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Don't have my preemies yet...need positive stories

adacopeachadacopeach
in Preemies

I have been bumping on the multiples site since I found out that I was pregnant with mo/di twin boys.  At 22 weeks, our boys were diagnosed with TTTS.  We had the laser surgery the next day and physically they started showing signs of improvement right away.  Now, we're at 27 weeks and both of them really aren't growing much at all.  My little guy is at 1lb 6oz (only gained 4 oz in two weeks) and the other is at 1lb 15oz (only gaining 5 oz in two weeks).  At my MFM today, he said that he really doesn't want to deliver until 29-30 weeks, but that could be a possibilitiy if they start growing below the curve.

I know that babies can make it being delivered this small, but I just wanted to hear some of your positive stories and experiences because I'm one scared momma. THX

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Re: Don't have my preemies yet...need positive stories

  • kck329kck329 member

    Welcome and I'm sorry you will be joining us. This board is amazing though and really supportive. I will write a longer reply later but I wanted to point you to the blog our board put together, there is a whole collection of preemie stories to give you some hope. In particular, check out this one. These twins had TTS and are doing awesome now. I'm sure their mom will reply soon too.

    https://preemiemomblog.blogspot.com/2011/11/alice-owen-miles.html

    Preemie Resource Blog: for new and veteran preemie parents

    Our precious girl, born at 27 weeks. Lilypie Premature Baby tickers
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  • mollybloommollybloom member

    Page Mrs.Alice. Her twins had TTTS and were born at 28 weeks. Her babies are doing wonderfully now.

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  • mollybloommollybloom member
    nevermind, I didn't see that her blog was already linked in another reply.
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  • MrsLee22MrsLee22

    We didn't have TTTS, but they WERE 24 weekers and only weighed 1lb 5oz and 1lb 8oz. They will be one in 10 days and are doing really well now Smile

    Just take it day by day, trust your doctors and be an advoate for your babies. Good luck, and T&Ps!

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  • adacopeachadacopeach
    Thanks Ladies!  I read Alice's blog and its quite inspiring...thanks for sharing!  Since I've gotten home and been able to research and read peoples blogs, I'm feeling much more confident about the situation.  Although, this is not ideal, my boys can do it!!!  I"m sure that I'll be back, i just hope its not for at least another month or so.
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  • Mrs. AliceMrs. Alice member

    Hey there!  I remember responding to your post a few weeks ago on multiples.  Glad to see you're still hanging in there!  I've noticed some MFMs have different tolerances for growth restriction and intervention.  Ours said deliver when reverse flow and/or growth drops to 5%tile or below. Are you at home? I would probably insist on being admitted for close monitoring at this point. I assume they are checking cord dopplers regulary right?  As far as early preemies go, getting to 28 weeks is a milestone to reach.  Hoping you and your boys can safely get a few more weeks. 

     I'm a bit outside of Dallas, but we did end up delivering there because my MFM was there and the NICU was better.  Let me know if you have any other questions and keep us updated with your situation.

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  • ChickensFiveChickensFive
    I had my triplets at 27 weeks and one of them was 1lb 2ozs (the other two were over 2lbs) she had a rough start in life and had some ups and downs but today at 18lbs she is almost 2 lbs bigger than her sisters. Good luck I hope everything goes well.
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  • bhilyerbhilyer member

    My boys were born at 29w6d at 2lb10oz & 1lb7oz.  They weren't twin to twin, but rather IUGR of Baby B.  They just turned one and are doing well.  My IUGR baby is still on oxygen at home and a little behind on gross motor skills and feeding, but cognitively he's on track for his adjusted age and his fine motor skills are there as well.

    Keep us posted! 

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  • kelkel09kelkel09 member
    my twins were born at 27wk5d at 2 lbs 4 oz  and 2 lb 2 oz. They are now 7 months. My daughter is doing amazingly well! We have had a really rough road with my DS, but despite everything he has been through he is now making tremendous progress. The NICU doctors and staff do incredible things. I truly believe our babies, esp DS, wouldn't be here today without those wonderful people. If your babies do come early, just know that it is a rollercoaster ride but that they will be in excellent hands. Like a previous person posted, just take everything one day at a time bc you really can't control what happens. Best of luck to you! I will keep you and your babies in my thoughts and prayers! xoxo
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  • Mstauss1881Mstauss1881
    So nice to read all these positive stories. My granddaughter was born at 24+5 8 days ago weighing 1lb 8oz. She lost some but is up to 1lb 12oz. Its so touch n go!! My daughter was diagnosed after delivery and emergency surgey with uterine septum and it so explains all her complications! Praying our lil one continues making good strides. We know its going to be a long haul.  Good luck everyone.
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  • pinotgirlpinotgirl member
    Thank you all for your stories. I too have not yet given birth, but we don't know when it'll be. My baby has IUGR and i've been on hospital bedrest for 4 weeks now.. He only gained 1 ounce in 2 weeks at the last growth scan. We have another one coming up this Friday, so hopefully he'll have some positive growth. He was only 1 pound 5 ounces last time, which is pretty scary.
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  • DenaRenee78DenaRenee78 member
    My water broke at 28 weeks and my son was born about two weeks later. My water bag had a gush .. then stopped and I was in the hospital on strict bedrest until he was born. Well because of low water my son stopped developing at 28 weeks. He was 2lbs when he was born. They gave me steroid shots for his lungs before he was born. When he was born he was teeny tiny but was breathing on his own but they said not strong enough to trust it. So he was put on a vent. After a few days he was breathing fine on his own and no longer needed the vent. He has no mental delays from being early or anything. Few health issues which all were able to be resolved with age .. or medical help. He is now 8 years old and a happy healthy little boy! You would have never known he was a premmie! 
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  • DenaRenee78DenaRenee78 member
    .. forgot to mention I am pregnant with boy/girl twins now. I have an incompetent cervix and had a cerclage places at 13 weeks so I was told its very likely I will have premmies again. 
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