Community› The Bump Message Boards› Special Needs
Special Needs
New Discussion

My 14yr old nephew was diagnosed w/ PDD-NOS today

SpocklesSpockles member
in Special Needs

Is this unusual for a 14 year old to be diagnosed with PDD-NOS? We have suspected that he was somewhere on the spectrum, especially after learning more about it since DS's autism diagnosis. Any resources that I can point my sister to that would help with this? The clinicians that did the assessments recommended getting him into therapy and social skills groups.

He was diagnosed with ADHD as a young child and we thought that he might have been misdiagnosed or there was more of an underlying issue. After all of the testing today, they didn't really feel that he fit the ADHD criteria.

Thanks!

Report Reply to Post

Re: My 14yr old nephew was diagnosed w/ PDD-NOS today

  • meghans30meghans30 member
    My 6 yo was just dx today as having PDD-NOS. I'm also going to post questions.
    Report Reply
  • Loading the player...
  • torrey111torrey111

    I think this is the path we're on.

    My 8 year old got an ADHD dx two years ago.  We are having another set of evals in March and I fear they are going to say the big A word.  

    I just don't understand how you can go so long without knowing this is going on within your child...I feel like the system totally failed us.  Why is it so often misdiagnosed early on?  -like in both our cases??? 

    Report Reply
  • torrey111torrey111
    image-auntie-:

    imagetorrey111:
    I just don't understand how you can go so long without knowing this is going on within your child...I feel like the system totally failed us.  Why is it so often misdiagnosed early on?  -like in both our cases??? 

    It's often mis-dx'd because they also demonstrate the skill deficits consistent with ADHD. Another piece is that many of the older kids who get dx'd have very subtle differences that aren'y important or obvious in the preschool years. Many bright kids with AS, PDD-Nos and HFA can and do fly below the radar until the social and  executive function skills bar is raised.

    In the old days, when DS was dx'd and ASDs were thought to affect one kid in 1000, Aspergers was a zebra. Kids in well served communities often got a dx at 11 or 12. When DS was dx'd at 6.9, he was one of the youngest at the international support forum to which I belonged.

    Another piece, is that most parents instinctively accommodate their child around the areas in which they struggle or explain behaviors away with comments about being an only, or a baby, or not being in DC.

    The system is better at identifying these sorts of kids, but the buck still stops with mom and dad.

     

     

    OMG Auntie.  This is what has happened here. The social bar is so raised right now and I don't think I've ever seen the issues, the really difficult issues of social stuff, as complicated as they are right now.  And I am sure it's only going to get worse and I as scared as hell. 

    Report Reply
This discussion has been closed.
Choose Another Board
Search Boards
"
"