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Took A to the Sleep Specialist

battybtagsbattybtags
in Upstate NY Babies

So today I took A to the sleep specialist and it ended up being a way different outcome than I expected. I went in fully thinking that it was going to be a phase, related to the baby, etc....and partially it is.

They think she might have 1 of 2 things-either restless leg syndrome or sleep apnea. So, we have to go through a sleep study (lord help me) and bloodwork (lord help me again) before we have definite answers, but honestly these were not on my radar at all.

I'm sort of relieved that we might have a reason for this crazy sleep pattern, but at the same time I don't want my baby having any medical issues either. I went to the appt alone and I wish DH would have been there-he thinks its all a bunch of garbage I think and doesnt want to admit/believe that A might need help or have a problem. Of course hes ticked at our pediatrician and already called him to have a phone conference to get his thoughts on the whole thing-that should be interesting.

 So the sleep study is scheduled at the end of March (I wanted a weekend night so it set us back a long time) unless theres a cancellation-hopefullly after that we'll have some answers.

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Re: Took A to the Sleep Specialist

  • TelycoTelyco
    I can totally see restless leg syndrome being an issue because I get that now and then and it is SUPER hard to go to sleep! I basically have to get up and do some stuff and then try again. I don't get why sleep apnea would cause her to not fall asleep though. Poor little thing!! And poor mom - hopefully you will get this figured out soon!!!
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  • jnk062602jnk062602
    Just curious, did they give reasons why they think it could be one of those 2?
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  • TinyPinkBugTinyPinkBug member

    imagejnk062602:
    Just curious, did they give reasons why they think it could be one of those 2?

    I was wondering the same thing.  RLS I could see, but the apnea seems a bit surprising.  Did they give you any suggestions for the mean time?

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  • battybtagsbattybtags

    imagejnk062602:
    Just curious, did they give reasons why they think it could be one of those 2?

    They asked tons of questions but what set them off is that DD snores pretty much every night, which I guess is not common at all for toddlers. So that was a red flag for the sleep apnea-and when they looked at her tonsils, they are so big that they touch her uvula so basically you can't see the back of her throat when she opens her mouth-and I guess when you sleep, its closed up even more when the muscles relax. 

    As for RLS its because when you lie down with her she can't lie still at all and just tosses and turns like crazy-and gets whiny/fussy because she cant get comfy to fall asleep.

     Of course they think some of it is behavioral. We've gotten in the (bad) habit of one of us lying down with her to fall asleep-mainly because it was the only way to keep her in bed and not playing (after hours of playing)-so of course they want us to break that habit and let her fall asleep on her own. We've tried that and she seriously played until midnight. Sorry but when DH has to work the next day and I'm up nursing a newborn overnight I can't have her up until midnight. So I'm not sure when we'll tackle that issue!  They didn't give us much else because they want to see how the sleep study goes first-which isnt until the end of march so unfortunately we wont have any real answers until mid-april unless our study gets moved up

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  • jnk062602jnk062602
    Ahh, that makes sense. And with apnea, she is going to be constantly over-tired which makes it harder to sleep too. I'm glad you got this first appt so quick though. Hopefully they can give you some good solutions in a couple months.
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  • TinyPinkBugTinyPinkBug member

    Hmmm, interesting.  I have large tonsils, have always snored and am always tired.  Always continue to be tired no matter how much sleep I get.  Maybe I should see a specialist.

    Good to know they are looking into possible causes.  Tyler used to jump/play/bounce from 8pm when we put him in his room until 10 or even midnight every.single.night too.  It is SO freaking frustrating!  Before we started the melatonin, we resorted to putting a TV in his room to just get him to sit or lay still.

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  • battybtagsbattybtags
    imageTinyPinkBug:

    Hmmm, interesting.  I have large tonsils, have always snored and am always tired.  Always continue to be tired no matter how much sleep I get.  Maybe I should see a specialist.

    Good to know they are looking into possible causes.  Tyler used to jump/play/bounce from 8pm when we put him in his room until 10 or even midnight every.single.night too.  It is SO freaking frustrating!  Before we started the melatonin, we resorted to putting a TV in his room to just get him to sit or lay still.

    Definitely look into it. My dad has sleep apnea pretty severely and he was the same way. He also never dreamed because he wasn't getting into a deep sleep.  He actually had to have surgery too to shave down his tongue and palate because they were obstructing his airway when he slept. We found out this is hereditary too so maybe it's where A gets it from 

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  • battybtagsbattybtags
    imageTinyPinkBug:

    Hmmm, interesting.  I have large tonsils, have always snored and am always tired.  Always continue to be tired no matter how much sleep I get.  Maybe I should see a specialist.

    Good to know they are looking into possible causes.  Tyler used to jump/play/bounce from 8pm when we put him in his room until 10 or even midnight every.single.night too.  It is SO freaking frustrating!  Before we started the melatonin, we resorted to putting a TV in his room to just get him to sit or lay still.

    Definitely look into it. My dad has sleep apnea pretty severely and he was the same way. He also never dreamed because he wasn't getting into a deep sleep.  He actually had to have surgery too to shave down his tongue and palate because they were obstructing his airway when he slept. We found out this is hereditary too so maybe it's where A gets it from 

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