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Leiden 5 Factor Anyone?

Mayan2011Mayan2011 member
in Pregnant after IF

If you have tested positive for this mutation did you decide to take heparin or lovenox?

I have tested positive, but b/c I have never thrown any clots (32 and I was on the pill for 14 years) my OBGYN hasn't suggested the shots for me.  He said he would follow me closely - this makes me nervous.

Just curious to know if there are any other ladies out there that have tested positive and aren't taking meds.

...I have an appt in 2.5hr with my family Dr. and I know we will be talking about this. 

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Re: Leiden 5 Factor Anyone?

  • naybirdnaybird

    Sorry, I have a prothrombin mutation that affects my platelets.  I will have to take Lovenox until 3 months after the baby is born.   So I'm not much help. But if you are nervous, you can ask your family Dr for a hematologist consult.

    Good luck, darlin!

    Renee- 37 DH - Chad - 39
    2/06 - surprise pregnancy - twins
    3/06 - m/c 1st baby at 6 weeks 
    5/06 -2nd baby had no heartbeat at 14 wks.
    D&E - Bled out. Blood transfusions. Week in ICU - Cheated Death!
    Diagnosis: Blood clotting and bleeding disorder, immune issues, & cervical stenosis
    5/10 - 1st IVF cycle - BFN
    FET - 10/12/10 - BFN
    1/11 - IVF with PGD - BFN
    IVF - May - BFN
    6/11 New RE - fingers crossed!
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    10/13 - BFP!!
    It's a boy! Clint Michael, Due in June!!!

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  • DahliaFlowerDahliaFlower member

    I am lurking, not pg, but my RE has me on aspirin and Lovenox even while TTC.  I have already seen a perinatologist and the plan is for aspirin and Lovenox during pregnancy.   

     You should look up some of the studies that discuss live birth rates for women with FVL.  Very convincing.  Have you seen a specialist at all?

       

    TTC #1 12/2009
    BFP #1 1/2010, M/C 6 weeks
    BFP #2 6/2010, DD lost to     congenital heart disease, we are heartbroken.

    TTC #2 4/2011, diagnosed MTHFR, FVL
    Four natural cycles BFN; Clomid IUI BFN; Follistim IUI BFN;
    1/2012 IVF #1 BFN
    4/2012 FET BFP #3
    5/2012 7w1d u/s: anembryonic demise; M/C @ 8w.
    6/2012 found Stage II/III endo on laparoscopy, removed w/ laser.
    8/2012 IVF #2 epic fail: no viable embryos.

    Vacation, break, second opinions, on to new RE.
    1/2013 Surprise chemical pregnancy BFP #4 (break cycle), IVF #3 postponed.
    2/2013 TI w/ hormonal support, prednisone, aspirin, Lovenox, acupuncture gave us a miracle BFP #5!
    Heartbeat on U/S at 6w1d!     Baby,please stay!!
    Our miracle baby boy arrived 10/2013!  We are so in love!!

    10/2014 Surprise BFP #6
    Our second daughter arrived in May 2015!  We are so grateful!  

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  • boymomstrongboymomstrong member

    This was a concern for us, as my father, Aunt (dads sister) and Grandparents (dads parents) all have this as well as 2 and 8. They put me on Heparin right away, while I was going through treatments. Turned out I am not a carrier even, but my RE thought Heparin was better not sure why....

    I also take an asprin every day....

    Good luck!


    Started TTC in 2006, LOTS of trying, and trying, and 7 rounds of IVF with 13 embryos, 2 perfect little boys and 5 loses....
    All finished with babies, started to make diet changes, Keto, to be MORE for my kids, lost 30 pounds, still going, and 3 months in, I had a natural cycle, and then ovulated... Hubs and I are going to see what happens now... Maybe a natural pregnancy? After everything we have been through? Or just a return to normal hormones? We shall see what the future holds!

    Baby Dust To All!!!

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  • KuleamaKuleama member
    I was diagnosed with Factor V Leiden after delivery. I had a pulmonary embolism after delivering the boys and had blood tests done at that time. I just finished my anticoagulation therapy this last month. FVL is not the worst thing to have, as long as you tell all your doctors ahead of time, before surgeries or delivering. Also, they will probably have you on Heparin before delivery. I hope everything goes smoothly for you - PM me if you have any other ?s :)
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  • mdluv21mdluv21
    I would ask to be on one or the other.  Lovenox is more expensive and only one shot a day and burns more IMO.  Heparin is too shots a day.  I don't have Factor V but other clotting issues - if Factor V had come back + I def. would have pushed for a blood thinner. 
    TTC since 07/2009
    Me: PCOS, Blood/Immune Issues DH: Low all 3
    Jun.- Sep. 2010 IUI#1-#3 = BFN
    Oct. 2010 = IVF #1 = B/G Twins (passed away Feb. 2011)
    May 2011 = Myomectomy and trans-abdominal cerclage (TAC)
    Sep. 2011 = Surprise BFP = C/P
    Feb. 2012 = sFET #1 = BFN
    Feb.2012 = Hail Mary IUI #4 = BFN
    April/May 2012 = FET #2 w/our last two embies = BFP (Please let this be it!)
    Beta #1 8dp5/6dt = 234 Beta #2 10dp5/6dt = 695 Beta #3 12dp5/6dt = 1796 Beta #4 17dp5/6dt = 17,888 U/S #1 May 17, 2012 = Twins
    Baby B's heart stop beating at 9 weeks 5 days
    Our little miracle baby is a boy. :)

    Baby Boy Owen and Baby Girl Avery were born too early on Feb. 13, 2011 due to a pedunculated fibroid, incompetent cervix and suspected placental abruption.
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    SAIF/PAIF Welcome
    Lots of love and luck to my PAIF/3T/IF Veteran ladies, especially my dear friend Zookie. Congrats to Papps, Teach84 and Starbuck on their little ones.
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  • Mayan2011Mayan2011 member
    Thanks ladies.  My family Dr. is going to call my OBGYN next week to discuss my situation and his decision.  Now I sit tight.  I did let him know that I am very concerned about not being put on them.  He thought that maybe b/c I have had 3 bleeding episodes so far with this pregnancy that perhaps that has played into the decision - just a guess though.  He did understand my concern...
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  • missjul61missjul61 member
    imagemdluv21:
    I would ask to be on one or the other.  Lovenox is more expensive and only one shot a day and burns more IMO.  Heparin is too shots a day.  I don't have Factor V but other clotting issues - if Factor V had come back + I def. would have pushed for a blood thinner. 
    This. I'm on Heparin 2x a day and will increase to 3 later in pg. I inject with insulin needles so not too bad. I also take baby aspirin. Hope your OB addresses your concerns asap. GL!
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  • cutebride73cutebride73 member

    I am positive for factor v leiden and my hematologist wanted me on lovenox when doing IVF and on a cycle without IVF I was to start it after I got a +.  I have been on baby asprin daily for over a year. 

    I don't find the shots "that bad" - I ice beforehand and after - I do bruise sometimes though.  I am also lucky that my insurance covers lovenox very well, I pay $5 for a 30 day supply (well, it's the generic). 

    I would definately talk to your dr about it more. 

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