XP: Feisty Girl!

DrRx · February 2012

Hello everyone! I don't have a pic today because I haven't had a chance to download them from my camera and I didn't think to take one with my cell phone. I promise a pic on my next post with her eyes wide open! Smile

Breathing

So, Adalyn decided to start her day by pulling out her breathing tube. So, since she extubated herself, her doctor decided to try her on the CPAP machine and see how she did instead of immediately re-intubating her. When we got there at 11am, she had been on the nasal CPAP machine since about 8:30am. The MD, the nurse, and the RT all told us that this was a trial, and to not be alarmed if they had to re-intubate her. At around 11:30am, they checked her blood gases to see how she was doing. Unfortunately, she wasn't taking deep enough breaths and so she had high CO2. They had to re-intubate her and since then she has been doing fine. She's on low ventilator settings, and so she is almost ready for the nasal CPAP, but not quite yet. Hopefully this means that she will be in a few more days. However, what this does show us is that she is a feisty one! She did NOT want that tube down her throat, so she just decided to pull it out. At our last couple of Hands On Time with her, we kept having to move her hand from being wrapped around the tube for fear of another extubation!

Feeding and Weight

She tolerated the 8ml every 3 hours really well, and so they went up on her feedings again to 11ml every 3 hours! Since it's a higher amount, they use a pump to feed her the breastmilk instead of the oral syringe and gravity. Since yesterday, she gained an ounce (30g) and is now at 1 pound 11 ounces (770g).

Miscellaneous

Her bilirubin remained down and so no UV light for her. Her head ultrasound, the one that checks to see if there is a brain bleed (a complication seen in premature babies), was normal. Yay! The MD said that if they don't see a bleed in the first 7 days that there is like a 99.something% chance that it won't happen. She said that they will do another head ultrasound in 4 to 6 weeks to look at her white matter and check for cerebral palsy, since preemies have a slightly higher risk of this.

Today we saw her open her eyes a lot more than in the past! And, to me, it's not just that she opens them, but that she opens them up wider than before. We're getting into a sort of rhythm/schedule and we're adjusting. Pumping is going really well for me, and every day I'm pumping more and more. Today I actually pumped 26 ounces (780ml)!! We have already filled up one entire shelf in our freezer and have started filling another shelf! They still have plenty at the hospital freezer, but they will probably have us bring some more breastmilk in the next few days.

Thank you everyone for all of your support! We all really appreciate it! I cannot begin to tell you how much it helps me to read your responses and know that you are all pulling for our little girl. It certainly makes this situation a little more manageable. Smile

drubie · February 2012

Aw, this little kiddo is such a strong fighter! So happy to see another amazing update

JM1977 · February 2012

So in awe of your feisty girl and her wonderful momma!

missjul61 · February 2012

Great update! She's doing amazingly well and great job with all the pumping that's helping your girl grow stronger by the day.

lovebug33 · February 2012

Such good news! Praying she continues on this great path!

etoyama · February 2012

What a strong, brave girl you have! I love hearing about her

Continued T&Ps for you all!

TJ1979 · February 2012

Way to go, both of you! So glad to hear another great update.

jbeck78 · February 2012

Wow, she is a fiesty little one

Do they give a estimated date of when she would maybe be able to leave? Maybe around the time of when she should have been born? Or earlier? So glad she is doing good!

snoangel79 · February 2012

She's a little trouble maker! haha That's good though!! I'm really happy to hear about the MRI! That sounds wonderful!! I hope you are taking care of you too! I assume it's probably hard but definitely take a little down time for you as I'm sure this is very hard on you! and obviously your husband! Hope you can do something for V day tomorrow (nice take-out meal maybe <:)

kimikins79 · February 2012

Yay for Adalyn! You sound like you are handling everything so well! I am so happy for you and hope to continue to hear only good updates about amazing Adalyn!

DrRx · February 2012

jbeck78:
Wow, she is a fiesty little one Do they give a estimated date of when she would maybe be able to leave? Maybe around the time of when she should have been born? Or earlier? So glad she is doing good!

They said 8 to 12 weeks from when she was born, depending on how she does. We've got 1 week down and have already started on the 2nd week. I hope that the time that we get to take her home will be here before we know it! Smile

naybird · February 2012

I love that she's a feisty gal!! My sister was a very early premie 35 years ago and was also a fiesty gal and still is!!!

Love all the updates and that little Adalyn continues to do so well!!!

MrsFeatherbottom · February 2012

I hope everything continues to go well for little Adalyn. That is awesome that they didn't find a brain bleed. She definitely sounds like a fighter.

jbeck78 · February 2012

DrRx:
jbeck78:
Wow, she is a fiesty little one Do they give a estimated date of when she would maybe be able to leave? Maybe around the time of when she should have been born? Or earlier? So glad she is doing good!
They said 8 to 12 weeks from when she was born, depending on how she does. We've got 1 week down and have already started on the 2nd week. I hope that the time that we get to take her home will be here before we know it!

The time will go by fast I'm sure!! And she is doing really well too

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