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Food Allergy
eosinophilic esophagitis?
LO is only 4% for weight and 25% for height (depsite her parents being 85-95% for height along with most family) and is still getting reflux and vomiting from yogurt at 15 months. We had a really tough time with the dairy intolerance when she was little (green/mucousy stool, screaming, gas, poor sleep) and my LO continues to be a fairly fussy child. He has suggested we see a GI specialist to explore an EE diagnosis. Has anyone gone through this? Any insight? She has not been tested for allergies at this point as my ped feels that they are not entirely accurate at this point.
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Re: eosinophilic esophagitis?
There is at least one mom on this board with an EE diagnosis for her child.
I don't know why you wouldn't see an allergist. I would definitely make an appointment and get tested and ask the allergist's opinion on getting scoped for EE. My allergist was ok with us getting the initial scope, but said if it was positive, he would rather us do a different treatment plan than food trials and rescoping.
My daughter was tested at 10 months old. They put them under anesthesia and put a scope down their mouth to take pictures of the GI tract and take samples of the intestines and stomach for testing. Luckily, she was negative. I am so sorry you are going through this. It isn't fun to play this guessing game.
I'm still reading up on EE, but it seems that allergy testing is a natural step in putting pieces of the puzzle together. I'm wishing that I already had it done for the GI doc to review.
My son (4) was diagnosed with EE at 13 months via an endoscopy. He also has food allergies, a good allergist and GI will be valuable to you.
For the most part the hardest part of the EE is the food restrictions. There are so many thinks that flare up the Eosinophils that he can't eat. We tried an elimination diet in the beginning in which he could only have 6 foods, but it was still to much and he was down to Elecare and prune juice (bad constipation issues as well). Through endoscopies trial and error and LOTS of allergy testing there are a few foods he can eat.
He can't eat any where near the quantity of the calories he needs from food, he needs the Elecare and overnight feeds through a Gtube to grow. Even now the calories he consumes through food are probably about 5% of his total intake.
Not knowing what is wrong is scary. Not being able to feed your child without fear is awful. Having a dx helped us start to live again, and even that took a long long time.
(I realized I said a lot my son has a lot going on with the EE, allergies he also had a birth defect which contributed to the need for a feeding tube. )
DS1 has EE and DS2 probably does as well. It is a hard diagnoses to get and I hope that you don't hear it.
DS1 has a feeding tube and gets 97% of his calories through it from Neocate Jr. We just finished food trials and he can only eat 8 foods.
The PP already said a lot about it and I know this post is old so you may not even see this, but feel free to message me if you have any questions. www.apfed.org is a great informational website as well.
My son has EE and our situation is nowhere near as drastic as what the PP have stated. DS was thriving- excellent weight gain, excellent growth overall, healthy baby boy. I EBF until he was around 12 months old, then we went right to table food. He did wonderful for about 6 months and then started vomitting on a fairly regular basis. Thankfully, his growth continued and the pediatrician thought that he was just choking on his food and told us to push liquids and smaller bites. We did and he continued to vomit. I suspected food allergies and took him to the GI, who pushed for a scope. We scoped 2 months ago and he was diagnosed with EE.
When we left the hospital that day, i was devastated. My seemingly healthy 2 year old, whom was eating EVERYTHING, was now put on such a restrictive diet- EleCare (which he totally refused), and avoidance of the top 6 allergens. After this, I went to the allergist and found out about the following allergies: milk, egg yolk, wheat, soy, peanuts, walnuts, and sesame seeds. We immediately cut ALL of these out of his diet and have never looked back. he is doing AMAZING. He hasn't vomitted a single time. Wednesday is scope # 2 to check for healing (which I am confident we will find.)
Just think about what you have to do for your child's health. I was on the verge of tears after we went for our scope. GL!