more thing," I feel like we get another dx dropped on us every few months! Hang in there, there is a ton of help out there & I'm happy to share anything I've learned along the way!
Thanks y'all!
thanks for that link B!!
Oscar, We're the same way. Scarlette will gag on texture and anytime I try to move up to a stage 3 type texture she makes herself vomit. Our feeding therapist just told us Wed we have to do the OT eval for sensory issues - at this age it's really hard for me know what is sensory and what is just her learning her world.
mcarter- we meet our OT this week. It seems to just be touch related- she doesn't like scratchy clothes, she doesn't like to touch any sort of cut up fruits/veggies, she doesn't like her hands to get dirty at all actually. She's very particular - for example, she will only wear certain shoes. If there are no bows/flowers on them, forget it. But those she wants to wear and will carry another pair around the house. They think that is sensory, where I just thought she was opinionated.