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Let's play the "-ologist" game
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Share your newly acquired "-ologist" vocabulary. Also include a brief descriptor of what that specialty does...
Neuro-ophthalmology is the subspecialty of both neurology and ophthalmology concerning visual problems that are related to the nervous system [1].
A neuro-ophthalmologist is a physician (neurologist or ophthalmologist) specializing in diseases affecting vision that originate from the nervous system.
Nate has an appointment with one on the 29th. Our pediatric ophthalmologist is sending us there to have him look at Nate's nystagmus and to help us figure out the eye rolling behavior. He thinks the eye rolling is related to the nystagmus. I am very interested in this appointment and hope he can give us an idea of where in the brain the nystagmus is coming from and if glasses would maybe help him stop tilting his head. I am also curious if he believes Nate's torticolis is vision/nystagmus related.
WAY 2 Cool 4 School 
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Re: Let's play the "-ologist" game
I'm glad you guys are getting into somebody so quickly. We don't see a neuro-ophthalmologist, but do see a genetic ophthalmologist. Actually, we see him next week. Its taken us a YEAR to get into this FOLLOW UP! He specializes in colobomas. I'd love to hear whatever you find out about the eye rolling since DD still periodically has this issue (though certainly less frequently than before) and also has nystagmus. I was planning on asking again about it at the appointment next week. Last year when he saw it, he immediately said "seizure", but we've since had a video EEG where the eye rolling occurred during testing and no additional abnormal activity showed up. So who knows... Does one of Nate's eyes test stronger than the other? Does the weak eye correlate to the side he's leaning on? For DD I don't feel like its her nystagmus that makes her tilt her head or squint (Popeye style) so much as her myopia since she's bringing stuff close to her face (to the point she periodically pokes her eye) while she's doing this. I'm hoping to get a better "map" of where her specific blind spots/nerve damage are to see if that correlates and have more information for how to work with her vision from a functional stand point.
We're trying really hard not to add any new "ologists" to our team.
In the beginning, our pediatrician was referring us to a different specialist for every issue DD had. While they were knowledgeable doctors at 20+ medical specialists and a slew of specialized therapists, it just got to be way too much. We're focused on finding our "core group" of doctors within that group--which has been a combination of specialty knowledge, but really boiled down to whether they were able to communicate with our team and think about her other issues that weren't in "their realm" since it all comes back to the whole body/self. Beyond that, I want to keep DD out of the hospital/clinic anymore than she needs to be since that seems to be where she picks up the majority of the bugs she's had. Bah... off my soapbox. 
Please do let us know how your appt goes....
That's really interesting - there are so many subspecialties that are so specific. DS had an eye movement study with a team of specialized ophthalmologists who sound somewhat similar. I never heard a specific title, but their focus was on vision + brain and were also closely connected to the ENT team. We found in that study that he has some nystagmus though it wasn't ever present on any of his exams with the regular pedi ophthalmologist.
DH has a fairly significant head tilt...DS's pedi ophthalmologist looked at him during DS's first appointment (he has noticable strabismus at times) and told him to get himself into an ophthalmologist for surgery since over time she expects his head tilt to cause longer term issues with his neck. It's definitely possible Nate's torticolis is related to his vision.
That sounds like it will be an interesting appointment. I'm pretty sure that's one of the "-ologists" we haven't seen. We've seen lots of specialist....I won't do defintitions, but does anyone want to see the list, it's a bit scary.
Chris has abnormal eye cup pallor as well. His neuro-opthomologist said it looks like glaucoma if someone didn't know better. That's why he had the MRI when he was 13 months. She said it can also be a sign of a genetic change.
Really? This sounds really off to me. They've been testing DS since he was 11 months old and he couldn't talk at all. They used crystal wedges to measure the degrees of strabismus and use papers with lines on them to roughly measure his vision (they watch his reaction to holding up different papers with the lines coming increasingly closer together one eye at a time). She also looks into his eye to check vision - something about the time of reflection. DH went to the first appointment where she explained everything in detail so my knowledge is a bit fuzzy, but I know he has a glasses prescription and it changed before he was able to talk. Now he talks, but even so I don't think he'll be very helpful at his follow-up tomorrow.