Special Needs

Had our meeting at the school system - No IEP for our son with ASD

Last March our son who was 2 years old at the time was put on the autism spectrum, mild side of it.  He has improved by leaps and bounds since then, I do not deny that.  In fact the behavioral pediatrician that diagnosed him took him off the spectrum and mentioned PDD-NOS in October, but he didn't give us anything that said this and when I requested documentation from him for the school system he told me, no, let's keep the diagnosis as mild ASD for right now, he needs an IEP.  I thought ASD or PDD-NOS would automatically qualify him for an IEP.  I guess I was wrong.

We went through all the testing that they do themselves at the school.  I feel that meeting our son one time just isn't enough to really see him and what he needs as far as further therapy and intervention. 

I left that meeting feeling completely defeated and thinking WTF just happened.  Even our EIC was stunned as well as the transition specialist we were assigned too.  When I picked my son up at therapy that day, his speech therapist, OT and the school administrator were shocked as well. 

Has anyone else with an ASD or PDD-NOS diagnosis not received an IEP?

Our therapists told me the State of Ohio is making it more difficult to get an IEP.

I think we are going to attempt to appeal their decision....has anyone ever tried that?

 

Booze, it's what's for dinner imageBaby Birthday Ticker Ticker Birth - 7 lbs. 7 oz., 20 inches 1 Month - 9 lbs., 5 oz, 21 inches 2 Months - 11 lbs., 4.5 oz, 23 inches 4 Months - 14 lbs, 1 oz, 26.5 inches 6 months - 16 lbs, 1 oz, 28.75 inches 9 months - 18 lbs, 6 oz, 29.25 inches 1 Year - 21 lbs, 6 oz, 31 inches 2 Years - 28 lbs., 37 inches

Re: Had our meeting at the school system - No IEP for our son with ASD

  • I thought that if you request an IEP in writing the school is required to do it within a certain amount of days. Does this vary state by state? Skip your school and write a letter to the Superintendent and cc the school board. Also call a local organization that works with children with.special needs and ask for an advocate. Keep fighting until you get your needs met.
    Warning No formatter is installed for the format bbhtml
  • Loading the player...
  • Just because your child has an ASD or any other diagnosis does not automatically equate to an IEP.  Your child's condition has to have a measurable educational impact.  If he is evaluated and is not showing an educational need, then an IEP may not be warranted at this time.  Auntie can chime in with more specifics and advice.

    ETA:   A parent cannot request an IEP.  They can request an evaluation.  Results from the evaluation will drive the need for an IEP.

  • I would add that you document what individual needs YOU and his other EI teammates think he has that will affect his education. I brought up many of these items for my son in preschool and we were able to talk through them. Most of his were pragmatic, not specifically related to whether or not he was capable of learning his alphabet, etc.. However, those very practical things (such as following a set of directions start to finish) very much impact a student's education.
    Warning No formatter is installed for the format bbhtml
  • Thanks everyone.  This helped a lot.

    I think I'm going to back down on appealing them after reading your responses.  I knew I'd get some clarity here.  I'm getting so many mixed stories from everyone regarding IEPs, including our therapists.

    I was at the eval myself, I know why he didn't get an IEP, he met or was 1 above all of the goals for his age, a handful he was even more than 1 above.  His scores did the talking and I should be proud of where he has come in a year instead of being annoyed he didn't get the IEP.  I left the evel feeling in my heart that he was not going to get an IEP, he did some things better than the two typical peers they had at the eval.

    He has a lot of sensory issues, cannot follow directions and is hyperactive. I just wish there was further intervention we could have from the school system for that because I don't want this to become an issue later on down the line once he actually enters elementary.

    Before we left the meeting they did tell me if his sensory disorder becomes an issue in the preschool he will be attending to contact them and they will re-evaluate the situation.

    Booze, it's what's for dinner imageBaby Birthday Ticker Ticker Birth - 7 lbs. 7 oz., 20 inches 1 Month - 9 lbs., 5 oz, 21 inches 2 Months - 11 lbs., 4.5 oz, 23 inches 4 Months - 14 lbs, 1 oz, 26.5 inches 6 months - 16 lbs, 1 oz, 28.75 inches 9 months - 18 lbs, 6 oz, 29.25 inches 1 Year - 21 lbs, 6 oz, 31 inches 2 Years - 28 lbs., 37 inches
  • Have you contacted your help me grow service coordinator?  They can help you with the transition to the school system and IEP's.  I'm sure one of them could help you understand the exact testing and why they felt he didn't qualify for an IEP.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • imageToastieSimons:
    Have you contacted your help me grow service coordinator?  They can help you with the transition to the school system and IEP's.  I'm sure one of them could help you understand the exact testing and why they felt he didn't qualify for an IEP.

    I mentioned in my original post that our Help Me Grow EIC and transition specialist were both at the meeting, they are well aware of my son's test results from the eval and the reasoning we were told he wasn't getting an IEP. 

    Booze, it's what's for dinner imageBaby Birthday Ticker Ticker Birth - 7 lbs. 7 oz., 20 inches 1 Month - 9 lbs., 5 oz, 21 inches 2 Months - 11 lbs., 4.5 oz, 23 inches 4 Months - 14 lbs, 1 oz, 26.5 inches 6 months - 16 lbs, 1 oz, 28.75 inches 9 months - 18 lbs, 6 oz, 29.25 inches 1 Year - 21 lbs, 6 oz, 31 inches 2 Years - 28 lbs., 37 inches
  • ediloedilo member

    The procedural safeguards booklet for Ohio is linked below. (It is the parent's guide to IDEA.) https://www.edresourcesohio.org/files/whose_idea_is_this.pdf

    EDT: As far as Ohio making it more difficult to get an IEP, the state has been cracking down on districts for qualifying (and providing services to) students without clearly proving educational need.

    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker
  • I understand how you are feeling. My DD#2 is involved with the Help Me Grow program because of her diagnosis of hearing loss. We just had our first assessment done and I was under the impression that she would automatically qualify for ST because of her diagnosis, but that is not the case.

    Did they give you a copy of the assessment results to explain why he does not qualify for services? Our service coordinator has given us copies of everything and is great at explaining everything, and yes, they do not qualify for therapies if their deviation from the norm is less than 1.5. It was a great sigh of relief to know that DD is spot on for her development.

    If you feel as though your DS needs some type of therapy, is it possible to get this through your medical insurance? I only ask because our pedi diagnosed my DD with torticollis and she was first evaluated by Children's PT, and then Help Me Grow. She qualified for weekly PT through Children's, but not through help me grow because she was not bad enough for their standards, so we pay for therapy via our private health insurance benefits. If you have benefits coverage, maybe ask for your pedi to refer to therapies.

    I believe that you are allowed another assessment in 90 days. I dont know if this is the norm or not, but I was told that my DD needed assessed every 90 days, along with a monthly home visit from our service coordinator and someone from the regional infant hearing program.

    Good luck with everything!

    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker
  • Yes he should absolutely have an IEP, a 504 plan at least. My son will have one just for severe diet issues. Are there any special accommodations he needs? If you think you're child needs one, fight for it. Don't give up, you're his mother and you know what he needs. Good luck mama!
This discussion has been closed.
Choose Another Board
Search Boards
"
"