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Special Needs
CrazeyJaneyR
member
I'm so angry with the Child Psychologist from EI.
CrazeyJaneyR
member
She evaluated my son in October and told us at the eval that he was on the spectrum. She said she wasn't sure if it would score PDD-NOS or autism.
We kept calling to set up an appointment to go over the results and no one would return our calls.
She didn't go over the results until LAST WEEK. 3.5 months later. We were so upset that they didn't make an effort to go over his results. We expressed this to her during the meeting. We then went on to talk about the changes that are going on with the definition of ASD, etc. At that point she said, "the changes will affect borderline cases, not children like yours".
This pissed me off SO BADLY. My kids are barely 2. She has no idea whether or not they will be "borderline" because she has only met them twice. Even Yale only gave them a "preliminary diagnosis" because they are so young. I have been around enough kids with ASD to know that at least one of my children is not profoundly affected. I wanted to punch her. She has no idea how something she said so flippantly could be so hurtful. It ruined their whole birthday weekend, we were devastated.
I have never asked nor do I want to know the professional opinion of "how bad" my kids have ASD. NO ONE KNOWS what the future holds for their kids , whether they have a DX or if they are NT. If my children are so profound that it is evident when they are 2, then she shouldn't have dropped it on us like that. I don't believe they are, but if that's the case, then have a little sensitivity, jerk.
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Re: I'm so angry with the Child Psychologist from EI.
I'm sorry that you're going through this. The psych who did the evaluation on DS also dropped one of those comments that may have been intended to do one thing but instead just pi$$ed me and DH off. She was talking about how the prognosis for kids with a dx is much better now. It was something like "he'll probably be able to get a job ... ?" DH was livid after she left. In hindsight I think maybe she was trying to allay the long-term-future fears but it just came across the wrong way.
I do agree that the wait is ridiculous. We were told pretty much right there what we were going to get. We asked her to talk to his therapists so I think she placated us and did that and then issued her official report a few weeks later - but we knew what'd be on it.
I won't lie and say that in my heart I don't dream about an "oh, actually, we were wrong about your son ...." letter or call but I also know that that's not going to happen. (at least today I know that, tomorrow I'll be dreaming again)
{{hugs}}
I'm just not ready to know bad news. I will eventually want to know but not now.
I don't think my kids will lose their DX.
Yes, that's why I come here, to vent about the message and the messenger and anything else that annoys me or upsets with me. That's why I'm here. For support in the hard times.
Auntie, you are way further along in your journey and have been processing this for a much longer time then most of us. It gives you a different perspective - a very valuable one that I'm often not ready for.